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A punk stops during a gay pride parade to allow a mesmerized child to touch his jacket spikes.

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A moment we’ll never remember, a night we’ll never forget

Bruna Amorim, from SceneTv Press told us her “A day to forget story”

You know what they say about ‘first times’... You’ll never forget, no matter how hard you try

That’s what happened the first time I got drunk. Me and my 12 year old friends arrived at my other friend’s house in the mid day. We didn’t have dinner that day or either lunch. Yes, I know. We shouldn’t do that.

My friend’s pothead brother boght us 7 bottles of beer, vodka and stuff. He made a deal with us: He would have a party on their house and we would not tell anything to their parents (they were traveling, of course) but he would buy us alcohol. Seemed Smart back then.

At nine o clock we decided to go to our friend’s dead grandmother penthouse apartment, which had no protection on the balcony and a huge, really huge pool.

Everything was fine, everyone was drunk and excited until the host started to throw up on the floor. We got desperate while trying to help her, she was crying and couldn’t get up. Then, another girl throwed up. We put the two of them on the shower as they were stinky and tried to feed them, but they kept vomiting.

We called the host’s brother to help. He said this exact words: Never buying you guys beverages anymore

So ok, we were on our own now. We couldn’t have told her mom because she would have killed her and she was traveling, so it would have been awful. One of the girls started yelling at the host, saying that she was so irresponsible and stuff (while she kept vomiting). Everything was a mess.

We needed to clean that shit, but the more vomit we cleaned, more girls throwed up. My best friend throw up in the pool, actually.

After that, i just remember laying in my bed with a terrible headache but laughing at the fact that my night was a disaster. Sometimes, we need to laugh at our nightmares.

Bruna Amorim

SceneTv

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Burcaw’s love life

Shane is now writing a book called “Strangers assume my girlfriend is my nurse” which is about bad reactions he gets everytime he’s with his girlfriend, Hannah.

‘Once, a person blankly asked if she was "the one who takes care of him." We've gotten used to this bizarre, recurring question, and often find ways to poke fun at their ignorance.

"He's my dad," Hannah will answer with deadpan perfection.

“I just pay her to be my friend," I will say.’

In the thoroughly heartwarming piece, Burcaw said he didn't think he was worthy of romantic affection for much of his young life. "I worried that my physical limitations would prevent girls from wanting to date me," he wrote. "I will not be able to pick her up in my car, I can't give hugs or hold hands very well, and we will be limited in the activities we can do for dates."

But at college, he "met some spectacular people who helped me shake the notion that love was only for the physically abled".

He added: "Once I realised that there are girls out there who are more than happy to 'make it work', the fear of being unloved for all eternity drifted away like a funny joke of the past."

SceneTv

Bruna Amorim

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Best quotes: Laughing At my nightmare

Enjoy Scenetv selection of the greatest quotes on this amazing book!

“I was lucky compared to some people” (page 48)

Shane maintains positivity even in the hardest times, like he was in a hospital but could still see that it could be worse.

“Positivity and happiness are always possible.” (page 42)

This quote portraits how Shane always focuses on the positive things. It shows how with every bad thing that comes along eventually something good will come out of it.

“I desperately wanted to show the world that I was normal despite my disability. “( page 83)

He felt so weird and different because of his disability as it was a memorable part of him, but he didn’t let it stop him from being happy.

"Getting people to see past my wheelchair was one of my biggest concerns." (page 80)

It shows a big fear disabled people have to put up with every time they enter in new social circles. Making new friends may already be as hard as it is for some people, but for the disabled the difficulty is turned up to eleven.

“My sense of humor allowed her to see past my wheelchair” (page 42)

This quote tells that even though Shane is in a wheelchair and has a disease, he is still a normal human being. It also shows that even though it is hard to make friends with a wheelchair, he still tried and succeeded

“You’re going to have good days and bad days,and its okay to be afraid” (page 229).

This quote pretty much explains what life is like, about how its not going to be perfect and how you shouldn’t expect it to be.However, there are also highs, and you shouldn’t be afraid of the lows because you can always thrive after those.

