thistangledbrain

[thistangledbrain]

Day 30!

I am actually glad this is over LOL.

“Acceptance means”....

Boy do I have quite a bit to say about this, but it mostly centers around some of my youngest son’s other family members refusing to accept that he’s autistic. I simply don’t understand why they hesitate, or try any other explanations - as if autism is the absolute worst thing, or something. Or wail about “why does he need a label”...first of all, it’s not a LABEL, it’s a WAY OF BEING, and yes I would think that’s a pretty important thing to know about someone. *makes inarticulate frustrated sounds*

I’m not trying to get myself all irritated at 7:30 in the morning, though. So I’m not going to speak of that specifically, any further. (It’s just when I think of the word “acceptance”, I automatically think of that first, every damn time. Grr.)

So...acceptance to me, just means that you embrace that person as they are, and you accept that the autism isn’t an “aside”, like say “I really like Joe, except that he’s a Republican - but I can look past that most times.” You CANNOT look past it - not unless you expect that autistic person to constantly mask around you so you don’t get uncomfortable- and that’s not fair. How would you like it if you had to behave as if you were at a fancy, formal dinner *all the time*? Or inside a boardroom? When we aren’t masking, it’s like you (speaking to NTs here) being kicked back in a lawn chair with a beer on a Saturday, after an exhausting week trying to please your client base. You don’t have to worry about *any* of those fools today, you’re just comfortably chillin’ in your own space, doing your own thing. Then imagine needing to stay in your suit all weekend, and speak to and act around your family the same way you do with clients you’re trying to please. Fuuuuuuck that.

Acceptance means understanding we are all our own people, and autism affects each one of us differently. Stop comparing us to each other - that takes you even further away from understanding, IMO.

Acceptance means understanding that ABA is like LGBTQ conversion therapy. It’s harmful, and can cause severe PTSD. ABA simply trains us, like dogs, to perform or suppress a behavior to be more socially pleasing to those around us. ABA *does not help US*.

Acceptance means LISTENING TO US and how WE feel. It means not speaking over us. Acceptance means understanding that autism is *developmental*, not *intellectual*. STOP TALKING DOWN TO US and infantilizing us omg. Even if we’re nonverbal - we are whole, thinking people inside.

I’ll end with this...

When thinking about Acceptance, I always remember this Ram Dass quote: “When you go out into the woods, and you look at trees, you see all these different trees. And some of them are bent, and some of them are straight, and some of them are evergreens, and some of them are whatever. And you look at the tree and you allow it. You see why it is the way it is. You sort of understand that it didn’t get enough light, and so it turned that way. And you don’t get all emotional about it. You just allow it. You appreciate the tree. The minute you get near humans, you lose all that. And you are constantly saying ‘You are too this, or I’m too this.’ That judgment mind comes in. And so I practice turning people into trees. Which means appreciating them just the way they are.”

So, to end this, practice thinking of your Autie friend or family member like a tree. Autism isn’t a “disease” (especially not one we’re going to “recover” from). That funky little bent tree in the forest isn’t going to “straighten out”. Why would you want it to? Just embrace it...we auties can be fun and funky too, if you just learn to accept. Not tolerate. Accept.

So smile and strugglesnuggle your Autie! (THAT WAS A JOKE, PLEASE DO NOT DO THAT 😂)

Peace out ✌🏼

[thistangledbrain]

Of course I’m late again. I’ll probably be late to my own funeral.

Anyway, here’s Day 29...

Day 29

“Famous Autistics”

So my favorite might be Eminem. I’m absolutely convinced Billie Eilish is an Autie, though, and if she ever comes out and says she is, then she will be my favorite. 😆

Anthony Hopkins is rad. Bill Gates. Steve Jobs. Tim Burton. Dan Aykroyd. Temple Grandin, of course (love her). Daryl Hannah. Jerry Seinfeld. Albert Einstein. Nikola Tesla.

I’m not sure how they know if Hans Christian Andersen or Mozart or Newton were, but you’ll find them on the lists.

