Tumgik
#just... there's probably poorly phrased shit throughout this and i really hope people can provide some better ideas and shit
thespacesay · 1 year
Text
one thing I feel like people miss in the discussions around the ridiculously low pay rates allowed for certain groups of disabled individuals is that in order to effectively change that, we first need to tackle funding for programs that support the types of disabled individuals who receive these pays. while i'm speaking to my personal connections to this, those low pay rates typically are social programs. these programs create jobs that are applied for via social workers assigned to disabled individuals by the state, and not through job applications. they are notoriously underfunded, primarily run by companies or groups who want to be seen as progressive, and typically are shut down rather than given increased funding.
for example: a recent change in a local pay rate for disabled individuals made it so my downs syndrome brother got like... $7 every two weeks (low hours + low pay) instead of $3. cool! for people who need more hours and the money it gives them, that sounds great!
but the thing is, at least for all the programs I know of, these programs are typically designed with people like my brother as the primary goal: adult disabled indiviuals for whom the goal of work is not to have a job, not to make money, but to provide a consistent socialization system. my brother is financially supported by our family, and he's disabled in ways where financial wellbeing is beyond his cognitive abilities. almost no money is put into the programs beyond paying a program manager, and it's generally used as a public "look at us, being so nice to provide for disabled adults!" thing. when my brother's pay went up due to legal changes... the company decided to simply end the program rather than invest in paying more.
again, i'm fully for raising their wages. I think the absolutely pitiful amount of money they're paid for legitimate work is terrible, and i'm well aware that my brother works with others who need what finances they can get through these jobs. but there's more to this than just wages. there's campaigning for better social programs so that there's something for them to fall back on. there's looking into how your local programs for disabled individuals are run, and ensuring they have enough money and equipement to provide a safe working environment for their workers. there's understanding who is paying these wages, what their goals are, and holding them accountable to helping disabled people instead of using people like my brother on an endless stream of advertisements to show how socially progressive they are.
and i'm really not joking about those ads. god, I really, really wish I was. my brother is visibly disabled, adores public attention, and very friendly. he's in like... 3 programs and featured in newsletters or ads probably 3-5 times a year. those programs have also let him wander out the door and not noticed for over an hour, fired program managers for manufactured reasons after they request funding for small but meaningful changes, and... been the local police. guess which group is the only one that never shuts down from a lack of funding?
I honestly can't tell you how best to help disabled people in your area. my needs as a disabled person are vastly different than either of my brothers, and all of us have terrible problems with employment not providing for us in vastly different ways. but if you're just tacking on "disabled people deserve better wages" to a broader "people deserve a living wage" with no nuance, you have got to understand that you can be actively harming the very people you want to support.
#i don't know how best to phrase this all#but just. i'm upset for my brother because when this program shuts down he's losing access to his friends who live in group homes#and i'm upset for his friends who are in turn losing more of their already very limited access to places outside of their house#i'm frustrated in the so-called progressive groups that pushed for this and said nothing when it led to 3/5 of the major programs#for disabled adults in that area who cannot work 'standard' jobs to close#because there was no effort to hold the companies providing those programs accountable to not just... close. fire them. anything like that.#and god knows none of them and none of the families of this group of largely cognitively/physically disabled adults in our area#have any fucking money to hire lawyers to even see if there *is* a case that could be brought#and of course the remaining programs are a new one by a group that i don't trust at all with my brother's health and safety#and the even worse one: the fucking cops!#just... there's probably poorly phrased shit throughout this and i really hope people can provide some better ideas and shit#but this is a personal rant in response to seeing 'progressives' use disability as a cute platform and having a lack of detailed attention#to the ramifications of how they tried to 'help' them#i'm also struggling to try to define like... i'm disabled. i'm not who these conversations are about#these conversations are about a different group of disabled individuals than me#and in the area my brother lives in i'm passingly familiar with a lot of the group of disabled adults who utilize the social programs#these wage conversations typically refer to#and among them i don't think i know any who *can* self advocate about this#also the consistency with which this happens every like. 5 or so years is really terrible#in reference to calling these jobs programs: they are programs. we apply my brother to them via his state social worker
6 notes · View notes