#but also i am on antibiotics and steroids so don't worry about me

[lesbxdyke]

Me: If I manage not to throw up from coughing today, I'll do raid tomorrow!

Me, fifteen minutes later: So guess what! No raid! You'll never guess why!

[meditating-dog-lover]

Healing this year

I really want to dedicate this year to healing. And I am getting better, but not 100% there.

I'm gaining more energy and my skin is getting better. I have antibiotic and antifungal ointments as well as petroleum jelly and gentle skin care to use until I get better and less inflamed. My hands have been itchy and dry with cuts, but again I haven't used steroids this week. So I don't expect them to look not inflamed for that reason, and also based on the fact that I am recovering.

I know I'll be benefiting through my anti-inflammatory diet. I've been eating this way for over a month and love it. I am still making some adjustments like how to eat out, find snacks and condiments. I'm finding a balance. I'm still going to support my hormone and gut health. I'm at least happy that I'm supporting my hormones by quitting fasting, getting support from my mom which relieves stress, and taking cortisol-reducing adaptogens (doing this temporarily). Gut-wise I'm happy my h pylori test came back negative. It won't hurt to do this test annually with bloodwork. I just don't want to experience reinfection. I'm going to work on stress relief and yogs/relaxing workouts to further help my hormones, and ask about enzymes and stomach acid during my mineral scan. This will be the LAST doctor appointment I make in private. Everything else afterwards, I will never hide from my mom anymore. I'm a hypochondriac yet I hate hiding health stuff from the person who heals me the most. I cannot do it anymore because I feel bad and need her help. 1 more visit and *that's it* no exceptions.

I need a lot of mental health support. I have trauma, and possible autism, and this has been a touch year and I've considered seeking psychiatric help because I need serious help. My mom is going to help me with this, and I'm going to the dentist with her, another area of my health heavily tied with childhood trauma I haven't healed from yet. The physical and mental health trauma hasn't healed and cuts deeper and deeper. I can't take it anymore, I don't want to be sick.

If I do recover and heal, then I'll be able to make it to next year focusing on socializing and intimacy, 2 areas I am scared of. I know I'm talking with someone already, but I know I need to establish truly healthy relationships to the point where I can trust others as a vulnerable and traumatized person and stop fearing intimacy. I'm worried of something bad happening which will psychologically scar me, and I don't need any more scarring.

[keratoconusgroup]

My crosslinking experience from 2008

I recently came across this ‘patient report’ I wrote following my crosslinking procedure In November 2008 at Bochner Eye Institute in Toronto, Canada. I sent this to a few friends in the eye care field who pointed me in the right direction. I thought you might it interesting and maybe a little amusing :) --- I just wanted to let you know that I had the Corneal Collagen Crosslinking with Riboflavin (C3-R) procedure last week at the Bochner Institute. I have to thank both of you for providing me with initial information to get me to this point and also for letting me know that the option existed. I am patient #174 to receive this treatment in Canada. I guess North America too, since apparently they are not offering it in the US yet. The total cost is $2700 CAD, which includes taxes, consultation, supplies, drugs, and follow-up with my eye doctor (5 visits I think). Unfortunately, it is not covered by my insurance or any health plan. The procedure has apparently gone well and my eye is healing nicely. I had my bandage lens removed yesterday and today I will go to my regular eye doctor for the first follow-up. I had initially been really nervous about the procedure to remove the epithelial layer. I must have been freaking out a bit because they gave me a Valium. ;-) But the epithelial scrub was quick and painless. The toughest part was having my eye clamped open for 60 minutes - it was so uncomfortable. Luckily for me, the person doing the procedure was very gentle and he had undergone the exact procedure himself a few weeks prior, so he knew exactly what I was going through. It was a strange sensation to have green drops added to my eye every minute. Without the ability to blink, my eye would swim in green riboflavin for a few seconds until it drained away. It felt like I was underwater on a bizarre planet. The UV light was not too intense. But it was so difficult to hold my head still. The last 10 minutes of treatment were agonizing - all I wanted to do was get up and blink a million times. For the first few days after the procedure, I was really light sensitive and my eyelids were sore. Now the eye is no longer sore, but every day is more or less blurry. On Sunday my vision was quite clear and I felt that I was returning to normal. But on Monday everything became blurry again. Apparently this constant shift is normal and will continue for several weeks. I need to apply 3 different drops 4 times per day: an anti-inflammatory, an antibiotic, and a steroid. Plus regular doses of lubricant. So, assuming that the C3-R procedure has worked for my right eye, I don't need to worry about progression of keratoconus. My left eye, however, is another issue. The cornea is less than 400 microns thick, so I don't quality for C3-R, unless they find a way to swell the tissue. I can consider Intacs as the next reasonable option. The cost of Intacs is also $2700, but they cut deals if you do more than one eye or combine treatments. Anyway, that's my report. Thank you again for the information you provided and gentle guidance. submitted by /u/Wrongbutton [link] [comments] https://www.reddit.com/r/Keratoconus/comments/wzfi5p/my_crosslinking_experience_from_2008/?utm_source=dlvr.it&utm_medium=tumblr