“i felt like the most horrible human to ever not walk the earth” (page 234)

In this quote he uses a pun with the expression ever walk the earth. He was breaking up with a girl and felt bad about it, but this is something that happens to all humans.

Scenetv

Bruna Amorim

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Crying At My Daydream

Scene tv interviewed Jul (Jole Julien) from Jul and the Vultures and we’d like to promote their new album

Crying At my Daydream - Jul and the vultures

Track1: Too loud

Track2: Darkest Times

Track3: Teen idle

Track4: Life goes on

Track5: The quiet

Track6: Crying At my daydream

Track7: Sound of your heart

Track8: I won’t listen

Track9: Face in the crowd (the dance)

Track10: I feel like i’m drowning

Track11: Space Odissey

Bonus Track: All these years

Crying At my daydream

I was six years old all i wanted was the music

and my parents were doing everything they could

to buy me a bass or leave our place

working hard everyday of the week

while i sat up in my bedroom writing poetry

Remember when i was ten

And i was laying in my bad

dreaming of one day play in a band like radiohead

I turned eleven and sang the blues

Jul, no more music for you

Stopped playing bass started playing dead

My life was a mess and i was depressed

Family tried to help me but i didn’t want to

Until i finally found a book that told me what to do

(chorus)

At eighteen

I stopped crying at my own daydream

I stopped crying at my own daydream

I was listening to something for the first time

At eighteen 2x

Space Odissey

I finally reached the moon

Somehow there are no footprints on it

Only wheel marks on the ground

I look around

We’re spinning around earth but still so far away

I can see it so clear

Space starts to get dark

and suddenly i can’t see earth and stars

I am alone. So freaking alone

I want to go back but i can’t

I’m stuck. So freaking stuck

The moon was all i ever wanted

I stare at the ground again; Still no footprints; No wheel marks now

- go back to sleep, baby. You’ll wake the kids up!

I’m in my room now. The floor is colder but i’ll never know.

Fly away with me

Firefly

Fly away with me

Goodbye

I feel like i’m drowning

A stronger force tries to hold me down

I´m fighting against myself and i guess i´m failing

I can´t speak

A stronger force tries to hold me down

I´m fighting against the way it goes and i might be falling

I can't walk

A stronger force tries to hold me down

I´m fighting against the world and i'm sure i'm failing

I can't breath

A stronger force succeedes to hold me down and bury me

I'm finally six feet under.

Where's my body? Where´s my mind? I wonder

The dance (Another face in the crowd)

(...)

Lights were low

A generic rock was playing in the back of the room; somewhat it was almost unable to hear it

We were dancing in a socially unacceptable way

He was soft as a knife

But his lips tasted like plastic and cigarettes

From that day, i knew i was in trouble

(chorus)

You were the dance

I was the music

He was just another face in the crowd 3x

Disclaimer 2: This album does not exist at all. This is all Bruna Amorim’s invention

Bruna Amorim

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6 reasons to love Shane Burcaw

He’s super accessible

Shane is not the type of celebrity which don’t give a damn about his fans. He answer fast all emails and you can even schedule a facetime with him! Amazing!

2. He spreads love on the internet

Shane started a project called “what made you smile this week?” Which makes you focus on the good small things, reflect and become more grateful as a person

“Hannah and I discovered that the grocery store near our house makes the absolute best mashed potatoes with gravy. That sounds super lame, I know, but it’s these tiny gems of happiness that dot daily life that make me smile the most.” BURCAW, Shane. Monday

3. His life perspective is enviable

The way Burcaw deals with his problems is unbelievable. He is the most optimistic person in he world!

4. Besides being a good writer, Shane is a great humorist

Shane can turn anything into humor. Even his nightmares. Literally

5. Shane is a gemini

He was born on 28th may. Seriously, who doesn’t love geminis?

6. He cares about others

His hope is to shed light on his battle and help others with MD. Shane started his own non-profit, No More Nightmares. He hopes to raise $40,000 this year to be able to sponsor others with "vital equipment they need to live awesome lives."

