stellanotecor - Tumblr blog

[stellanotecor]

[stellanotecor]

I designed a blanket for spoonies and anyone feeling poorly!

I went with "A Strong Woman" in the patient line because so many people with chronic illnesses are women. I also want to create one with a gender-neutral name in that spot, but I could not think of what to put. Any suggestions?

Here's a link to the listing on Etsy of you are interested!

[stellanotecor]

These are great descriptions of what subluxations feel like for me too. I mostly subluxate my shoulders and hips.

So far I have been lucky enough to not have a full dislocation, so I can't comment on that feeling.

What do subluxations/dislocations feel like for y'all? I'm curious. For me, it depends on the join.

With my hips, I either wont notice it's subluxed until I move a certain way and it locks up with a stab of pain, or it will just ache every time I put weight on that leg until I'm able to get it back in place.

For my ribs, it's like i'm being stabbed in either the back or chest but will usually go back in place if I take a few deep breaths.

My wrists mostly don't hurt, but they'll have a limited range of motion and then make the most awful cracking sound when they go back into place.

With my fingers, it mostly doesn't hurt, just feels stretched, but not in an at all painful way. After it's back in place, it feels kind of unstable.

My shoulders are similar to my fingers, and also the only joint i have that regularly dislocates entirely rather than just subluxing. It also happens in two ways. If my arms are just down, then the best way I can think to describe it is the way it feels when you stretch putty. That will just happen when I'm walking, and even more so if I'm carrying something. The other way it happens is if I lift my arm, it will have this clunking feeling, and if it sits like that for any significant length of time or with any more weight than just my arm, it starts to have this sharp pain. Usually I'll feel that one the next day, too, in the form of a constant soreness around the join.

What about y'all?

[stellanotecor]

Hey I uhh spent a while looking through your health tag and I was wondering how do you manage to have the language to talk about your pain. To describe how it feels and where because right now I am a puddle of pain and can barely think well enough to to type this out let alone talk about my pain in a way that makes sense to someone who might be able to help or give advice.

I'm sorry to hear that :(

Unfortunately, Tumblr wiped out a bunch of the chronic pain tags when they did their NSFW purge, but I learned how to advocate for myself from other chronic illness bloggers, and also by working with a physical therapist (his tag on here is #magic physio man) who helped me to distinguish between different types of pain (sharp vs dull, acute vs chronic, radiating vs localized) and also how to rate them appropriately on those chronic pain chart doctor's have, taking into account that my baseline tolerance is much higher than the average person who doesn't live daily with chronic pain.

So say my baseline is a 5 daily, a new pain might push me to an overall 8, which is what I should relate to my doctor, not that the new pain is only a 3. If that makes sense. He got me to use the Defense and Veterans Pain Rating Scale to describe my pain, which is actually one of the more helpful pain scales out there:

Link to download PDF here (x)

Not every physician will be familiar with this scale, and you don't even need to tell them which scale you're using (I don't. Some doctors get surly over patients bringing this sort of thing to their own appointment, so I wait to see how they handle my care first before I bring my own resources to them), but it gives you the language to better convey your pain in terms the physician will relate to, and also what number you are realistically at.

From what you're describing to me just now, you're in the severe zone where your ability to focus is impeded. If I were telling a physician this, I would let them know my pain is around a 7-8, making it hard to focus, and prevents my ability to do daily tasks.

I would then describe what kind of pain it is, i.e.

Radiating: not in one place, possibly body-wide

Localized: restricted to a certain area, e.g. a toothache

Acute: sudden onset, usually from an illness or injury or surgery

Chronic: has lasted over 12 weeks, possibly a result of injury/illness or an unknown cause. (migraines fall into this category) Followed by a descriptor like:

Achy

Stiff

Burning

Stabbing or piercing

Raw

Cramping

Throbbing

Tiring

Heavy

Tender (sensitive to touch)

Shooting

Sickening

Other things they will ask include:

Does anything make it better/worse? What pain relief methods have you tried? Does it get worse throughout the day? Does it prevent you from getting restful sleep? How does this affect your mood? I'm sure I've missed something, but I hope some of that is helpful for you and maybe gives you some of the language needed to advocate for your pain. Take care, and I hope you get relief soon!

