helpforhashimotos

[helpforhashimotos]

If you're disabled in the US and have medicaid, you might be able to get approved for free home care services through your state's Home & Community Based Services! You can have someone come by and help you with chores and/or nursing care once or more every week for FREE! I've had it for 2 years and it's been life changing. Someone comes by to do chores for me twice a week, saving me from constantly feeling bad not being able to clean. You can select form a list of approved companies, or you can even have someone you know get paid by the state to help you out!

Here's where you can find more information about it!

Alabama

Alaska

Arizona

Arkansas

California

Colorado

Connecticut

Delaware

Florida

Georgia

Hawaii

Idaho

Illinois

Indiana

Iowa

Kansas

Kentucky

Louisiana

Maine

Maryland

Massachusetts

Michigan

Minnesota(1) (2)

Mississippi

Missouri

Montana

Nebraska

Nevada

New Hampshire

New Jersey

New Mexico

New York

North Carolina

North Dakota

Ohio

Oklahoma

Oregon

Pennsylvania

Rhode Island

South Carolina

South Dakota

Tennessee

Texas

Utah

Vermont

Virginia

Washington

West Virginia

Wisconsin

Wyoming

Please reblog so that it can reach anyone who might need it!

[helpforhashimotos]

hey just a little pro-tip to abled people

if a disabled person is talking about how their disability affects them, or how a particular tool might help their disability… it’s not helpful to say something along the lines of:

“I relate to this, so it has nothing to do with your disability”

“why did you bring your disability into this?”

“this is not a disability thing”

you, as an abled person, are probably either misunderstanding something or are not experiencing the issue to the same extent as the disabled person.

stop talking over the top of disabled people when we talk about our experiences and our disabilities.

[helpforhashimotos]

You know what?? I have a really spicy take today guys

Normalize just, giving up, as a disabled person

If you have a bunch of physical conditions that can technically be treated, and maybe treatment over the course of ten years might make you 10% more capable of acting like an abled person

If you don't want to do it, just fucking don't

I am sick and tired to death of abled people's respect being conditional on whether or not I've "done everything I can"

If you would be more happy limiting physical activity and/or relying on a wheelchair for the rest of your life than constantly overexerting yourself to do physio and work out and use up all of your energy "treating" yourself, just fucking do that

We only get one fucking life and I would rather be physically limited and spend my free time doing things that bring me joy and fulfillment than constantly worrying about making myself as abled as possible.

If treatment isn't making a positive difference in your life, who are you really treating yourself for?

Disclaimer: I am not saying every disabled person should just stop treatment, but I am saying that you should decide whether certain treatments are right for you based on your own benefit and not on what's expected of you or what makes your family/friends/doctors happy

We deserve to be respected regardless of how much work we put into "fixing" ourselves. Some things just can't be fixed and sometimes the pain and suffering caused by treatment outweighs the benefits

[helpforhashimotos]

Roy Mustang + text post

[Image description: Pictures of Roy Mustang with a thread from gayarsonist edited over.

The first image is of Riza asking Roy something, with an anon ask over it that reads “What do you think of the ‘revenge bad’ tropes frequently found?”

The second image is of an angry Roy snapping his fingers, in the middle of burning Envy to death. gayaronist’s answers the ask, “it actually pisses me off sooooo much when characters are like ‘ohhh but if i hurt or kill the bastard who made my life and others’ a living hell i’m just as bad as they are!’ like grow up and shoot him what are you catholic”

The third image is a shot of Roy standing over Envy as they crumble to ashes. In a reblog, gayarsonist says “‘but I’m too good to kill anyone :(’ I’m not. Give me the gun.” End ID]

[helpforhashimotos]

Tips for cooking with a physical disability including fatigue, being in a wheelchair, and difficulty holding items.

[helpforhashimotos]

there is no physical disability, no chronic illness, no injury, no deformity, no terminal illness, no prognosis, no bodily condition that makes someone inherently unlovable. love is much more complex and powerful than that. friendship, romance, sex - - love is more complicated than anything your body is or will be. it can be wonderful and scary, how many people are out there ready to accept you for who you are in this massive world

to love you and your medicine, oxygen tank, prosthetic, wheelchair, cane, walker, brace, cast, appointments, IV, pacemaker, colostomy bag

your flare ups, your pain, your surgeries, your joy

one condition, one dozen conditions, invisible, visible, common, rare

at your lowest, at your most isolated, at your most unsexy

you are still there, and you are still here, in a world of so many unpredictable people, unpredictable emotions, unpredictable encounters, and unpredictable relationships just waiting to become part of your life, just as you are

[helpforhashimotos]

Shoutout to disabled people with “ugly” symptoms. 

To spoonies with

gas

colostomy bags

chronic diarrhea

catheters  

constipation

gurgling stomachs

canulas

profuse sweating

rashes

acne

limps

stimming

flapping

rocking

trembling

twitching

word slurring

wheezing

adult diapers 

incontinence pads

braces

weight problems

bloating

accents

scars

You’re not ugly, shameful, dirty, or infant-like. 

You are a strong, wonderful, important adult.

I believe in you.

[helpforhashimotos]

My sister just sent me this????

Ive literally never seen a model wearing a cgm or pump,, especially for a company thats so big??? Im cry?????

[helpforhashimotos]

being disabled is just like *gets traumatized by things that are supposed to be fun* *gets traumatized by things that are supposed to be fun* *gets disrespected by someone you trust* *is hot* *gets traumatized by things that are supposed to be fun* *gets traumatized by-*

[helpforhashimotos]

I'm a spoonie myself but I personally hate it when folks tell me I'm inspirational or a warrior or things of the like. Mostly because they say it as if I "chose" to be brave and a warrior. I don't want to hurt their feelings, but this is my life now and I had no choice in it. I want to tell them so badly that the only other choice I had was to die. Have you been in this situation before? Do you have any advice on how to handle it bc I'm getting tired of it quite frankly...