Susan Boyle (Britain’s Got Talent) and Kodi Lee (America’s Got Talent) are *incredibly* gifted - and Kodi in particular blasts stereotypes out of the damn WATER when he plays and sings (just awesome). When he’s speaking, he seems very childlike, and his mom is always with him (he’s in his 20s), but when he plays and sings, a depth of emotion and maturity just pours out of him.

Anyway, here are some links, if you want to explore on your own.

https://www.appliedbehavioranalysisprograms.com/historys-30-most-inspiring-people-on-the-autism-spectrum/

https://blog.ongig.com/diversity-and-inclusion/famous-people-with-autism/

[thistangledbrain]

I think I’m going to add Day 28 a day early, because I just finished it. This one took me 3 days to write...I had to keep putting it down. I think because meltdowns are our strongest reminders that we are NOT like other people, and that can be hard to accept sometimes, especially when we’re trying so hard to blend in or go along. Also, meltdowns are when we are in a raw, illogical space - which is highly unsavory, to put it mildly. We are vulnerable. Naked. Stuck. Entirely in fight or flight mode - or both. For as baffling and upsetting as you find it to be - trust me, we aren’t having a good time, either.

*takes a deep breath*

Ok, here goes.

Day 28

“Dealing with meltdowns”

Well, this one’s fun. (sarcasm)

I’m glad I got a few days ahead, because this one is hard to think about, so I keep putting it down and then coming back to it. I asked my youngest some questions, but he didn’t want to talk about it, either.

We hate meltdowns. It feels like the whole world is ending/everything is crashing down at once. I don’t CARE if what triggered it was “small” - all the repressed stuff we’ve been trying to squash comes crashing in like the fuckin Kool-Aid Man through a half open door.

But, I’ll start with how you can help.

First and foremost: DO NOT TOUCH!!! NO! BAD NEUROTYPICAL!! NO TOUCH!! (One exception: if we’re trying to blindly bolt from our environment. STOP US.)

I know this is completely counterintuitive to typical human nature, especially with young children. You want to scoop them up and cuddle them and make them feel safe. Sorry, but you just did the opposite of that - you freaked us out even more, and your need to touch and comfort is entirely yours, in that moment. Let us come to you if we want physical comfort - when we do need that, we can be like clingy little monkeys (and if an Autie child clings to you during a meltdown, you *honor* that shit & throw all the loving calm energy you can out there for them - do not say anything or try and talk them out of it - just let them cling to you and cry. Literally - JUST be there). I will say, AFTER the meltdown, we will possibly need some reassurance and kindness, if you can manage it. We will sometimes allow holding when we don’t feel good, with our absolute closest humans, but generally we really want you to just be there but not touch, until we’re ready. Lots of us don’t really want you to leave altogether, at least not for long - even if it seems like we do.

If you want to help, start with keeping your energy (your “vibe”) as calm, gentle, and peaceful as possible. Try not to get frantic or frustrated. If we’re at home or in a familiar space, do things that make our space feel better - drop the blinds/make it dark, place our weighted blanket over us/find our stuffy if we have one, light a candle or burn sage/waft a favorite calming scent, like lavender. If you say anything, use a soft, gentle voice - try not to talk too much...but if you sing, that can be very soothing. Sing very softly - I don’t know why, but soft singing and rocking (if you can stay on key...sorry but it’s grating when the tune is off!) can go a long way towards calming. Things like this can head a total meltdown off or stop it in its tracks, sometimes. Or get us out into an environment that makes us happy (like a nature trail)...but if we’re past a 4 (I’ll explain in a moment), we might not be willing to.

If we’re in a school setting, get us out from under those GOD DAMNED FLUORESCENT LIGHTS...YOU might not pick up on their eye-and-head hurting flicker, but we can. They suck even when we’re in a GOOD mood. See if you can get us into a darker room, or at least one without those &$@!;!! lights. Small things like bright lights, or sounds that usually only cause mild annoyance can become HUGE - for example, my dogs. In my best moments, the sound of them licking themselves will set my teeth on edge - if I’m trying to come out of a meltdown, those sounds - or almost any sounds, really, except white noise stuff - are infuriating. I hate to say that, but 🤷🏻‍♀️ it’s just true. All your sensory shit is dialed to 11 and someone broke the knob off - there is NO “just deal with” whatever, at that point. We aren’t dealing with SHIT right then, so removal to a quiet spot is pretty damn important.

