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Participate in Research

We are happy to support research that contributes to a greater understanding of the experience of living with chronic pain. This page is to present the opportunities that are available for people in pain to participate. Please let us know about your experiences if you are a participant in any of the studies that come this way.

Interviews for market research

Surveytalk medical, a specialised medical market research company are looking to speak with men and women in sydney living with Chronic Pain to get feedback on their experiences.

The study involves being interviewed by a senior medical researcher in a private one on one face to face interview for approximately 1 hour, as well as completing a short homework task to prepare you for the interview. The interview will cover circumstances around your diagnosis and treatment.

We are looking to speak to people living with specific types of pain and experiences with various medications as such we have some qualifying questions which we will need to ask you before we can invite you to participate in the face to face interview. As a thank you for your time and participation in the face to face interview you will be paid an honorarium of $150 to cover your expenses.

If you are interested in participating or have any questions regarding the study please contact the Surveytalk medical project team either via phone 02 9267 1555 or via email [email protected] .

All your responses will be treated in the strictest of confidence. Survey talk is a full member of the Australian Market and Social Research society (AMSRS) http://www.amsrs.com.au/ and adhere to the society's professional code of conduct. We are ISO20252 accredited.

This research is to find out more about pain from people who are currently taking a medicine called LYRICA. It will involve face to face discussions at a place convenient to you.The aim of the research is to gain a better understanding of what people living with pain experience during the course of their illness. The research will involve speaking to some people living with Neuropathic Pain during May. They are looking to speak to a range of people so they can gather a broad range of opinions and perspectives about your pain experiences. By exploring issues such as experiences in taking your medicine, the impact of your condition on your life and the relationship you have with your doctor, they will be able to identify opportunities to help other people living with pain. So your opinion is very important to us and may help others in the future! A pharmaceutical company will be working with long-term research partner EKAS, who will be looking after the setting up times for the interviews. EKAS are also a trusted research company in Australia and have considerable experience in this area. If you decide that you would like to take part in this research they would ask you to please contact EKAS on 02 8415 7536 so they can arrange an interview time that is convenient to you. None of the interviews will last longer than an hour. In appreciation for your participation we will offer a small monetary payment of $100 as an acknowledgement of the time taken to participate in the research. There are some criteria needed to qualify for entry into the research. So when you contact EKAS they will ask you some questions to ensure that they have the right people for the study. The company undertaking the research adheres to strict guidelines set out by the Market Research Society, which assures complete confidentiality and privacy of information. They are also subject to the Privacy Act 1988 that protects the privacy of your personal information. The pharmaceutical company takes this very seriously so you can rest assured that your name will not be used in the research findings. The de-identified data collected will only be used to identify opportunities that will help and support other people living with pain. If you are interested in taking part in the research project they would love to hear from you! To set up a time for the interview or answer any of your questions you may have please contact EKAS on 02 8415 7536. Thank you for your interest in this project.

The emotional aspects of pain

Have you had intermittent or consistent pain or discomfort for the past three months? If so, would you like to participate in a study looking at emotional aspects of pain? If you answered yes to both these questions then you will be helping me, Carmel Wright, a 4th year honours student in Psychology at UNE with my thesis. Participants need to be 18 years of age and all participants remain anonymous. You are free to withdraw from the study at any time without penalty.

Please use the link below to access the study in which you will be asked a few demographic questions and then to complete 4 scales. It should only take approximately 30 minutes of your time, and your support will help with future pain research and education.

This project has been approved by the Human Research Ethics Committee of the University of New England (Approval No.HE12-037, valid to 14/03/2013).

http://unebcss.us2.qualtrics.com/SE/?SID=SV_41NGLxb391TdZhW

factors influencing chronic pain

Are you living with chronic pain? Has your pain persisted for more than 3 months? If so, please tell us about your experience.

Our study explores how psychosocial factors, such as stigma, influence the experience of people living with chronic pain.

Help us to improve research and practice for people living with persistent pain by completing a brief survey. We are interested in hearing from people with a wide variety of conditions ranging from chronic back pain, to arthritis, and fibromyalgia. Please contact Olivia Waugh at the Australian National University to take part or be provided with more information.

E: [email protected]

P: 02 6125 4100

INTERNET, SOCIAL MEDIA AND APP USE BY PEOPLE WITH CHRONIC PAIN - UPDATE

What is it about?

Researchers from The University of Queensland and Chronic Pain Australia are working together to better understand how Information and Communication Technology (ICT) can improve the lives of people living with chronic pain. ICT includes things like websites, Facebook, Twitter and Smartphone apps. The first step for us was to find out how people with pain are using ICT. We asked people to do an online survey that was open for five weeks in the late 2011. A total of 177 people completed the survey. We realise that it was a long survey, and would like to thank all those who participated.

