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Wishing all undiagnosed/partially diagnosed people a very doctors listening to you and providing you with more testing than a blood draw and even possibly providing treatment 2024
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you guys know being neurodivergent isn’t just … having interests a little too enthusiastically , right? like you know neurodivergence includes mental illness, right? please tell me you know this
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our autism isnt professionally diagnosed and it definitely wasnt self diagnosed either, but a secret third thing :)
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A series of 8 tweets on the experience of being autistic and ADHD (AuDHD) by @pot8um on twitter, image descriptions below cut.
I saved these shortly after being dx + medicated with ADHD last year. It was the first time I began to seriously consider the possibility that I was also autistic. 1/8
AuDHD is a constant tug-of-war— contradictions that exist simultaneously that I feel equally strongly about.
[image description: Two-column text inside orange arrows on left, and blue arrows on right. Title “What ADHD & autism feel like…” L column is ADHD; R column is autism. 1st row, L text: “Making spontaneous plans”, R text: “Getting very upset if those plans are interrupted” 2nd row, L text: “Struggling to organize”, R text: “Having a strong need for order”. By @autistic.qualia]
Each of these are so familiar to me, but I could never articulate my experiences with the right language. Also, if you don’t know what you’re experiencing is AuDHD, you don’t know what questions to ask. You didn’t know you were even supposed to *have* questions! 2/8
[image description: Two-column text inside orange arrows on left, and blue arrows on right. Title “What ADHD & autism feel like…” L column is ADHD; R column is autism. 1st row, L text: “Impulsively making purchases for a new hyperfixation”, R text: “Hyperfocus on researching the products” 2nd row, L text: “Struggling to be on time”, R text: “Upset when others are a few minutes late”. by @autistic.qualia]
I have phases of hyperfixation with certain things, and lifelong interest in others. Successfully executed plans / tasks is always my goal. (The perfectionism is too real.) I always get frustrated when I inevitably miss steps, regardless of my attention to detail. 3/8
[image description: Two-column text inside orange arrows on left, and blue arrows on right. Title “What ADHD & autism feel like…” L column is ADHD; R column is autism. 1st row, L text: “Hyperfixating on a wide variety of topics”, R text: “Also having long term special interests” 2nd row, L text: “Forgetting steps in plans”, R text: “Needing plans to execute perfectly”. by @autistic.qualia]
I *love* trying new foods… until it’s a bad experience, then I clam up and am reluctant to try again. When it comes to food, consistency is vital to me. My brain is far more active than I have spoons for. Most of my ideas strike when I’m freshly overloaded and spoonless. 4/8
[image description: Two-column text inside orange arrows on left, and blue arrows on right. Title “What ADHD & autism feel like…” L column is ADHD; R column is autism. 1st row, L text: “Enticed by novel foods”, R text: “Hypercritical of food taste and texture” 2nd row, L text: “Wanting new experiences”, R text: “Wanting to stick to what I know I like”. by @autistic.qualia]
I tend to hyperfixate on things that aren’t central to the task at hand. (I don’t want to say “on the ‘wrong’ thing” because I’m on my self-compassion shit ) Discovering my neurodivergence during the pandemic was surreal. Severe boredom, severe overload, severe whiplash. 5/8
[image description: Two-column text inside arrows. Title “What ADHD & autism feel like…” L column is ADHD; R column is autism. 1st row, orange arrow, L text: “Misses details and makes mistakes on boring topics”, blue arrow, R text: “Notices small details and points out others’ mistakes”. 2nd row, purple arrow, L text: “Becoming easily understimulated”; Yellow arrow, R text: “Becoming easily overstimulated”. by @autistic.qualia]
Overthinking the stages of your emotional dysregulation is its own personal hell. When I’m lowest on spoons, I tend to ruminate the most. My thirst for knowledge is met by my shoddy working memory. I try recalling a fact that *I know* I read up on. Can’t. Frustration ensues. 6/8
[image description: Two-column text inside arrows. Title “What ADHD & autism feel like…” L column is ADHD; R column is autism. 1st row, purple arrow, L text: “Struggling from emotional dysregulation”. Blue arrow, R text: “Being a logical and analytical thinker”. 2nd row, orange arrow, L text: “Struggling to retain information”; Yellow arrow, R text: “Wanting to learn everything”. by @autistic.qualia]
It’s hard for me to Start the Thing. Once I start, I NEED to ride that wave! If I’m taken out of the moment, idk when I’ll be able to start back up. If I don’t say what I’m thinking *while* I’m thinking it, it’ll be forever lost. (Trying my best to work on this. It’s hard!) 7/8
[image description: Two-column text inside purple and yellow arrows. Title “What ADHD & autism feel like…” L column is ADHD; R column is autism. 1st row, L text: “Having difficulty sitting still”, R text: “Hypersensitive to other people fidgeting”. 2nd row, L text: “Interrupting others when they are busy”; R text: “Hate being bothered while in hyperfocus”. by @autistic.qualia]
Please note: • These traits are infinitely more nuanced than a few tweets can possibly cover. • I do not speak for the entire autistic community. From @autisticqualia on IG, an outstanding AuDHD awareness account.