Try to distract or divert us before we’re over a 4 on a 1-10 scale, though, and absolutely before we start looping (the suggestions so far are for when the meltdown is in/almost in full swing - and I’m only speaking for older auties and into adulthood, here, though most of this stuff helps littles, too).

Let me explain “escalation scale” and “looping” - with the help of my husband, who recognizes patterns of escalation as well (in us, and in dogs ☺️). “Looping” is his word. It means no matter what you say, we keep looping back to what’s got us upset/how much we hate ourselves right then/all the bad feelings/past hurts that are piling on to the current problem. You’ll pull us out of it for a second, but then we loop right back to it. Ideally, you want to intervene before we get to the looping, which is about a 7+ on the escalation scale. Once we’re at a 7 and above....we’re consumed by it, and it gets much harder to diffuse. Think of the 1-10 scale like this: 1 is calm, 10 is completely nuclear - above a 7, almost nothing will distract us, almost nothing will divert us except bodily removal from the situation/environment & then leaving us the fuck alone (maybe figuratively but not literally - it depends on your Autie) for a while until we exhaust ourselves one way or another. If you can intervene and remove/distract right around a level 4 - which is right when you start to notice someone is getting quite agitated, you’ve got a good chance of heading the meltdown off at the pass. But if we’re already looping - repeating phrases over and over, looping back to our most upsetting feelings no matter what you say or do, sometimes while rocking or banging, you’re way too late. Now we have to ride it out together...as safely as we can manage. Now you need to make things dark, private, and as calming as you can, if possible. Or just get us the fuck out of the situation that set us off. That helps, too...obviously. I’ll tee up a possible scenario: you’re at an amusement park with your Autie. WHOA stimulation, right? You’re all having a fab time, but suddenly your Autie starts to cry or get angry or otherwise exhibit “I am SUPER OVERWHELMED” energy. 🤷🏻‍♀️ It’s just a lot to process, even when all the things are pretty fun. So, find a quiet place in a park like area to chill. Grab food from a stand - or go back out to your car and sit and eat a packed lunch or have some snacks. Don’t make a big fucking deal about it, either. Just “oh okay, I think now’s a good time for a quiet break”. Keep in mind all autistics are living in a sensory rich environment, and it can get mega overwhelming sometimes. It’s not always bad shit that sets us off.

I’ve mentioned in prior posts how it can feel like someone else is driving the car (controlling the emotions), while we sit in the back seat and scream and hit and try to get them to stop the fucking car and let us out...it’s in these moments that I TOTALLY understand how doctors got autism and schizophrenia mixed up, in years past. At least, that ripping in half is what my youngest son and I feel. YOU’RE frustrated with us right then? BRUH. WE are so fucking pissed and frustrated and upset that we can’t stop the car, too. You’re not helping if we know you are frustrated, either - that’s why I mention keeping your “vibe” as level and gentle and “no biggie” as possible.

I have some tips for head bangers and stuff, that I won’t include in this post but I’m happy to tell you what I’ve done/what can work.

Basically? “Dealing with” meltdowns is just....TRY SHIT. If you’re an Autie trying to manage your own, play around with what helps you calm down. It could be a brisk walk away from anything human, time under your weighted blanket, time in a dark warm shower or tub (idk about you, but in this house - water soothes nearly anything, most of the time), holding your pet, screaming all the cuss words you know into the void lol ....and the same methods might not work all the time (I was “feeling unsubstantiated feelings” the other day, and got into the shower before they overwhelmed me - a usual go to - but this time, the water felt disgusting, being wet just made it all worse. It surprised even me, but you gotta roll with it & try something else). But try as hard as you can to do something that will soothe you. Or find a safe place to let it all out, without hurting yourself. Pro tip, though: do not add alcohol. It not only takes away all the barriers you’ve probably put up to keep from going completely off the deep end, but it also magnifies all the bad feelings. I am, however, a big fan now of smoking a little green. I started trying that about 3 years ago and oh my god where has this been my whole adult life. I can’t take antidepressants or even most anxiety meds...but I can smoke. I use carefully chosen calming and pain relieving indica strains - sativa can sometimes make me feel more anxious. (YMMV)

