thefranklinschildren

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#30Factsin30days Slideshow

#30Factsin30days Slideshow for primary care doctors, nurse practitioners, nurses, and the general public about NET cancer. Learn--then help #cureNETcancernow.

Welcome to the #30NETfactsin30days slideshow. Click on any slide to start the show.

For a purely text post with explanations and further commentary click here.

Day 1

Day 2

Day 3

Day 4

Day 5

Day 6

Day 7

Day 8

Day 9

Day 10

Day 11

Day 12

Day 13

Day 14

Day 15

Day 16

Day 17

Day 18

Day 19

Day 20

Day 21

Day 22

Day 23

Day 24

Day 25

Day 26

Day 27

Day 28

Day 29

Day 30

You can help find the answers to NET cancer through donations…

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Goals for 2019 for Walking with Jane

Goals for 2019 for Walking with Jane

I finished my sixth full Marathon Walk in 2018–and my eighth year on the course. This year, I had company on the full course, including Morgan Bozarth and Dan and Julia Hurley. One of my personal goals is to get at least one more full distance Walk in this year.Thinking about goals I sit down to review the goals for Walking with Jane and draft new ones every January as part of the planning…

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PMC adds $500K to NET research

PMC adds $500K to NET research

Word is unofficial

I’ve just received unofficial word that Pan Mass Challenge (PMC) riders raised $500,000 for NET cancer research at Dana-Farber this year. The exact amount won’t arrive until the final tally in January.

I’ll be riding–and walking–again next year

Combined with the money from the Jimmy Fund Walk, small donors will have combined their efforts to the tune of over $650,000 for NET…

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A model release for correcting media on Franklin's death

A model release for correcting media on Franklin’s death

To whom it may concern: Please don’t refer to the cancer that killed Aretha Franklin as pancreatic cancer. According to her publicist she died of “pancreatic cancer of the neuroendocrine kind.” That form of cancer is more properly referred to as pancreatic NET or pNET. It is a very different type of cancer than the pancreatic cancer most people know about. Among other differences, pNET can create…

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The changing NET cancer landscape

The changing NET cancer landscape

I wish my personal landscape involved more time with my hummingbirds and less time trying to help unravel NET cancer. But the good of the many outweighs the needs of the one, as Spock would say.Changing landscape of NET cancer The landscape of NET cancer has changed enormously over the last eight years. We had no money for research worth talking about. Too many patients and caregivers had few…

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Help support NET research on foot or bike

Help support NET research on foot or bike

Whenever the going got tough for her students, Jane challenged them with this quote. Sometimes, I need the same help it gave them. The Path I walked

We started working on the idea that would become the Walking with Jane seven years ago this month. It was supposed to be nothing more than a Relay for Life team—the kind of thing Jane and I had hoped to do to help others after we retired that June.…

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Fundraising plans moving forward

Fundraising plans moving forward

Relay for Life is the first major Walk of the cancer fundraising year for Walking with Jane. This year, that event is June 22-23.

Here’s this week’s update on our cancer fundraising work–albeit a day later than planned.

Pan Mass Challenge August 4-5—Bike Rides from various points and of various distances

I met with Heidi’s Heroesteam captain Heidi Fischer yesterday. The design for the team shirts…

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Relay Fall River turning 20 in June

Relay Fall River turning 20 in June

Tents begin to sprout for Relay in late June each year in Fall River. People walk the track throughout the night to raise money for cancer research and patient support services. Twenty years of Relay

Relay for Life of Greater Fall Riverobserves its 20th anniversary this year. In honor of that event, the local committee is designing a commemorative t-shirt. At last night’s captains’ meeting they…

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Walk--and Ride--season approaches--join us

Walk–and Ride–season approaches–join us

Walk–or ride–you can help

Research carries a hefty price tag. Part of the work Walking with Jane does is raise money for that research. You can help, either by participating in a fundraising event–or by donating to one. Starting this week, we will publish a weekly update on our major efforts–and the fundraisers we do to support those efforts.

Here’s this week’s update on my cancer fundraising.

Bos…

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Little things real killers in grief

Little things real killers in grief

A life of love is created by the 10,000 little things we take for granted–until they are gone. Jane already had had NET cancer for more than a decade when this picture was taken; we just didn’t know it. Big things hurt; little things kill

Valentine’s Day, Christmas, Thanksgiving, birthdays, Halloween, even our anniversaries are not the worst days in my life since Jane died. They can be hard–and…

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Walks, rides, campaigns, dinners highlight months ahead

Walks, rides, campaigns, dinners highlight months ahead

Our biggest fundraiser last year was our annual clam boil. It helped fund the walks of multiple members of our NETwalkers Alliance team. Six months of event planning

We have a wide range of events over the next seven months–culminating in the Boston Marathon Jimmy Fund Walkat the end of September. Most focus on NET cancer, but in keeping with my determination to make even the training walks…

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Redesign time: What are your thoughts?

The initial era of Walking with Jane is drawing to a close. As we head into the next era, we need to rethink what we are doing–and redesign the website in accord with the new role and the new goals of the organization. Redesign long overdue

Just about 6.5 years ago we started the design of walkingwithjane.org. At the time, it was a state-of-the-art design. We tinkered with it over the first year…

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One hate fuels another

Help me stop doing what I hate. Let me finally be able to tell Jane her disease is dead. Why I ride

I have to be honest: There are two things I really hate about the work I do with NET cancer.

The first is reading the daily notices about who has died overnight. I’ve reached a point that I know most of them. I’ve read their posts in support groups, met them at conferences. Every death reminds me…

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Seven years: an ending and a beginning

For seven years, my Saturday ritual has included a visit to Jane’s grave. Today seemed different. The cemetery

I drove to the cemetery this morning. The ground was covered in a thin coat of snow and there was a touch of wind. It was cold, but I’d dressed for it. I stood at Jane’s grave. I said some things to her stone–private things and not so private things. The things one says at the grave of…

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Time to change direction and focus

I restarted this ivy heart shortly after Jane’s death. The original plant died while Jane was in the hospital. It sprouted a bit that spring. The change since then is remarkable. A year of change

My friend John died July 1. August 8, I had minor surgery to remove a basal cell skin cancer from my nose. I fought off a cold in September, another in October, the flu in early November and an…

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Giving Tuesday:give more than thoughts & prayers

If you can’t attend a NET cancer fundraiser, Giving Tuesday is a good time to support NET cancer research. Thoughts and prayers don’t fund a single research project–your donations can. Shopping thoughts

Black Friday, people shopped. Their thoughts were focussed on the bargains to be had on gifts for loved ones. My thoughts, too, drifted to the bargains. I had tools to replace and some lights I…

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Thankful? Perhaps. Terrified? Absolutely

I am thankful for the many former students and friends who have worked with Walking with Jane two raise money for NET cancer research. Thankful for what is

I have much to be thankful for: I have cupboards stocked with food, I have a roof over my head—a heated home with comfortable chairs and a warm bed to sleep in. I have clothes to wear at every season of the year. I have friends who would walk…