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damn people rly hate type 2 diabetics don't they

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anyone else wish they would get roped into a freaky friday body swap situation just for the hope that the other person will go "oh jesus fuck how do you live like this" and instantly validate your feelings of being Strange and Built Wrong.

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honestly fucking fascinating that people will pretty universally understand that thin people can be naturally predisposed to thinness regardless of what they eat or their activity level, but that so many of the same people cannot possibly fathom that fat people could have similar dispositions or that there could be any factors more complex than a "lack of self control."

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people with visible differences are accused of being liars too

there is no disabled person who escapes being accused of lying

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the assisted dying debate is so crazy

because i do fundamentally believe everyone should have the right to die when they want.

BUT if they legalise assisted suicide in the UK right now i don't trust our ableist fucking government to not just start coercing disabled people into suicide to save money. they already won't give them enough money to live.

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the assisted dying debate is so crazy

because i do fundamentally believe everyone should have the right to die when they want.

BUT if they legalise assisted suicide in the UK right now i don't trust our ableist fucking government to not just start coercing disabled people into suicide to save money. they already won't give them enough money to live.

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I HATE THE KETO DIET

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hello physically disabled person reading this. it is not your fault that your medical supplies are made from a lot of single use plastic and you can continue using them guilt free. your health comes first. thank you for existing.

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just rambling a lot of thoughts I've been having

I consider myself physically disabled because I am, physically disabled. I am always fatigued and my body is a prison etc. narcoleptics get it

But I don't really call myself cripplepunk or cpunk because that... really doesn't describe my experiences and I don't need mobility aids. like I could walk around a theme park if I wanted to, but the experience isn't going to be good. it would make me extremely sick and bedridden honestly lol. but I still have the physical capability of "doing" it. Capability of walking around my neighborhood. Etc

But there's a lot to learn from cripplepunk voices about the needs of other disabled people and of myself, like those with severe physical disabilities. cpunk posts and voices feel like some of my closest allies as a neurologically disabled person. more so than able-bodied ppl w mental illnesses (which I also have ftr) because.... It's my actual brain and nervous system... which is funny because some of them call themselves neuropunk. as if neurological conditions aren't separate from neurodivergance....

this got long so here's a cut

So, I have narcolepsy type 2, amongst other things

I am physically incapable of proper sleep and I will never be able to get constant restorative sleep. I am exhausted and dizzy and have horrible brain fog and memory issues, and none of those things are mental illness related. Neurological sleep disorders are not mental illnesses, they are disorders in brain function. Do you know how important proper sleep is to your health? imagine that being broken forever.

It works together with mental illness and ADHD- everything works together to make each day horrible. it's so much worse bc of mental illness and bc of adhd and autism.

but those are not neurological disorders (tho the latter are neurodevelopmental.) those are not something wrong with my brain- not just my head, my brain functions, my nervous system. calling mental illnesses physical disabilities because mind body dualism or whatever etc etc is just so....

honestly, I half find it offensive to neurologically disabled people who have physical issues with our brains. maybe that's dramatic. but we are not the same.

idk I'm just rambling now, not trying to make some life changing post, but. it's been so important to just lurk and read about experiences. I think a lot of ppl on the narcolepsy/IH spectrum often find themselves wishing they had something more "physical" and "visible" going on, but that doesn't mean being seen and acknowledged, it means being faced with all new kinds of ableism that's really important for you to learn about. and realize what you really want is to just be listened to and believed.

But do you think visibly disabled ppl are listened to? Are YOU supporting your more vulnerable siblings? Because I'm pretty sure they're just dehumanized and removed from society. I've already managed that second one, and honestly, I think a lot of ppl who seem ignorant actually know full well how serious not being able to get restorative sleep is, they just don't fucking care. if I "wanted to," I could work an honest life (where? fuck if I know). But if I had any physical, visible proof that I can't work?

well, I should probably just die then. They'd just want me gone. that's what they'll want of you. that's what they want visibly physically disabled people to do.

none of us are acceptable. we are all failures for being unable to feed the capitalism machine and be "proper" members of society. but many of us who can't participate at all have... nothing.

if you want to actually fight for disabled people, learn and understand the structures of ableism in yhe first place. they want you working or dead, and "worse" disability just means your life is worth even less. you will not be free until people's value is no longer reduced to what they "can" or "Can't" do. you won't be free until the happiness of someone completely incapable of surviving without around the clock aid is considered crucial.

I am so tired of seeing people (rightfully) call out "some people can xyz still" and then seeing other people go "I just need more help to do it" and you know so many of them mean "some disabled and/or mentally ill and/or autistic people just need support to be a good part of society."

what if they can't be. what if they won't be.

And I'm tired of seeing others with, like, chronic fatigue (a serious condition!) wishing they had no arms so nobody can tell them they have to lift something. (Hyperbolic example.) They say they "Can't do something, but nobody believes them unless they look the part"

We all DO deserve help and guidance and support. To use mobility aids if we need!

Being shamed for using aids to do something is still not the same as being incapable of doing something without mobility aids. But those problems have the same core idea: disabled people shouldn't exist in society. That problem is Not "people need to look a certain way to deserve disability support"

(unless the subject is about other visible things like racism and fatphobia (and sometimes transphobia) those have an enormous impact on how you're perceived as a disabled person. it's more like... those things make you more vulnerable because you're already held to a higher standard of what you need to do to be an "acceptable" member of society.)