His non-profit is already working! This is 15-year-old Shelby from Pennsylvania (pictured above). She has congenital muscular dystrophy, and applied for a grant for a specialized bed. Shelby recently lost her ability to adjust herself in bed, so Shane's non-profit found a bed that can help her. According to Shane, she has now regained her independence and comfort.

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Interview with Jul, from “Jul And The Vultures”

The fantastic story of the 1000.00 record seller deaf bassist

“Persistent. Smart. Determined.”

That’s how Jul’s bandmates would describe her. The 27 year old lady from south california won recently 2 grammies with her most recent album: “Crying at my daydream”

Jole Julien, also known as Jul, says she’s always been a music addict. “I would listen to Appetite for destruction from Guns and Roses literally everyday” She self taught herself the guitar and later, the bass. At 11 years old, she had a hearing loss total because of a cronic infection on her ear and since that day, her biggest passion was threatened: Music.

“My life went out of the tracks. Suddenly, i was so unmotivated without the sound. I wanted to quit. I was almost throwing away my cd colection when i found out things should be like that”

Julien started to write about the angst she felt without the sound. All her struggles, thoughts, prayers, screams, turned into music that no one could hear.

With her friends help, she is now member of a Grammy winner- world record seller band.

Whole Interview:

Interviewer: Hey Jul! We from SceneTv are so excited with your recent album! “Crying at my daydream” is a hit, can you tell us what are the main themes in your album?

Jul: Hey! “Crying at my daydream” is basically about vulnerability, learning how to deal with my disability without freaking out, my relationship with my family and friends and my angsts.

Interviewer: Interesting. So, you’re a musician. And deaf. How you deal with that? I mean, the song-writing process must be harder.

Jul: Yes, it is. Fortunately my band helps me a lot, like when i need to check the tuning of my bass and stuff... About song writing, I write the lyrics and insert chords. The melody is up to Bradley, our guitarrist.

Interviewer: Cool. What would you say is the worst part of your condition?

Jul: I think it would probably be not listening to my own songs at all or having people come to our concerts and tell me i’m very good at the bass just because they take pity on me. Honestly, i never wanted that. If you enjoy music, you’ll like our songs. Simple.

Interviewer: Right... What would you say are your biggest inspirations in life?

Jul: Of course my bandmates as they are always by my side, specially Marissa, our lead singer. She learned sign language just to help me, which i appreciate very much. When you are somehow disabled you tend to depend on other people and she has helped me not only in daily life situations but on my career and emotional support. My boyfriend, Jones, also inspires me. Oh. And my favorite writer.

Interviewer: Who’s your favorite writer, Jul?

Jul: Shane Burcaw. I have to admit it, i’m no book addict or anything but i read all of his 2 books in one night. He made me see the world in other eyes and somehow i relate to him very much. One day, i was so angry that the new Arctic Monkeys album had launched and i would never listen to it and then i opened chapter 9 from laughing at my nightmare, my favorite book of him. In this chapter Shane is still talking about how his childhood was contradictory normal and relatable. Starting middle school Shane began having severe problems with his spine at a point that he had to make a surgery, which is not something easy to understand when you are seven years old. As it was a pretty dangerous and serious surgery he had to stay in the hospital for 3 weeks. Once, he was driving his wheelchair and saw a boy who was very sick with no family or balloons. He decided to gift him with some balloons so it could maybe make him feel better.

This passage made me rethink my life: I had all the support in the world and was still complaning, so i decided to be more like Shane.

interviewer: So here comes the album inspiration... Interesting! We love Shane too. Tell us more about it. Why do you relate to Shane that much?

Jul: He has an awful disability which is way worse than mine but the way he reacts is everything. He also depends a lot on people so i think that our relationships are kind of similar. Like becca, his cousin which he had a love hate relationship, they were always joking with each other. Me and my brother Marcus are the same.

Interviewer: Hum ok... So you said his disability is worse than yours. Do you think there’s a hierarchy of problems? Like some problems are worse than others?