If you’re the Emotional Support Human™️ of a melting down Autie, the same applies. Just try stuff. Trust me you will know if said Autie finds your efforts upsetting. It’s ok to want to talk to us about it afterwards, in a constructive way. Once we’ve calmed down, we know you’re trying to help. We’re raw and exhausted immediately after a meltdown though (meltdowns usually lead to shutdowns), so give us a little time, maybe. Or maybe not - maybe your Autie will be in a more communicative frame of mind, since it’s fresh. You won’t know unless you ask, maybe like “could we talk about this, or would you like some time to be quiet?” (Again - gentle tone and energy is important.)

Meltdowns are hard for me to write about because these days, they’re super rare, but when they happen, they’re ...well, brutal. Like really, really bad. I had one a few years ago that I think terrified my husband. We were in the car. I was getting so upset (screaming, beating my fists and probably thrashing a little) that he had to stop the car. Luckily we were in the boonies, but...not long after he stopped the car, I attempted to bolt. I felt trapped in between his efforts to soothe and the small confines of the car, and just wanted to bolt. Run. Far away. There was ZERO thought of personal safety at that point. His efforts to contain me were met with violence. I will be ashamed of that for the rest of my life - I don’t even have words for what an amazing human my husband is, and the LAST thing my non-melting-down brain wants, is to hurt him. But all I could think about was doing whatever needed to be done to escape this hell I was in. God. Just writing about it hurts, and I feel fresh shame. I’m telling you all this, so that you understand that *in that moment*, we are a cornered and overwhelmed animal, who wants to just bite bite bite or run away (fight/flight). The things we usually cling to - logic and reason - don’t exist right then. Nothing is logical - which actually adds to our upset.

There may be a time when your Autie feels like this too - and that’s one time where you DO need to intervene even if we don’t like it/hate it/get furious with you for it. If we are trying to hurt ourselves or run, do what you need to to not allow that. I truly believe this is how many young Autie kids get lost - we were upset and we just bolted blindly. We don’t react well to you stopping us....but it’s necessary.

There’s a moment in the Disney movie “Soul”, where 22 becomes a lost soul. Her little bright blue body is engulfed by swirling blackness, and inside that blackness is every bad or negative thing that’s ever been said to her. She starts looping - “I’m not good enough”, “I have no purpose”, over and over and over. This is what a meltdown feels like. In the movie, her mentor quietly hands her a small token reminder that starts to make the blackness melt away - it’s not the token that “society” thinks she should have, it’s a personal one. Shouting at her, blah blahblah talking, trying to reason with her makes her hiss and run away - but *quietly* handing her a tactile object that means something to her, brings her back to the present, and is what breaks the looping.

Here’s the clip of when he breaks through her meltdown. I hope it explains things in a way I’m struggling to. I’ll end with that...if the subtitles distract you, I apologize, I can’t find a “clean clip”.

https://m.youtube.com/watch?v=nmapZFDUkBk&t=41s

[thistangledbrain]

I’m trying to get used to tumblr’s platform.

If someone comments on your post, can you “like” their comments? If so, how? (I’m mobile.)

[thistangledbrain]

Gonna get 3 days ahead because these are short and easy:

Day 25, 26, & 27

25 - “Symbols”

Quick and dirty: puzzle piece bullshit, infinity symbol cool.

26 - “Favorite Autism Book”

I don’t have one. Am open to suggestions.

27 - “Identity language”

Mine is she/her. My oldest is he/him, my youngest is he/him but that may shift with time.