Summary of early findings

The UQ researchers are still analysing the survey results. However, here are a few of the early findings.

1. The internet is an important way of obtaining information about chronic pain

Most (93%) of the people who did the survey said websites were one of the main ways they got information about chronic pain. This compares to 57% who said they got information from their doctor and 46% who said they got information from books.

Most people said they used websites to read information about chronic pain in general, to find information about treatments, and to find information about pain medications. Most (77%) thought websites about chronic pain were helpful, although 22% were not sure. 88% of people would like to see more people using websites with regards to chronic pain.

2. Facebook was the most used ‘social media platform’

By ‘social media’ we mean interactive online sites like Facebook, Twitter, YouTube and blogs. The most commonly used type of social media was Facebook – 69% of the people who did the survey used Facebook, followed by YouTube (34%) and Google+ (30%).

People used social media differently to websites, probably because social media allows them to share information and communicate with others. Of the 154 people who said they used social media, 47% said they used it to find information about chronic pain, pain medications and/or treatments and 71% said they use social media to find out about other s’ experiences of chronic pain. People also used social media to share information about chronic pain (46%), to meet others living with chronic pain (42%), and to raise awareness about chronic pain (40%).

Less people found social media helpful, when compared to what people said about websites – 61% of those who used social media said they found it helpful, with 35% undecided.

3. Less people use Smartphone or tablet apps

Ninety-three people (52%) who did the survey had either a Smartphone or a tablet, such as an iPad. 23% of these people used a chronic pain app on their phone or tablet. Of those who did use this kind of app, twelve used the app on a weekly basis, which is only 1% of all the people who did the survey. This is compared to 95% of people who used websites on a weekly basis and 74% who used social media on a weekly basis. This suggests that, at the moment at least, apps are not used by many people with chronic pain. However, this may change as apps become better known and more people own Smartphones or tablets.

These are just some of the findings that are coming out of the study. We would like to thank everybody who completed the survey. If you would like a more detailed report of the study findings when this becomes available, please email Professor Jenny Strong at The University of Queensland: [email protected].

Stay tuned for the next stage of this exciting research collaboration with The University of Queensland researchers! The next stages include a survey with health care professionals regarding how they use social media in their work with people with pain, and a broader community survey of ICT use by people with chronic pain.

Participants required to test a new online pain program

Researchers from Macquarie University have developed a new internet-based education course (the Pain Course) designed to provide good information and practical skills for managing chronic pain, anxiety and depression. They have developed the course because Chronic Pain is common, but many people do not have access to good information about how to manage chronic pain and their emotional wellbeing. The aim of their research is to create a course that is practical, helpful, widely accessible and freely available to help people with Chronic Pain. The course is supported with funding from the Motor Accidents Authority and consists of 5 online lessons available over 8 weeks. Simple summaries and tasks to help you learn the material will also be provided and a Clinical Psychologist will contact you each week to answer your questions, guide you through the course and monitor your progress. There are also questionnaires at different times through the course to find out about your symptoms and get your feedback about the course. The researchers are now recruiting participants for the Pain Course. To participate in the course you must have chronic pain, but will also be experiencing symptoms of anxiety or low mood, be at least 18 years of age and living in Australia. To find out more about the course please visit www.ecentreclinic.org and contact Dr Blake Dear at the [email protected].

We will be working with our long-term research partner EKAS, who will be looking after the setting up times for the interviews. EKAS are also a trusted research company in Australia and have considerable experience in this area.

If you decide that you would like to take part in this research we would ask you to please contact EKAS on 02 8415 7536 so we can arrange an interview time that is convenient to you. None of the interviews will last longer than an hour.

In appreciation for your participation we will offer a small monetary payment of $100 as an acknowledgement of the time taken to participate in the research.

There are some criteria needed to qualify for entry into the research. So when you contact EKAS they will ask you some questions to ensure that we have the right people for the study.

The company undertaking the research adheres to strict guidelines set out by the Market Research Society, which assures complete confidentiality and privacy of information. We are also subject to the Privacy Act 1988 that protects the privacy of your personal information. We take this very seriously so you can rest assured that your name will not be used in the research findings. The de-identified data collected will only be used to identify opportunities that will help and support other people living with pain.

If you are interested in taking part in the research project we would love to hear from you! To set up a time for the interview or answer any of your questions you may have please contact EKAS on 02 8415 7536.

We look forward to speaking to you and thank you for your interest in this project!

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