[image descriptions: a box of text at left reads “Having both ADHD & autism can sometimes feel like there are contradicting forces within you. Traits that seem incompatible on the surface can exist in the same person.” A box of text at right reads  “Everyone with ADHD & autism is different. These are the contradicting traits that I personally experience as someone with both ADHD and autism.”]
It's uncommon for me to see someone discussing the experience of being both austistic and ADHD, and this was articulated so well, I feel like it also describes my experiences. (The author is also an advocate for late diagnosis AuDHD adults, who has shared her experiences about working with dismissive, misogynist doctors.)
Bearing in mind that every individual is different, as noted by the tweet author, I feel like I am more autistic than I am ADHD, despite my ADHD diagnosis (and these two developmental disorders have many overlapping traits, of course).
I have never, ever understood the experience of "ADHD boredom" that I have seen some people describe. I am perpetually overstimulated, not understimulated, and I stuggle to process experiences and find enough time and space. Executive dysfunction also prevents me from starting/enjoying activities, as is typical with ADHD. It's not just a thing that makes it difficult to work on stressful or boring tasks; it prevents you being being able to commence fun things, like reading for enjoyment or watching a TV show you want to watch. And when I do manage to start the book/TV show, the stimulus is often overwhelming and I don't get very far.
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Just for once I’d like to tell the gate agents and flight attendants that my folding wheelchair is going into the onboard closet and not have them tell me there’s “no room”. Bitch that’s a wheelchair closet, not a “your bags” closet. Move your damn bags where they belong.
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Don’t forget your meds today.
Want twice daily reminders to take your medications? Follow @dontforgetyourmedstoday​
Questions? Submit a reminder
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Shout out to the ten year old who just got diagnosed. Shout out to the housebound fourteen year old. Shout out to the eighteen year old who can’t go to the university they wanted. Shout out to the twenty two year old who can’t get a job. Shout out to the twenty six year old with a caretaker. Shout out to the thirty year old who can’t buy their own house.
Shout out to young disabled people. We exist.
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Janae Roberts
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This is how you move on
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Sometimes best isn’t always possible
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Rocking chairs are proof autism and ADHD have always existed, there is no way a neurotypical person said “what if there was a special chair for rocking back and forth in”
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I hope it's okay that I took a screenshot, cause I felt that this deserved it's own post.
It's a good question, and as someone with a needle phobia myself it's one I have some experience with and feel I can speak on.
It's going to sound stupid, but it's this:
First, keep facing your fear. I personally elected to start donating blood, which sucked ass, but helped me get used to the feeling of having a needle in in safe environment, and celebrating the small victory every time I finished was a good motivator to keep going back.
What I did then was focus on what my body was doing. Was I breathing fast? Tensing up? Sweating? Going cold? Was I shaking? Where? Was it better to fidget, or hold still? Did closing my eyes help? Plugging my ears? I got familiar with my own physical reactions so I could start to separate them from my mental reactions.
Now when I experience a panic response, I'm not just objectively aware that my body is doing it's own thing- I genuinely feel that my body is acting on it's own. I'm stressed, but not SCARED, because my brain doesn't just know that it's safe- it FEELS safe. I'm emotionally strung out and on edge, but I'm not totally losing myself anymore. I can have a conversation while it's happening.
Now, sometimes I can see someone use a syringe for small procedures without flinching and closing off. Not often, but it's miles ahead of where I used to be. I can hold an epipen. I can use safety gear to dispose of abandoned needles outside my work. I don't think I could give myself an injection if I needed to, because I know I still lock up, but the idea of someone else doing one on me isn't viscerally repellant.
So... not cured here yet, but better.
TLDR: Baby steps, keep trying, pay attention to your body, celebrate successes.
IMPORTANT NOTE: Taking steps to confront a phobia has to be a choice. Forcing someone else to confront their phobia when they ARE NOT READY, WILLING, OR PREPARED is incredibly distressing and can make things way worse. And with how completely fucking miserable and exhausting a panic response feels, choosing not to "just confront it" is a totally valid and understandable choice. Like choosing not to run a 100 mile marathon barefoot. If you find yourself tempted to trick or pressure someone into amateur exposure therapy, don't. I'll fucking find you
Again, this is just what's been working for me, but if you wanna try it, I wish you luck! ♡
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hello !!! friendly reminder that u are loved !!!!! ur dogs love u !!! ur cats love u !!!! ur pets luv u !!!! ur plants luv u !!! i luv u !!!
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self care checklist
if you do just one of these things, you win
🔲 drink water or refill a water bottle
🔲 make a snack
🔲 do any exercise you're comfortable with
🔲 do some stretches
🔲 shower
🔲 watch a comforting video
🔲 clean your room or tidy up any space you spend time
🔲 do laundry
🔲 meditate, or take a few deep breaths
you do not have to do everything on this list, please just aim to finish one of these. self care and maintenance doesn't have to be done all at once, it can get very overwhelming that way
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