https://linktr.ee/mirleta Just me living my life out loud and attempting to share my thoughts and adventures as I do it. Many of you probably already know that "LOL" typically stands for "laughing out loud" but as for my life, it means "living out loud". For many adults being authentic no longer comes naturally. We must work at it. Somewhere between childhood and adulthood we have lost the ability to simply LIVE. After dealing with a lot of personal trials, including verbal/emotional abuse and being the caretaker for my father prior to his death, I have come through and not only survived, but am working on thriving. I have maintained a sense of humor & have been resilient. Here I will write about my life and what's going on in my mind. Hence is the life of a writing, child-at-heart, sage-like goddess who refuses to "grow up" if that means being inauthentic.
Don't wanna be here? Send us removal request.
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11
Reblog Per Post
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Time Between Posts
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National Day of Defiance June 14th, 2025 Do what you are able! Check out the article for details! https://indivisible.org/statements/indivisible-and-partners-announce-no-kings-nationwide-day-defiance-flag-day-during#:~:text=%E2%80%9CThis%20country%20doesn't%20belong,not%20be%20brought%20to%20events.&text=The%20Indivisible%20Project%20(501c4)%20is,and%20build%20an%20inclusive%20democracy
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Help save NPR and PBS! Join the effort to protect public media @MyPublicMedia! Sign the petition now to safeguard your local public media stations. https://bit.ly/450C2uw #ProtectPublicMedia
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Got the exceedingly rare opportunity to spend time with Conni Berns in 3-D while she’s on her way through Cincinnati for a brief visit before her once in a lifetime Alaskan cruise. We hit up the neighborhood coffee shop for coffee and quiche for a lunchtime visit on an extremely rainy May Saturday afternoon.
If you didn’t know already, as my shirt says, in May we wear #marigold, #purple and #blue for #BladderCancerAwareness! Yes, I have a pair of glasses to match my cause!
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Starting the journey back to my self care routines. Dusted off the polished and painted my nails to match my brightening mood. Base coat = @nail.aid Sapphire Strength Mega Growth formula. First Coat = @zoyanailpolish either in #Purity or #SnowWhite (label is no longer attached). Second & third coats minus accent nail = @orly in #Glowstick. Accent nail = @zoyanailpolish in #Daisy. Top Coat = @sally_hansen #HardAsWraps.
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It just dawned on me to look up where my ostomy pouches are manufactured because it hit me tariffs will apply to medical supplies too. Fun. 🫠🙃
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#Sponsored I am so honored and excited to partner with Johnson & Johnson to increase #BladderCancerAwareness and #EmpowerPatients to be their own best advocates. I'll continue sharing my personal journey - from diagnosis to advocate - on Health Union's BladderCancer.net. I truly believe that every voice can make a difference. I invite you to subscribe to BladderCancer.net so we can stay connected as I bring you along the paths I have been and am headed towards while we support the #BladderCancer community. Go to https://BladderCancer.net to subscribe. Click here to see the article --> https://health-union.activehosted.com/index.php?action=social&chash=576258b4a6dbcfc5b4839354868731d3.11391&s=59ddb7977a085f0c0742b69921155fd1 #LinksInBio also. #Like #Comment #Share
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Thanks to my friend Dr. Kim Makoi (DC, PhD) for this tidbit:
Find a #Podcast that Supports YOU
I'm not the biggest podcast fan or active listener, but finding some that ring true with me is helpful in moments that I really need it -- like if I have to be hospitalized or sitting in a treatment chair. Consider seeking out some for the things you're passionate about.
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#OstomySupplies are NOT interchangeable! The products interact with each human's body differently and have different purposes and benefits! https://www.ostomy.org/wp-content/uploads/2024/11/Ostomy-Switching-Findings-Report_Final-HighRes.pdf
Thanks to United Ostomy Associations of America for this great #research!
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#Health is a #journey! Not a destination! Thanks to Dr Kim Makoi D.C. for this great reminder!
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Happy #RareDiseaseDay! There are more than 6,000 IDENTIFIED #rarediseases. Take time to watch this video: https://youtu.be/fIvqxQPjisI?si=GUzSbbOvpUv-iPuv.
Research is VITAL and is currently under attack by our current administration. Contact your local politicians and inform them that ALL medical research is essential to ALL Americans!
Zebras are the "official mascot" of rare diseases: "When you hear hoof beats, think zebras, not horses."
For more info on this awareness day(annually on the last day of February) - you can check out https://www.rarediseaseday.org/ and follow their social media. There are always toolkits and events associated with today (and the whole month) - in-person and virtual.
AYA Cancer (Adolescent & Young Adult Cancer), people diagnosed between the ages of 15-40, is included in the rare disease umbrella - and that includes me.
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As we head into my birthday tomorrow, I feel it’s fitting to share that I have a featured article in the Ostomy Canada Society magazine’s #Fall2024 edition!
I was asked to share my #BladderCancer & #Urostomy experience with my fellow Canadian #ostomates.
Without my#ostomy, I would not be alive to see 49. I might now have lived to see 41 even. You can view the article by subscribing at https://ostomycanada.ca/other-ways-to-get-involved/become-an-ostomy-supporter/
#Gratitude to #OCS for the opportunity to! Glad my copies arrived before the postal strike!
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Proud to have the opportunity to lend my voice and my experience to advocate for and inspire others, including for #OstomyAwarenessDay. Here's my article published in the October 10th issue of The West River Eagle/Waŋblí waŋ wakpá wiyóȟpeyataŋhaŋ.
https://www.westrivereagle.com/articles/lizs-experience-living-with-an-ostomy/
We are running a special on subscriptions NOW! If you are far from #CheyenneRiverSiouxTribalReservation or #EagleButte, #SouthDakota, you can get electronic subscriptions (viewable on the website) or mailed to your house. Check us out and help us #celebrate the #community and #amplify the #voices!
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Happy #WorldPostcardDay!
For those that have known me for any length of time, most know that I’ve always been obsessed with #SnailMail. #Postcards are no exception!
Sending & receiving #mail is a great way to express how important people are to you. It takes time, effort & money to send something through the #PostalService.
For me, it is also an aid for keeping my #depression in check and it improves my #MentalHealth.
Whether you send a postcard, note or 10-page letter, stick something in the mail today and #celebrate the relationships in your life!
#CelebrateEveryDay
@postcrossing
@letterappsoc
@uspostalservice
@monthofletters
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