Jul: I don’t, but sma is a very severe desease. The most important point is the way you deal with that. For example: You can have a pimple and cry all day or have SMA and keep laughing.

When i discovered i was deaf, it felt like dying: Whoever tried to help me, nothing would change and i would just wish i was dead. I felt like Gregor Samsa in metamorphosis when he became a giant bug. For me, i was useless.

But then, when i read “laughing at my nightmare” my perspective totally changed.

interviewer: Ok, you just compared metamorphosis to your condition! You said you disliked books!

Jul: Hahaha but i really don’t read a lot of them! Seriously, not at all!

Interviewer: If you say so... Let’s talk about laughing at my nightmare, then. What was your favorite chapter on the book?

Jul: I have to say chapter 15, when Shane went to a summer camp for kids with disabilities. His biggest fear was being away from his parent for one week, as he was never on that situation.

Burcaw disliked the idea of being around people in wheelchairs, because he felt further away from being a normal person.

Even though there were kids his age, he felt like they were much more immature than him, which made him feel distant. I liked this chapter so much because i’ve gone to deaf kids camps and i know how much it sucks. You feel like a total outsider.

Interviewer: I love this one too, but i think i prefer the one he gets drunk at becca’s house hahaha so funny... Okay, going back to music: What’s your favorite lyric from your album?

Jul: I think it may be “The silence is my favorite sound” in the pre-chorus of the fourth track called “life goes on” which was the last one i wrote and it’s basically about accepting things as they are...

Interviewer: I love this one! Thank you so much for being here, Jul!

Jul: My pleasure!

Disclaimer: Jul is not real and so is this interview. This was all invented by Bruna Amorim

Bruna Amorim

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Laughing at my nightmare

Shane Burcaw shows his rare point of view in this inspirational biography

Burcaw sets the tone of his candid memoir with a memorable introduction: the view of his brother Andrew’s ankle hair as Andrew helps him to urinate. Burcaw has spinal muscular atrophy, a progressive disease affecting his whole body. Fortunately, he’s also surrounded by supportive family and friends. He’s parlayed his experiences—from a broken femur and feeding tubes to romance—into a popular Tumblr also called Laughing at My Nightmare, leading him to start a nonprofit. With snark, swagger and self-deprecation, Burcaw explains from the beginning (“I was the laziest fetus you’d ever meet”) how SMA has shaped his mission. Expository vignettes jump from childhood to college and back to high school, detailing how his mischievous nature and sense of humor have set him apart from other students with disabilities and eased his insecurities. Teens with and without disabilities should be able to relate to Burcaw’s obsession with appearing as typical as possible, though his judgment of other students with disabilities—disclaimers notwithstanding—gets old. Boys in particular, perhaps, will appreciate his unflinching discussion of sex and disability, a rarely explored question. When things get too heavy, quips in speech bubbles lighten the mood. With reflections camouflaged in wisecracks, Burcaw demonstrates that a little humor goes a long way. It’s a easy reading book and very reflective which you can relate to the author a lot. The major themes, besides of course, disabilities are heath care, coming of age, growing pains, shane trying to overcome his condition and his relationship with family and friends.

At the heart of the memoir is Burcaw’s desperate wish to be perceived as “normal” – as a teenager just like all other teenagers. He is focused on appearing as cool as possible, and highlights his mischievous sense of fun, his friendships, the ways in which he’s been able to participate in sports, his active and popular social media presence through his Laughing at My Nightmare Tumblr, and his romantic prospects.

But many readers point out that in this quest to be seen as typical and not out of the ordinary, Burcaw ends up distancing himself from other disabled teens to such a degree that he runs the risk of alienating his readers. For Burcaw, his sense of humor about himself really sets him apart from other students with disabilities, whom he often portrays judgmentally and in stereotypical ways. The book includes sections that imply that people with mental, emotional, or social disabilities are deeply inferior to him and simply not worth his time. Burcaw dismisses them as tantrum-prone, drooling, and disgusting, which is a surprise coming from someone whose advocacy focuses on tolerance and a rejection of the kind of marginalization that he himself has been a victim of. For example, a section talking about Burcaw’s need to take the adapted PE class for special needs students because of his wheelchair, claims that the mentally disabled people he saw there “consistently smelled like they had atomic bowel movements simmering in their pants, and all they ever talked about was Disney movies.” Similarly, a passage describing the other riders of a special needs bus mocks their symptomatic behaviors.