I don’t like “person with autism” because it’s not a disease. I prefer autistic person.

[thistangledbrain]

Day 24 - “Political Issue”

Do I have to pick just one?! Ok - I’ll go with the broadest stroke I have and say “social justice/equality”. I can actually be quite right of center with certain things like national security/defense & a fair bit of foreign policy - but I’m waaaay left on social issues. Way left. In MY mind, my stance on social issues is fair, just, and equal - but apparently that’s “way left”. 🙄 (I think it’s just human.) I label myself as an independent, because political parties are so polarized these days, and tribalistic. And NO THANK YOU. That being said, I can’t say I find anything in common with today’s GOP - I think their platform is nothing but fear, hate, and more $$ for the rich. There’s nothing of real substance there, especially not for people like us. And even as recently as Reagan, immigrants used to be important, and welcome & stuff. Boy did that change, and not for the better.

Politics is actually a subject that keenly interests me now - and started to with that tiny handed orange shitgibbon that people somehow thought it was a good idea to put in the most powerful office in the world. 😠🙄🖕🏼It’s just that MY life/environment changed very little/not at all, regardless of who was in office - and the military encourages you to be as apolitical as possible. So for years, except for the occasional demonstration for civil or environmental rights, I was quite removed from most politics.

I watch today’s GOP with growing horror, and today’s Dems with growing respect, though. I don’t have to register with any party in my state, so I just don’t - but for all intents and purposes, I’m a democrat, I suppose. (I really don’t want more limiting labels, UGH - which is why I don’t label myself as such.)

I care deeply about equal rights, taking care of those who need it, and so on. I think it’s a trait - one thing I’ve noticed is that all the auties I know are keen on “social justice/equality”. It starts young with us, and probably stems from the empathy that doctors say we don’t have - we know what it feels like to be suppressed and hated simply for our existence. That *does not compare* equally with race issues, though - but it brings me personally close enough that I’m utterly outraged by racism in particular, because on a less severe level, I know that automatic judgment and rejection as a “lesser”. Ableism can also make me rage a bit - and I admit I partook of it a little, back when I was a Marine (“you have NO IDEA what I struggle with under the surface - so if I can do it, you can do it”...boy did life decide to smack the FUCK out of me for that bullshit stance, and rightly so, really)....I’m *slightly* more patient with ableism and slightly more ready to explain why it’s bullshit, because I guiltily remember what it felt like to have such a closed off mind, with that. But racism sets me off BAD. Bad bad.

So I guess none of this came as a surprise, if you know other auties. Especially since most of us are LGBTQ+....

[thistangledbrain]

And here’s Day 23, a day late of course LOL

“Can’t live without”....

Firstly, my little family. My husband and sons are the most intriguing, brilliant, captivating, fascinating, funny, caring and kind, (insert other wonderful adjectives here) human beings I’ve ever met in my LIFE. Of course I’m biased...but...*flaps hands excitedly*....I seriously cannot even adequately describe how much I love my family. 😍 This one probably doesn’t have to be explained that much. ☺️ My friends, too - I’ve made some incredible friends through the years - and kept them. This was almost an alien concept when I was younger, so I am actively appreciative of my peeps who know my “weirdness” and absolutely love me for it.

I can’t live without dogs. Dogs are really the most excellent creatures. To know dogs - in my opinion - is quite similar to knowing most humans at their most fundamental levels. They help me understand people, as odd as that may sound. No other animal has adapted to our nature & understands us more than dogs, either, because we’ve co-evolved for thousands of years. (Similar arguments could be said for cats I guess, and I have both - but I’ve noticed only certain breeds of cat tend to be predictably loyal/affectionate to their people. MY favorite is the Siamese. ☺️)
Any time in my life where I’ve had to go without a dog has been a quite miserable time...any time I’ve had to be 100% animal free (like in the barracks), is positively horrid. (I’ll usually spend time helping train a friend’s dog or volunteering at a shelter in my free time, then. In apartments where it was “no pets”, I quietly kept a tank of fancy mice or a reptile & would hide them whenever I knew maintenance was coming LOL.) Dogs are the bridge between me and neurotypicals...and I have extreme difficulty being comfortable with someone who just doesn’t like them. It’s one thing to not want one of your own, but love your friend’s dogs or gladly pet the pooch at the park...it’s another to genuinely not like them. That is truly alien to me & gives me the heebs about what kind of person you might be - if you’re NT/not Autie. I do understand how dogs can come on too strong to some auties.

