verbal storyteller | PFP&BG: https://picrew.me/share?cd=5Zawsjrd30
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Some pics of the repotting of two of my plants (geez Girl Fieri looks so much happier) and full pics of my room garden right now
+Bonus pics of my altar at night because I think it's pretty
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#PBS teaches kindness and inclusion, which are threats to abusive paternalism.
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Apparently along with pride, this month is migraine awareness month. So here's some facts about . migraines and how they relate to me:
• A persistent migraine aura is an aura that lasts more than a week (and could last years).
• COVID could enhance frequency and severity of migraines.
After COVID, I had migraines every day for a month. These migraines came with auras, which never fully recovered.
•Auras can include scotomata (which are blind spots) and palinopsia (trailing or afterimages).
Both of these I get (the scotomas being peripheral) along with shadowing in my central vision.
• There are a few medications for persistent auras, so if you are experiencing them and they are cumbersome or debilitating be sure to contact your neurologist!
Though personally, I have not found a treatment that works for me, and instead I work hard to manage my symptoms through diet, exercise, and learning to cope with remaining symptoms (like with my cane and adaptive driving techniques).
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Even to some self-proclaimed allies, and sometimes even disabled people themselves, it seems that many are still under the assumption disabled people must not be trying hard enough. There's the issue everyone talks about, the people who think if you "just believe/try harder" you will be cured. But there's also it's sister issue, the people who think "just getting on meds" is magical and will always make things better. They really don't know what goes into that or how much it doesn't work for everybody. I don't think that one gets talked about properly. It's always over exaggerated by the anti-meds people. People don't talk about it in a moderate manner. It's almost never "meds will cure all your problems," but sometimes it is "going on meds is easy" and "meds will definitely help you, because they helped me!" And also people not believing you've tried enough meds or treatments before realizing you might be better off without them. And tbh that's also not a healthy mindset.
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I'm not giving up. I'm not taking meds. I'm not doing experimental procedures. I'm not giving up.
I'm done risking the rest of my health to make one thing better.
I'm not giving up.
Every day, I'm learning to deal with it. Every day I'm learning to cope. Both with help and without.
I'm not giving up on myself. I'm not giving up on my sight.
I might be pausing the treatments, until there's something proven to be better out there, that won't make me a guinea pig, with less side effects. But I'm not "giving up."
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Back to having the scotomata but frick at least I don't want to kms...I really really need to stop trying meds at this point. They keep making everything worse
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Honestly, y'all, I'm begging you. Take the time to think and learn for yourself. Even if it's just something casual like knitting or cooking. Exercise your brain. It's important.
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Mammu! Finius and Ferbingetorix built Rome in a day!
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Yeah sure hablo un poquito de español, but if someone is around that can speak it better than me (especially a native speaker who can help you better), you best believe I will suddenly forget everything I know other than comprehension but why
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I'm basically a porg: I like to be in high places even though I'm small, when I get understimulated I like to scream, when I get overstimulated or scared I go quiet, and I like to collect shiny/soft/sensory things and Silly Little Trinkets and gift these as my love language.
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I also created a playlist for work with stimmy fandom songs (and one regular song) that creates a story!
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I made a playlist that's musical whiplash but with stimmy fandom music
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