You are 100% not alone in feeling this way, and while I’d never invalidate other people who do take solace from that sort of narrative, I spend a lot of time trying to help people understand that putting disabled and chronically ill people on pedestals and couching our daily experience in the ideas of noble suffering and the violent language of warfare is... not helpful and in fact very harmful.

Jessica Kellgren-Fozard ( @jessicaoutofthecloset ) actually did a really good video on this which I’ll link here, and is actually really handy to link to people when you don’t have to explain why they’re being a bit of an insensitive walnut:

(Closed captions are included for those who need them.)

Which is partly my way of dealing with it. I deal with it by trying to educate and help others understand why this is a rather problematic and exhausting thing for people like me to go through. (Note: there is a HUGE difference between people telling you they admire you vs the voyeuristic way some people view disabled people as heroes for not being “normal”)  But that doesn’t mean everyone else has to be an advocate. Choosing to educate people on chronic illness and disabilities is exactly that, it’s a choice, not an obligation. 

So the other way I deal with it is to ignore the times when it happens, take my issues to therapy and find like-minded friends and have a good old fashioned vent. This is why chronic illness/disability communities are so important, they help with the isolation many of us feel on a daily basis, whether it’s accessibility issues or the way people talk to and about us. 

I wish I had a better way of saying “here is how I deal with it”, but honestly a lot of the time I don’t. And that’s valid too. It’s okay to just distance yourself from that and not engage if you don’t want to. 

And if you do want to, well, maybe send them Jessica’s videos. They save me a lot of time and mental spoons. 

[helpforhashimotos]

[helpforhashimotos]

you ever realize how able bodied people just are not expected to do things that cause them excruciating physical pain? like they’re just. not

if i shouldn’t use my cane because i can sometimes technically walk without it, it would just hurt like a motherfucker then abled people should no longer be allowed to use potholders to take things out of the oven because i mean

well they could technically pick up a hot pan with their bare hands. it would just hurt like a motherfucker

[helpforhashimotos]

New favorite TikTok

[helpforhashimotos]

[helpforhashimotos]

[helpforhashimotos]

Can’t stop watching this

[helpforhashimotos]

Sometimes (lots of times) (all the time), I have the urge to do a thing but i dont know what. Or, I feel weird, but can't figure out why or what to do to fix it. ADHD, executive dysfunction, how I feel, and the phase of the moon can all make it really hard for me to think of a solution to the issue -- or even know what the issue IS. And while meds and regular sleep certainly help, for better or for worse my brain just isn't wired for this.

So, I decided to outsource my brain.

I couldn't find an app that did what I wanted or was customizable enough for me to fake it. Therefore I built an analog external brain to do my thinking for me.

First, I bought a small, 100-or-so page notebook. It was about eight bucks at my Local Corporate Book Retailer.

Then, I logicked out all the possibilities I might have trouble braining, and started adding each step to the book -- kind of like a choose-your-own-adventure novel.

Here's an example path, which starts with me knowing what I want, and the analog brain telling me how to get there. I twisted my ankle a couple weeks ago and keep forgetting to do things to make it better, so here's my solution:

[image: Do you know what you want? Yes -> 1, No -> 32. Yes is circled]

Yes, analog brain, I know what I want! Let me flip to page 1.

[Image of Page 1: What do you want to do? Exercise -> 2 is circled. Other options include Read -> 13, Watch something -> 20, Eat ->31, Be creative -> 25, Have an adventure ->26, Clean something ->28, Learn something->29.]

Still know what I want, so I flip to page 2.

[Image page 2: What kind of exercise do you want to do? PT -> 5 is circled. Other options include Weights -> 3, Cardio -> 4, Yoga -> 9, Something quick -> 10, Hiking -> 11, Adventure -> 12]

Skipping some pages now! Since this is meant to bounce me around, it doesn't make sense to try and read it in order. (On the plus side, that makes it super easy to add new options to any part of the tree).

[Image page 5: What kind of PT? Ankle ->6 is circled. Other options include Knee->6a, Neck->7, Shoulders->8.]

(When I first numbered the pages, 6 and 6a werw stuck together, whoooops)

[Image page 6: A list of ankle PT exercises]

Eyyyyy my external brain showed me how to do my flippin' PT so my ankle stops hurting! Yay!

But what about when I don't know wtf is wrong or wtf I want? There's an app analog brain for that! (Yes I'm aware its called a decision tree or process flow or what have you. Let me have this).

[Image: Do you know what you want? No->32 is circled]

No, spacebook, idfk what's wrong, I can't brain today.

[Image page 32: How are you feeling? In pain ->33 is circled. Other options include Overstimulated->37, Understimulated, Panicky->43.]

(As you can see, I have plans to add a page for overstimulated but have not done it yet.)

Oh yeah my ankle kinda hurts, maybe I can do something about that...

[Image of page 33: What kind of pain? Knee/ankle/neck/etc ->35 is circled. Other options include Menstrual nonsense->34, Head->38.]

[Image of page 35: Joint/old injury pain: Take advil, Ice or heat, Massage, Foam roll, Warm bath, PT exercises. Under the last option are subsets Ankle->6 (circled), Neck->6a, Knees->7.]

...Aaaand now I'm back around to my list of ankle PT exercises! And I didnt have to think at all!

Anyway -- all it takes to make something like this for yourself is a notebook and some time to think the logic through. You can start by making lists (not in the notebook) of questions you have trouble braining in the moment, and what some solutions are. Then number your pages, and get started!