[stellanotecor]

tbh shoutout to the over 40s on tumblr, sorry the internet acts like yall belong in the retirement home when ur literally just regular adults with hobbies

[stellanotecor]

Women want one thing and it's quite obvious, A large affordable interconnected North American Rail Network

[stellanotecor]

"This Pon Farr could've been an email" - @bagginsgotdabooty

[stellanotecor]

Honestly the fact that gloves are not common Vulcan attire is the biggest proof that they're huge whores on the inside

[stellanotecor]

America is absolutely disconnected to meat

I think I realized this when I had went to see my dad and stepmom one day and asked if I could place my hawk’s food. (A rabbit leg) in the freezer. My step mom was disgusted by the idea that a leg from an animal was in the freezer meanwhile an entire chicken was sitting in the fridge.

Your rotisserie chicken is an entire chicken.

Your pork chop is a hunk of pig.

Your rack of ribs are from a cow’s rib cage.

It’s like Americans view meat as colorful red and pink hued shapes that just exist and come into the world packaged.

You see so many people getting harassed or even having their content flagged for showing how to process or field dress meat when it’s at it’s freshest. Right after culling. For some reason this is considered “gore” by many folks when in reality it’s no more different from plucking a processed chicken after cull.

You also notice that Americans have an idea of what’s normal meat and what isn’t normal meat and there’s racist undertones that I’ve noticed in a lot of these comments left on foreign cooking videos

You have people that claim a video of a man in a different country preparing something like this is “eating a dog.” Meanwhile this is roasted goat.

You have people who’s only perception of an edible fish is in fillet or fish stick form and they call something like this nasty because “Eww there’s a head!” Yeah.. most animals have heads..

Some of ya’ll need to realize what your meat looks like prior to processing and that it’s prepared in different ways. We also need to erase the stigma behind non traditional meats.

[stellanotecor]

@thebibliosphere Maybe it's not just the EDS and MCAS...

Your great-great-great grandfather was a vampire. However, the vampire genes are so diluted all it means is you’re mildly annoyed by crosses, are allergic to garlic, and get sunburned easily.

[stellanotecor]

i love finding out the meaning of slangs for “attractive woman” in various languages

chick (english) - baby chicken Schnecke (german) - snail/slug sild (danish) - herring fıstık (turkish) - pistachio тёлочка (russian) - heifer ծիտ (armenian) - sparrow

[stellanotecor]

There’s no such thing as work-life balance for neurodivergent & chronically ill people.

This is because everything in my life requires work:

maintaining friendships

keeping up with my hygiene

managing bills

making money

remembering my basic needs

sleeping regularly

outputting creatively

All requires some aspect of work for me.

And when everything in your life requires work, your balance goes out the window.

If you're neurodivergent and overwhelmed — I see you.

If you're chronically ill and overwhelmed — I see you.

You're not dysfunctional.

You're not incapable.

You're doing your best.

[stellanotecor]

just had a realisation

[stellanotecor]

Defund and abolish is making more and more sense. End qualified immunity for police, too.

How many more are buried there?!!!

[stellanotecor]

Hello! I am starting up an Etsy store focused on things with designs for people with chronic illnesses. Please help my market research and tell me what item you're MOST likely to purchase!

There are example pictures of possible items below the poll!

And please, please, please reblog!

[stellanotecor]

me trying to convince myself that the whole spectrum of human emotions is a good and necessary thing to feel even if its not comfortable while im actively experiencing emotions that make me feel like my bones are being dissolved in acid

[stellanotecor]

Amazing dominoes structure