#sudecksyndrome

[christelno]

🙏🏼 PLEASE READ THIS: Hi Friends! We need to talk. ➡️ November is #crpsawarenessmonth so it's a chance for me to tell the World about this quite unknown but extremely painful disease. 🎗Most of you know that I am sick but I am not the only one in my family: my daughter suffers from CRPS also called Algodystrophy or #sudecksyndrome The letters CRPS stand for Complex Regional Pain Syndrome. ➡️ It is a rare and very painful disease that creates to a gradual muscle wasting, bone loss and local osteoporosis. It also causes severe burning pain or a very cold sensation due to pressure soreness and circulation disorders. It is SO Painful that it can leads to depression and even su!c!de 😥 ➡️ My daughter has CRPS since 2018 and she hardly can walk or stand for more than 5 minutes. Because it's a very unknown disease there's no treatment and I often heard doctors calling it somatic just like they did for Fibromyalgia or others invisible pains. But it is visible though!!! My daughter's foot is generally bright red & swollen. And just right now, she is hospitalized because it was too much for her. 🙏🏼Please Guys, help me and other people living with Algodystrophy by sharing this or posting an orange ribbon for #crpsmonth ❤And Thanks for Reading! It's easy to talk about myself but telling you about my child was quite difficult for me since she is alone in her hospital room while I'm feeling guilty leaving her...🕊 ❤ #crpsawareness #sdrc #crpswarrior #sickchild #unknownillness #crps #crpssucks #crpsfighter #invisibleillness #invisiblepain #chronicpain #spooniefamily #chronicdisease #raredisease #rareillness #invisibledisability #childwithdisability #disability #disabilityawareness #inclusion #chronicpaincommunity #chronicpainlife #spoonie #spoonielife #spooniewarrior #spooniesupport #childspoonie https://www.instagram.com/p/ClDAoYDKBPz/?igshid=NGJjMDIxMWI=