#bbsoasstrong

[emmahastwomoms]

“There is no limit to what we, as women, can accomplish.” - Michelle Obama⁣ ⁣ 𝗛𝗮𝗽𝗽𝘆 𝗜𝗻𝘁𝗲𝗿𝗻𝗮𝘁𝗶𝗼𝗻𝗮𝗹 𝗪𝗼𝗺𝗲𝗻’𝘀 𝗗𝗮𝘆 𝟮𝟬𝟮𝟭⁣ ⁣ Every day I try to be the best woman I can be to help raise this girl to become the best she can be. Emma is the most resilient girl I know and with each challenge that she faces, she squares up and gets over the hill slowly but surely. We know that are limits to what she will be able to do, but we will raise her to see those limits and push as far as she can go. After all ceilings are made of glass, not cement! #emmaleimomi #mygirl #nr2f1 @nr2f1foundation #bbsoas #bbsoasstrong #bbsoaswarrior #bbsoasawareness #cvi #onh #ona #lowvision #gtube #spd #autism #girlswithautism #girlswithfeedingtubes #internationalwomensday #womensday #womenareincredible #girlsrule #girlsareawesome #girlwarrior #specialneeds #glassceilingsaremeanttobebroken https://www.instagram.com/p/CMKw3WJMvN3/?igshid=qqhhq9mueb2t

[loverazila]

Breakfast untuk budak comel itu. #aisy #JourneyOfAisy #bbsoas #bbsoasstrong #boschboonstraschaafopticatrophysyndrome #bbsoasawareness #bbsoasworrier #bbsoasfighter #bbsoasfamily #bbsoas_malaysia #nr2f1 #facesofbbsoas #rarediseases #malaysiararedisease #specialneedsmoms #specialneeds #specialneedsfamily #specialneedskids https://www.instagram.com/p/CfvDCOWpqXV/?igshid=NGJjMDIxMWI=

[loverazila]

Bila Mak yang feeling owner hospital sendiri ✌🏼. Appointment jam 10 kau sampai dekat jam 11 astagarafirullahhalazim. Tinggal tunggu nak kena halau balik ni 🤣🤣🤣🤣 ampon teacher ini hari semua jalan jem. Sawan betul. Weih raya minggu lagi satu weih. #speechtherapy #HRC #21042022 #aisy #JourneyOfAisy #bbsoas #bbsoasstrong #boschboonstraschaafopticatrophysyndrome #bbsoasawareness #bbsoasworrier #bbsoasfighter #bbsoasfamily #bbsoas_malaysia #nr2f1 #facesofbbsoas #rarediseases #malaysiararedisease #specialneedsmoms #specialneeds #specialneedsfamily #specialneedskids https://www.instagram.com/p/CcmOWyLpZBN/?igshid=NGJjMDIxMWI=

[loverazila]

#RareDiseaseDay #rarediseaseday2022 #28020222 Korang nampak tak??? Suddenly Muka dia pop-up ❤️❤️💃🏻💃🏻💃🏻💃🏻 love it. Terima kasih Allah untuk kurniaan rezeki ni. Alhamdulillah, happy for this journey 😍. #aisy #JourneyOfAisy #bbsoas #bbsoasstrong #boschboonstraschaafopticatrophysyndrome #bbsoasawareness #bbsoasworrier #bbsoasfighter #bbsoasfamily #bbsoas_malaysia #nr2f1 #facesofbbsoas #rarediseases #malaysiararedisease #specialneedsmoms #specialneeds #specialneedsfamily #specialneedskids (at Kuala Lumpur, Malaysia) https://www.instagram.com/p/CaitEYUPchD/?utm_medium=tumblr

[loverazila]

Mensyukuri ape yang kita ada it’s the great way to accept all those we had to go thru 😊. . Always set your mind that Allah give you it’s the best for you n you is strong 💪🏼 to face it! . Jangan Sedih dengan setiap takdir yang hadir Kerna Di situ Allah hadirkan jua ilmu yang kite pelajari dalam tak formal Dan xdisengajakan. Allah pilih kite sebab kite hebat dan mampu menghadapinya. Love ❤️ #staypositive #boshboonstraachaafopticatrophysyndrome #bbsoasstrong #bbsoas #bbsoasawareness #bbsoaskid #raredisease #bbsoasfamily #malaysia https://www.instagram.com/p/CUJhXU-JyuJ/?utm_medium=tumblr

[emmahastwomoms]

Round 1 of imaging under anesthesia today! Emma is getting her annual MRI of the Brain to check how her optic nerves and brain are looking so that we have a yearly baseline for her genetic mutation. This girl is my warrior and still has a smile even on days she’s stuck in the hospital!⁣ ⁣ #emmaleimomi #mywarrior #bbsoas #nr2f1 #boschboonstraschaafopticatrophysyndrome #bbsoasstrong #bbsoasawareness #opticnerveatrophy #brainmri #phoenixchildrenshospital https://www.instagram.com/p/B8rTqh4lRrp/?igshid=tq7yb5zqyame

[emmahastwomoms]

We love someone rare! In honor of Rare Disease Day coming up at the end of February we are doing a round of shirts and a portion of all proceeds will benefit her cause, the @nr2f1foundation. I can’t wait to rep these designs for Emma and all the other awesome warriors effected by BBSOAS!! Feel free to reach out to customize the options to help spread awareness for your Zebra!!! ⁣ ⁣ #emmaleimomi #ehtmdesigns #raredisease #rarediseaseday #zebrastripes #zebrastrong #boschboonstraschaafopticatrophysyndrome #bbsoas #nr2f1 #nr2f1foundation #ilovesomeonerare #bbsoasstrong #bbsoaswarrior #bbsoasawareness #customshirt #customsticker https://www.instagram.com/p/B8SdxQ4FjNu/?igshid=a040gglqi15r