It’s clear from Burcaw’s descriptions that he deeply relies on his family for most of his daily functioning (he can’t walk, hold his head up, chew, or talk as he has lost control of the muscles that control these actions) – and that their support and encouragement has helped him tremendously with the way that he has adapted to his disability psychologically. But this memoir tends to leave his parents and brother most out, with only a few references to them peppered in here and there.

Instead, what is most memorable about Burcaw’s story is his advice for how he approaches life. In order to deal with problems that arise, he uses what he calls the “will it matter in ten years” rule. When thinking about breaking up a relationship, or handling a broken bone, the important question is – will this situation matter in ten years’ time? Since most problems won’t, there’s no reason to worry about them any more than strictly necessary. For those that will matter in ten years, there is a follow-up question: can he do anything about the problem? For things like his muscles slowly losing function, or the death of a loved one, the answer is clearly no – so again, it’s better to just let worries about these problems go. This way, the only things he focuses on and works to overcome are real problems with realistically achievable solutions.

The memoir ends on a romantic note, as Burcaw describes meeting and starting a relationship with his girlfriend. He doesn’t shy away from discussions of sexuality and disability, a topic that rarely gets discussed in detail. At the same time, he mentions that part of growing close to his girlfriend has included the need to teach her how to take physical care of him while they are together – for example, before they could go out on dates, she needed to know how to prop up his head if he lost the ability to hold it up. As Burcaw puts it, although they can’t do every possible thing when they go out and mountain climbing isn’t really on the menu, he loves being able to make her laugh, and loves that she is a girl who is willing to “make it work.”

Ok, but what’s SMA?

Spinal muscular atrophy (SMA) is a genetic condition that causes muscle weakness and atrophy (when muscles get smaller).

SMA can affect a child's ability to crawl, walk, sit up, and control head movements. Severe SMA can damage the muscles used for breathing and swallowing.

SceneTv evaluation on the book: 10/10

Bruna Amorim

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Meet Zion

Watch netflix new 11 minutes documentary about this warrior named Zion and his condition!

A young boy, abandoned by his family, struggles to find his place in the world and struggles just to find a place to live. The boy, who has only known rejection, lashes out because he doesn’t know what it feels like to be loved, to be valued. Zion is about a boy who wants—and deserves—to be accepted for who he is. But that can’t happen until he accepts himself. Eventually, that boy, Zion Clark, finds a family, finds a purpose, and, finally, finds himself. Zion Clark was born without legs. His mother abandoned him. He bounced around foster homes and suffered through neglect and abuse. Zion is remarkably clear-eyed for someone who lives in a way most people can never imagine.

“I’m not gonna lie, I was a bad kid,” he said as he reflected on his upbringing. Eventually things even out, and Zion gets adopted and becomes heavily involved in high school wrestling, almost winning a state championship in his senior year. The images of Zion walking, wrestling, and training are immersive and breathtaking. Like all inspirational stories, Zion is laced with sadness. By choosing a short runtime, director Floyd Russ runs the risk of bludgeoning the audience with emotional haymakers. But, each one lands. By presenting Zion’s story in such a compact way, Russ provokes plenty of reaction. Russ also employs a heavily stylized visual approach that multiplies the power of the story. Zion looks like some of the best Nike commercials, and that is an absolute compliment.

SceneTv Evaluation: 9/10

Bruna Amorim

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Best Movies About Disabilities

SceneTv chose top 7 best movies to start this week’s theme: Disabilities!

