#the first 3 days are always debilitating but by the time school starts i'll be fine

[wild-moss-art]

hi moss! I hope you are having a good day!! I was wondering if you were willing to share how you convinced a doctor to yeet the uterus :O are you scared about having a major surgery? (I am, as always, having The Thoughts.)

<3 I hope you're having a good day too! It is a long story and kind of personal but I'm happy to share bc I know that it's really difficult to find info on, and if anyone has questions you can feel free to dm or send an ask. Gonna put the story under the cut.

First of all, I live in america and this will all sound very american lol.

In the interest of not burying the lede, my working theory is that I have endometriosis or adenomyosis; these are notoriously difficult to diagnose. Endometriosis is only diagnosable through a laparoscopic surgery and adenomyosis is literally only diagnosable through getting a hysterectomy and having the tissue biopsied. If you don't want a hysterectomy, you can't get an official diagnosis.

Now to the backstory. I think my medical history and experience advocating for myself medically had the most impact on being approved for this procedure.

I have been on hormonal birth control since I was about 13 or 14 practically as soon as I hit puberty I had debilitating periods. I was missing a lot of school and obviously this didn't look good for my parents, so I was put on the pill, and later when I was older I switched to IUDs. The birth control basically put a bandaid on the problem, and the IUD eliminated my period altogether.

Near the beginning of this year, I started to have a lot of pelvic pain that I initially thought was a UTI. I went to the doctor who kept telling me I didn't have the bacteria for a UTI, and basically sent me home with some antibiotics anyway, which didn't help. They did not test for any other problems. I ended up switching doctors due to insurance purposes, but was also put off by the care I'd received.

When I went to the next doctor, they were actually willing to run tests. This doctor and every other doctor I've seen since initially insisted I must have an STD. A panel was run, and I was fully clean for STDs. I was referred to a urogynecology specialist, as my main symptoms at this point were pain(which they do not care about- didnt even put it in my file) and difficulty urinating(this symptom I believe is the only reason I was able to get a referral to a specialist).

While I was waiting for my urogynecology appointment(they were pretty booked out), the pain got worse, like a lot worse. I was also having more and more hormonal symptoms like heavy acne. I was able to move my appointment up but ended up going to the ER. At the ER, I posted about my experience which I can link if you'd like but I'll include the relevant info. The doctor hadn't looked at my age on the file and initially DENIED testing because I was "too young". He came back later and approved it, because he actually looked at my fucking file. From this point on I've been livid and ready to fistfight every doctor Ive seen.

I was at the ER for like 10 hours and got a CT scan, which showed all the inflammation in my uterus and little in my bladder, which was when I began to realize that the bladder issue was just a symptom and not the problem. The original doctor was off duty toward the end of my visit, and the new doctor came in for briefing when she mentioned they needed to run an STD panel. I told her I'd had one about a week ago that was fully negative. She said "I need to go talk to my supervisor."

Ultimately, I was released from the ER with a prescription for extra strength ibuprofen and a referral to a gynecologist. They said my IUD was stabbing me internally, and needed to come out. They did not take it out at the ER.

At this point, it was time for my urogynecology appointment. At the appointment, I told them about my ER visit and asked if they could take my IUD out. They said they didn't really do that there, but after I showed them my CT scan results, they did it anyway. I felt a lot better, immediately. They were helpful and awesome, but said that they mostly treat bladder problems, which was clearly not what I had.

I didnt feel fully better though, because hormonal birth control keeps endometriosis and adenomyosis symptoms and pain at bay. The pain has gotten gradually worse, but it's not longer quite as sharp and stabbing. I've been doing a lot of research about these conditions thanks to a helpful tumblr mutual, and I believe I have adenomysis. I'm not sure whether I have endometriosis.

I followed up on the gynecology referral from the er; I am really happy with this clinic so far. They are the ones that offered the hysterectomy. In my initial appointment, I mentioned that I was not on birth control and wanted to be sterilized. They asked if I wanted birth control in the meantime. I said no(I believe this helped).

(as an aside. Another reason I believe I was offered what I was is that I am married. When I listed my partner as an emergency contact, they specifically mentioned that I did not take his last name. I believe this says something about our relationship to doctors. I know often they will ask for the husband's permission in this scenario; however, they did not even bring him up beyond the last name thing.)

When I met with the doctor for a tubal ligation consult, we talked a bit about the procedure and what other symptoms I was having. I also got an ultrasound that showed inflammation in my uterus(as well as a medium sized cyst on my ovary. lmao). He said the tubal ligation would not help my other symptoms. When I mentioned my CT scan, he actually left to go look at it, returned and immediately asked if I wanted kids. When I said no, he told me he could give me a hysterectomy.

We went over some details; just a hysterectomy is a pretty non invasive procedure and doesn't even require an incision. He mentioned that it may or may not fix the whole problem(it would fix adenomyosis which only affects the uterus, not endometriosis which affects other organs) but that it's pretty complicated to remove the ovaries because it's a more invasive procedure and basically I'd have to be on hormones to simulate menopause for a really long time(I'm only 27). So that is an option, but it's better to just see if the hysterectomy fixes my problems.

The surgery is in 10 days from now and I have my intake consult on tuesday. I plan to update cause again, I know not a lot of people talk about these experiences and it would have really helped me to have known more going in. I really cant wait, I've basically been bedridden, cant exercise, can't stand for long periods of time, not much at all. I'm lucky my livelihood is sitting on my couch drawing.

Finally, I believe that it is possible that they wanted to sterilize me due to my mental health history. I am in ongoing treatment for my mental health, and have particular diagnoses that I do not disclose publicly. You can message me if you'd like to know this information.

[the-cookie-of-doom]

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