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also! another update while I’m posting on this account,

I finally found a sunscreen and a cleanser that doesn’t give me a rash all over my face!

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dupixent update again!

hello! I haven’t been on here in a while but I just wanted to update in case this is helpful for anyone who is considering taking/ already taking dupixent

I’ve been taking dupixent for almost 2 years now and that along with an improved diet is working amazingly. my skin is so smooth and the discoloration caused by my eczema are almost completely gone all over my body. It did get a little worse in the winter on my neck and around my eyes but it was still very manageable and so much better than it used to get.

The only issue I have with dupixent is the side effects. I’ve been experiencing dry eye syndrome for the past ~6 months because of dupixent to the point where my vision has gotten blurry and I’ve had to see an ophthalmologist :/

I’ve been taking eye drops and other treatments for the dry eye and my vision has improved. However theres still so much dryness in my eyes even after 5 months of visits with an ophthalmologist. Although it’s not that big of an issue rn, dryness on my cornea could impact my vision in the long run so I’m doing all I can to prevent that without having to go off dupixent because it’s helped so much with my eczema. however it will probably be a chronic problem for as long as I’m on dupixent.

If it doesn’t get better soon, I may discuss taking dupixent every 3 weeks instead of every two weeks with my allergist to see if that helps but I’m not sure yet. I will update with any new developments as they come!

Hope this is helpful somehow!

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"Miserable" 2021

I was having a pretty bad eczema breakout and my eye was breaking out too, I was feeling really bad and alone and it was so painful and frustrating so I decided to paint how I felt. You don't see eczema portrayed in the media alot so sometimes it feels like you're the only person in the world with this horrible condition. Through my art I'd like to bring more representation to this skin condition just as vitiligo, psoriasis, and other conditions are shown pretty heavily in media, along with things that bring me joy.

Eczema makes me angry

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if i draw my eczema it will you away 

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whenever i see a post about eczema or dermatitis i feel like the happiest person on the planet because i know i’m not alone with this curse.

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shout out to all the people having dermatitis flare ups b/c of the wacky weather changes going on right now

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You know what is a terrible disease that people don’t talk about enough? Eczema. People think that its just itchy skin, but it’s not. It’s an autoimmune disease that has no cure and doctors don’t even know what actually causes it.

I’m dealing with a bad flare right now due to the heatwave in my area and all the smoke in the air from wild fires and my skin fucking hurts. Really fucking badly all over my whole body. It hurts to move. It itches so bad but when I give in and scratch, it hurts more. It hurts and it itches and all I can do is lay here and try to distract myself.

It makes it hard to sleep. I wake up from pain every time I switch positions.

It’s on my neck and I can’t turn my head without major discomfort.

It’s on my back and torso and I can’t turn my body without major discomfort.

It’s on my legs and it hurts to walk.

It’s on my arms and it hurts to reach for anything.

All I can put on my body is Vaseline because anything else used to moisturize makes it burn.

It feels like I’m on fire. My immune system is literally killing my skin.

And guess what? One tube of ointment, the only thing that gives me relief, costs $100. My insurance only pays for it every two weeks but a tube only lasts me five days.

Eczema isnt just a nuisance, it’s terrible disease that causes pain and scarring and sometimes even disfigurement. It deserves more attention and sufferers deserve more support. The medicines we need to stop our suffering are exorbitantly priced and we have no choice but to pay whatever amount they demand because we cannot function without it. And in the fight to lower medicine costs, we are forgotten because people think it’s a minor disease with minimal symptoms whos affects are only superficial in most people’s eyes.

Don’t forget about us in your disability activism.

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idk who needs to hear this but your body is loveable 

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Laziness Does Not Exist Devon Price

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One of my least favorite mental illness things is "hungry but dont feel like eating" and its companions "hungry but all the food in the house is Illegal," "hungry but can't make anything," and "hungry, want to eat, but why bother"

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Dupixent update again!

I’ve now been using dupixent for seven months. Some things I’ve noticed:

It doesn’t help my skin as much as it used to. Most of my body is 100% clear since starting dupixent but there are a few problem areas

About a week after injection my face starts getting patchy again and the 2 days before injection my neck, chin, and eyelids are extremely rough and dry

The past few injections have not been working on my elbow area at all and my eczema actually seems to be spreading up my arms

This all could be because ive been eating more packaged food now that the dupixent has made me more comfortable and my body doesn’t like that, or my body isn’t reacting the same to the drug

On the bright side, though, now that I’m self quarantining because of covid19, Ill have more time to cook my own meals. So I’m gonna start cutting down on packaged food as well as eliminating food i suspect I’m allergic to. I used to be extremely allergic to wheat and chicken so I’ll eliminate those first in case I’m still reacting. I’m also thinking of eliminating dairy because I have a sneaking suspicion that that’s making my skin worse (which is unfortunate because my mom bought so much icecream to eat while we are social distancing). I can’t go full elimination diet because of my weight and the fact that I’m allergic to most proteins which makes it hard for me to have a balanced diet.

If anyone has any tips i would love to hear them!!

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Me to myself whenever I’m upset

I had a stressful day but am now in bed reading howls moving castle and eating gummy bears so maybe things actually will be ok

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I had a stressful day but am now in bed reading howls moving castle and eating gummy bears so maybe things actually will be ok

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Shoutout to everyone with skin conditions that make washing your hands and using hand sanitizer so often painful if not impossible without causing damage. It’s not your fault you can’t wash your hands/use sanitizer as often as you want to and you’re not a bad person for taking care of yourself. Wear gloves when you need to to cut down on how often you need to clean your hands. Be sure to stock up on your creams and lotions and ointments during this time to try and prevent and treat flare ups. See if your dermatologist might call you in some without an appointment if you’re due for a refill.

Take care of yourselves!

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another decade has passed and guess who’s still here? the moon. she’s always been here and she’ll always be she’s a Loyal friend to all of us say thank u moon