I can truly understand the feeling, but you need to analyze it instead of direct it towards other disabled people.

Activism should never start and end at someone understanding how YOUR disability works and caring about doing things with you and helping you do things. it should start with people being inherently valuable regardless of what they can't do. like the most vulnerable members of your community.

dunno, I'm not an activist and I'm just hammering all this out at once and I'm not fully clear on all the right language. but you get what I mean? it's a balance, finding your proper place outside of able bodied spaces but not intruding on others. but its one worth understanding for the sake of others And yourself.

also for the record, this is a very usamerican post. to my understanding, some issues are even worse in other countries and needing mobility aids and support despite being ambulatory is a far worse problem there. I still need to learn more about disability in countries outside the USA, Canada, and UK. It can be physically unsafe to exist in society with any sort of disability. Just, there's lots to learn.

There is also still a huge difference between a white nonambulatory wheelchair user and an ambulatory mobility aid user of color... I'm just trying to repeat what I've learned here, but what's defined as disabling for one person may be unfortunately "common" in another culture due to outside, influencing factors. and harder to treat or get help for. invisibly disabled Black people get killed from medical neglect at much higher frequencies than invisibly AND visibly disabled white people. it's almost like the way people view bodies is different depending on race. HEALTHY Black and brown POC are killed through medical malpractice constantly. We still have "oppositional defiance disorder" instead of diagnosing Black children with Autism and ADHD.

It's all the same source; capitalism is a tool of white supremacy, after all- you might fail step one of being an "acceptable" part of society before your first stomachache. It's so important to listen to others and expand your worldview if you want to see meaningful change, otherwise you're just shouldering other people with your issues and devaluing theirs by wishing you lived their life when you don't bother to understand their suffering.

idk man. I don't want to be killed and idk how to tag this rn but here it is

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Just a reminder: If you have an eating disorder and use fat positive posts and photos of fat people to throw up to, you are the scum of the earth. There is not a single goddamn mental disorder in this universe that makes your actions acceptable, and I say this as somebody with mental disorders, including eating disorders. Get the fuck away from fat people. When you seek out an innocent oppressed group of people for you to abuse for the sake of feeding your disorder, you are in the wrong. There is not a single excuse you can use to make what you're doing acceptable. Period. Thinspo scum are not welcome on this blog, nor on any other fat positive blog on the internet. You can look at content of fat people again when you stop doing so for the purpose of using us as your eating disorder porn. There are no words to adequately describe just how heinous, despicable, and evil thinspo scum are. When you go out of your way to find photos of fat people in ambulances to laugh at with your thinspo friends, you are truly an evil person and deserve your suffering. Hope this helps!

-Mod Worthy

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I must sleep. Sleep is the mind-healer. Sleep is the big-life that brings total ability to fucking do anything. I will face my bed. I will permit the blankie to pass over me and snores to pass through me. And when sleep has gone past I will turn the outer eye to greet the new morning. When the sleep has gone there will be everything. Energy and will to live will remain.

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hello physically disabled person reading this. it is not your fault that your medical supplies are made from a lot of single use plastic and you can continue using them guilt free. your health comes first. thank you for existing.

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it’s crazy how different you get treated in a mask but what really gets me is that when people ask why I’m masking, I’ve stopped saying I’m immunodeficient and started saying I have an immunodeficient family member at home. I am not exaggerating when I tell you this has 100% improved every single encounter I’ve had with anti-maskers. i’m not exaggerating in the slightest.

i used to tell people i’m immunodeficient and they’d ask invasive questions about my diagnosis, whether my parents kept my childhood overly sterile, whether I was vaccinated as a child (with the implication that it would have been bad if I were).

Now that I say I have an immunodeficient family member at home, people smile knowingly and say, “oh, well you do what you have to do,” and “my mom went through chemo. I remember how hard it was to do all the precautions” and “that’s so kind of you.”

if i tell someone i mask because i’m disabled, i’m assumed to be the weak link in our society, a burden to my family.

if i tell someone i mask to protect a disabled family member, i become the burdened, compassionate caretaker deserving of sympathy. how sad that i must limit myself to protect someone i love. how heroic that i choose to do so.

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"this thing is rare and only affects 1% of the population" dude that's 80 million people can you shut up

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Well this sure hit me like a ton of bricks

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i strongly believe that it's better to take aspirin of a known dosage than to take some willow bark with an unknown amount of active compound that could also just be sawdust from an unrelated tree. like that's just factually correct. medical science is real and the supplement industry is an unregulated nightmare of mostly scams. but. the thing is. if, in order to get aspirin, i had to schedule an appointment where i tell my doctor that my friend said i might have a headache (because i can't just say i have a headache without being treated like a googlemad hypochondriac). and then the doctor nodded and ordered a bunch of expensive tests that have very little to do with my head and a lot to do with the size of my ass. and the tests all came back fine so he shrugged and asked if my head hurt and when i said yes he prescribed me some aspirin while emphasizing he didn't know if it would help but i could give it a shot if i really wanted. and if i had to do that every time i wanted some aspirin. i would probably start eyeballing the willow bark. to be perfectly honest with you.