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What is hEDS?

As a note I’m not going to be touching on the Hypermobility Spectrum Disorders today but I will do a separate post about hEDS vs HSD. First things first more general information: What does EDS stand for? Ehlers Danlos Syndrome(s)! Ehlers Danlos Syndromes are a group of genetic connective tissue disorders. There are 13 different subtypes varied in how they affect the body and in their genetic…

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Baby Loss Awareness Week 2020

Baby Loss Awareness Week 2020

I intended to share this on 9th October but I wasn’t able to so I wanted to share it now. TW: baby loss, addiction, eating disorder, infertility, miscarriage. And breathe. This is officially the hardest thing I’ve ever written or shared publicly. A few years ago (I will not be sharing dates – that is too personal) I had a late stage miscarriage. I was 15 weeks. And absolutely no one knew. I was…

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Man I miss bookshop coffee dates so much! Waterstones cafe is one of my favourites ever and I can’t wait for COVID to p*ss off so I can go back. What’re you looking forward to post COVID? 📚📚 - - - - (ID: two photos of a coffee table with books and cake) (at Waterstones Brighton) https://www.instagram.com/p/CFiEIWUBfDa/?igshid=f0lkck35h5yn

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Happy 1st day of Autumn 🍂🍁 this is truly my favourite season filled with pumpkin spice lattes, maple candles, so much orange, the leaves change, Halloween & the annual Gilmore Girls rewatch. Perfection 🌻 - - - - - - (ID: a pumpkin spice latte in a mug saying ‘witches brew’ with the Gilmore Girls open screen on a laptop behind) https://www.instagram.com/p/CFcmzzZhakU/?igshid=1kwcecpa53hn2

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Grant me the serenity to accept the things I can not change, the courage to change the things I can and the wisdom to know the difference 🌻 thank you so much @elliecbogue for the beautiful flowers and for always being there 💛 - - - - - (ID: photograph 1 shows a bunch of sunflowers in a glass vase placed on a coffee table. A red sofa is in the background and a Yankee candle is next to it. The second photo is a close up of one of the sunflowers blooms https://www.instagram.com/p/CC9xBdMh9aB/?igshid=1trequn3byjtu

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First home 🏡 (at Leatherhead) https://www.instagram.com/p/CCLo5CahBn5/?igshid=1teh5v8d9ifus

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Throwback to 2 years ago. My gosh do I want to go back to Disney! 🏰 - - - (ID: a picture of Ariel on her float in the Festival of Fantasy parade) https://www.instagram.com/p/CB3DZF9h9yJ/?igshid=12xg0wx9c0rnk

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Last week I got to see my best friend and a squirrel visited us and it was the best day I’ve had in months 💞 - - - (ID: photo 1 is of my best friend eden wearing a floral skirt and sun hat sat in the garden. Photos 2 and 3 are of a squirrel with flowers in the forefront) https://www.instagram.com/p/CBTcby3hLiY/?igshid=mi66qb2wooyw

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After talking to Katie I realised thats I’ve always referred to myself as bisexual probably because it’s ‘easier’ and more people are aware of it as a sexuality. But in reality gender has never come in to play when discussing my sexuality. So I guess I’m pansexual and this is me coming out again? Happy Pride month babies 🏳️‍🌈 https://www.instagram.com/p/CBOmxQUByHN/?igshid=10skb09cmk3y2

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I’ve struggled to know what to say or have the capacity to put things into words. But I can’t be silent. Sharing things is important and of course better than nothing but it feels so wrong to be vocal about things that affect me but not about this. So here I am saying that I haven’t done enough and vowing that I will do better. Whether you have 5 followers or 5 million followers you have an audience and people who will read and listen. Me signing petitions and talking to family while fantastic is not be doing enough. I need to share these things to as many people as possible. Here are some good resources - keep doing better: Accounts to follow: @rachel.cargle @ajabarber @bodiposipoet @amerie @stephanieyeboah @michellehopewell @blklivesmatter Protests to sign: ⁃ George’s law ⁃ Make white privilege and systemic racism a compulsory part of the British education course ⁃ Julius Jones is innocent. Don’t let him be executed by the state of Oklahoma ⁃ Suspend UK export of tear gas, in rubber bullets and riot shields to USA ⁃ Demand justice for George Floyd ⁃ The minneapolis police officers to be charged for murder if after killing innocent black man Charities/fundraisers: ⁃ black minds matter uk ⁃ Official George Floyd memorial fund ⁃ Justice for Breonna Taylor ⁃ I run with maud ⁃ Trevor Belle ⁃ National bail fund network ⁃ Helping hand - access PR small biz relief ⁃ Black visions ⁃ National black disability coalition Books to read (a mix of non-fiction educational books and fictional books by black authors: ⁃ Inside this place, not of it: narratives from women’s prisons by Robin Levi ⁃ Opposite of always by Justin A Reynolds ⁃ Why I’m no longer talking to white people about race by Reni Eddo-Lodge ⁃ Queenie by Candice Carty-Williams ⁃ Kings, queens and in-betweens by Tanya Boteju ⁃ I know why the caged bird sings by Maya Angelou ⁃ Americanah by Chimamanda Ngozi Adichie ⁃ White fragility by Robin DiAngelo ⁃ We were eight years in power by Ta-Nehisi Coates ⁃ Me and white supremacy by Layla F Saad ⁃ Girl, woman, other by Bernardine Evaristo Things to watch: ⁃ explained: the racial wealth gap ⁃ Time: the Kalief browder story ⁃ When they see us - 13th https://www.instagram.com/p/CBBAe8_Bv4H/?igshid=j1dm55ybcs4m

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Black Lives Matter

I’ve struggled to know what to say or have the capacity to put things into words. But I can’t be silent. Sharing things is important and of course better than nothing but it feels so wrong to be vocal about things that affect me but not about this. So here I am saying that I haven’t done enough and vowing that I will do better.

Whether you have 5 followers or 5 million followers you have an…

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I also have: ‘inside this place, not of it’ and ‘queenie’ Just a few of the books I’m going to read. An array of fiction and non-fiction. Support black authors! Read to learn more. https://www.instagram.com/p/CA_qjktBOdv/?igshid=g9kwyatdxvf3

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We are all learning. But it is so important to try and make mistakes and be open to correction then just ignore it! https://www.instagram.com/p/CA8fZ1hBXKL/?igshid=nfenhc3uexgt

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I posted my own content today which isn’t relevant. From 2nd-8th I will be sharing posts and voices on my stories and fundraisers and petitions on my feed. Please highlight to me anything I have missed. https://www.instagram.com/p/CA53RvrBbVb/?igshid=fvflbjjxl52l

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#ootd - - - (ID: Charlotte wearing some black full length dungarees and a teal top picturing the phases of the moon. She stands with her hand in her pocket, one strap or the dungarees loose taking a selfie in a mirror) https://www.instagram.com/p/CA46UL7BT6w/?igshid=dqt45x5gswde

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I desperately miss being in nature and exploring 🌾🌾 https://www.instagram.com/p/CAVSV5bB33V/?igshid=tv3i6rb7gb8k