1. Million Dollar Baby

Underdog success story Maggie Fitzgerald suffers a broken neck at the peak of her boxing career. Bedridden and paralyzed, she begs her trainer to end her life. Although primarily a film about hard work, determination, and success, Million Dollar Baby is a film that dares to ask hard-hitting questions about quality of life, disability, and euthanasia. This one won “best movie” “best director” and “best actor” on oscar. Wow

SceneTv evaluation of the movie: 7/10

2. I Am Sam

Sam is an intellectually disabled father who loves two things: The Beatles and his daughter Lucy. When authorities begin to question Sam’s capacity to raise a child, he finds himself embroiled in a vicious and confusing custody battle. I Am Sam is an emotional tale of disability, family, courage, and love.

SceneTv evaluation of the movie: 9/10

3. The fundamentals of caring

The Fundamentals of caring is a poignant and, at times, darkly comedic road trip movie. Ben is the newly hired and wholly underqualified carer of disabled teen, Trevor, who lacks the basic life experience of most kids his age. Together, they embark on an adventure that defies the limits of Trevor’s mobility and allows him a glimpse into the world outside his home. The film explores the limits placed on people with disabilities by society and the healing power of finally having a friend. If you love drama or Selena Gomez, this one is for you.

SceneTv evaluation of the movie: 7/10

4. Elephant Man

The Elephant Man is a shocking revelation of the treatment of a severely disfigured twenty-one-year-old man in 19th century London. The film is a raw and honest biopic of the life of Joseph Merrick, known as John on screen. Merrick’s saving grace is a forward-thinking doctor who discovers him at a freak show and introduces him to the concept of kindness, which is a very shocking and emotional scene to watch. Although the doctor believes him to be intellectually disabled when they meet, he soon discovers John is an intelligent and gentle man. This is a reminder of the cruelty that can be inflicted upon people with disabilities, countered by the story of a humble Merrick who only let their cruelty make him kind. The ending is thrilling.

SceneTv evaluation of the movie: 10/10

5. Soul Surfer

"Soul Surfer" is based on the true story of Bethany Hamilton, a champion surfer who in her early teens was attacked by a shark and lost almost all of her left arm. One month later, she was back on a surfboard, has since won several championships and is at age 21 a professional surfer. All of those are remarkable facts. My problem with "Soul Surfer" is that it makes it look too simple. Bethany has a loving family of professional surfers and a big, friendly dog. She lives in walking distance of the beach. She was and is a committed churchgoer and got great support from her spiritual leaders. She was an indomitable optimist with a fierce competitive spirit. "Soul Surfer" is a wholesome movie, intended as inspirational

SceneTv evaluation of the movie: 6/10

6. Me before you

“Me Before You,” adapted from the 2012 novel by Jojo Moyes, opens with successful businessman Will Traynor (Sam Claflin) getting struck by a motorcycle. Will rides a motorbike himself, jumps from cliffs and generally seeks out extremes, so the fact that he becomes a quadriplegic in a random accident and not as a byproduct of his adventurousness speaks to the film’s philosophy: Live fully, because you don’t know what might happen. Will’s mother hires Louisa Clark (a girl who needs money to help her family) to keep him company, and he immediately resents her presence. She’s color to his gray, and unsophisticated to his snobbery, but of course these qualities eventually begin to bring out the best in each of them. It sounds obvious, but “Me Before You” sidesteps becoming a retelling of “Beauty and the Beast” (a jerk stuck in a castle made better again by a pretty girl) by presenting the self-centeredness and immaturity of both characters and having Will change Lou as much as she changes him. The details of their lives are revealed with confident restraint instead of through painful monologues or voiceovers.

SceneTv evaluation of the movie: 9.9/10

7. The belier Family

Paula Belier speaks for her whole family. Both parents, Rodolphe and Gigi and brother Quentin are deaf, so 16-year-old Paula, who's not, must negotiate the hearing and speaking world for them. When she introduces herself, she always says in French, "Belier, comme un belier". What none of her family knows, even Paula, is that she has a beautiful voice. This is a very soft movie with amazing soundtrack, good to watch with your family

SceneTv evaluation of the movie: 8/10

Bruna Amorim