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#im still upset and reeling from my appointment at this point reliving my pain telling it to people over and over and fielding their
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more medical garbage bitching dont mind me (feel free to blacklist camyellsOW to ignore these)
im liking being able to look back on these before other appointments
im currently on hold with my insurance because my rheumatologist listened to me and he wrote me a prescription for ring splints and I called around to physical therapy offices and found one that has hand therapy and can take my and my appointment is in less than 3 weeks which for PT in my area and PT as specific as this thats AMAZING holy shit. Its actually closer to two weeks than 3 but I feel like im doxxing myself if i say specifics lmao
so im calling my insurance company to see if they can tell me ahead of time if there are a fuckload of hoops im going to have to jump through in order to get my splints
for the first time ever I feel kind of hopeful about my joint health. Were doing a lyme disease blood panel to see if thats the source of my nausea, dizziness, fatigue, and headaches. He ordered a couple more things Im going to google
I told him that I know we need to do physical therapy first but eventually id love to talk to him about a wheelchair and he said no and I started crying again and he was like I think thats a bad idea let me tell you why and I was like NO thats internalized ableism and thats a YOU problem! Wheelchairs are mobility they are FREEDOM. I cannot currently lift enough laundry at once to fill the washer without subluxing my shoulder/collarbone so I have to take multiple trips and frequently have to sit down between trips but with a wheelchair Id have the freedom and capability to just do a load of laundry. I already cook having to sit down. You can have an amazing wonderful fulfillling life in wheelchair that you cant have when youre in bed every day because everything hurts so much. You can tell me not right now or maybe in the future but just a no is the most hopeless answer you can give me. That is a YOU problem.
and he like did a little head tilt like a dog and was like. You know what? Youre right. Thats something I need to reevaluate in my own head. So, youre right I wont tell you know, but Ill tell you first we need to try physical therapy
that fucking honesty is why I love him so much. He was like "you need a therapist" and i was like dude if you tell me that one more time im going to start crying again I KNOW
and I apologized and thanked him for dealing with my anger because i just angry cried at him basically the entire appointment and he just said Its okay, I know Im not who youre mad at. I wont take it personally and holy shit that was just the biggest load off of my back and I was like no youre right im literally just mad at my body. At one point he said "you know im empathetic, I bet it does hurt that bad." Like holy shit Dr G you are a king amongst doctors. He had knee surgery recently and I used it against him and he didnt even get mad. In my angry crying I was like you just had knee surgery. Sitting in bed wallowing in pain all day. It fucking sucks doesnt it? Imagine twenty five fucking YEARS of that! and he just nodded and digested that and was like yeah, I hear you.
This man is the best doctor in the world
at the very least im on my way to my ring splints which will help my quality of life SO fucking much holy shit
I also told him about the highly unprofessional cardiologist i saw who just told me I was fat and showed me his grandsons fortnite youtube channel and he was like wow literally what? and I was like I dont know man. And then he talked shit about cardiologists and how they tend to be fuckin weirdos with egos and i was like yo go off my shady king
but on the bright side in less than a week were placing that heart monitor and it will be recording for two weeks and hopefully after that i can obtain my POTS diagnosis and hopefully thatll put me one step closer to being an ambulatory wheelchair user. Id love to still be upright and use my cane when I can but a wheelchair for bad days would be lifechanging
my oldest childhood friend is able bodied the idea of being able to just get a coffee and walk around target with her pain free makes me want to cry THAT is a hopeful future
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