Nature. Seriously. I do not do well in the concrete jungle of a city. It’s fun to visit sometimes (but exhausting), but I need more than some little trees in planters along the sidewalk. The city was kinda fun to live in for a little while in my early 20s, but I quickly started to look for suburbs when my first kidlet was born, because parks just weren’t enough - and tbh, babies are loud and noisy on their own, so the additional city noise was....no thanks. When I see these subdivisions though, where it’s just row after row of similar houses and yards, hardly any shrubs or trees or anything at all, I cringe - that’s just as bad as the city. People right on top of each other, no real place to.... well, hide I guess. I’m a private person IRL, and don’t like feeling “exposed” to people all around my home.

My tablet (or phone), because that’s where I write, read e books, and watch stuff. (I think everyone in this day and age is very attached to their electronics too, though.) I escape into David Attenborough, animated movies, or music videos when I’m stressed. We have a nice big TV, but it’s more personal and private when it’s just me, my headphones, and a small screen. Sorta makes me feel like I have a little bubble around me.

Space to create/art. This one I can go slightly longer periods without, if I’m sufficiently busy, but I start to get restless & short tempered without somewhere to create stuff. I’m not one of those solely sketchbook-and-pens types (I was when I was young & didn’t have space/money for more art stuff though)... but now, if you can make something out of it, I’m interested in it. That doesn’t mean just paints & sequins and other typical art/craft stuff, either. It means rocks, lots of wood, bones, random bits of metal or glass or junk I found along the railroad tracks, junky old metal gadgets like cheese graters and spoons, and things like that. And then of course the workspaces and tools to do said projects...so like, I have studio space now, but also a whole ass workshop with things like bandsaws and belt sanders. (I’m relocating it all right now and quite disgruntled that it’s not operational yet.)

Edit: Google. I’m old enough to remember having to write all my questions down to wait until our weekly trip to the library. Now, even at 3 am, I can Google things like “mandrill skeleton”, “Tempest Storm”, “how long do hedgehogs live”, “Fermilab recent experiments”, and “what do baby possums eat”, and help identifying a bird, plant, or flower....and it’s instant gratification. BOOM. I think this is a big one, because I can’t tell you how often my brain is positively eaten alive with questions....and a set of Encyclopedias only gets you so far.

So those are my main ones, I guess. There are a few little ones...mainly my big blue stuffed tardigrade, Dempsey - I sleep poorly without him, and he’s the first thing I grab when I’m stressed...certain blankets or clothing, time to meditate, coffee...things like that, but they’re mostly things that just cause mild(er) discomfort or anxiousness if I have to go without (I haven’t had to go without Dempsey yet though...so maybe he IS a main one 🤔). I get very interested in reading about what others simply can’t do without, so feel free to tell me what yours are! ☺️

[thistangledbrain]

Of course I’m late on my assignments again LOL.

Oh well. Here’s 21 & 22. ☺️

————————

Day 21!

“One thing other people don’t understand”...

😳 Oy. How much do you feel like reading?? 😂

I won’t go overboard. I’m tired, and relaxed.

I’ll go with the first and second things that jump to my mind, because I don’t feel like following the directions of “one” thing. 😝

I don’t think most people fully understand how *differently* autism affects each of us. And I don’t think people understand how many of us are right in front of your face. There’s a post coming up later about famous autistics - and we aren’t talking Temple Grandin. We’re talking Eminem and Anthony Hopkins, and many others.

My gay friends talk about their “gaydar”...once you’re pretty familiar with autism, you may very well be able to easily pick out the neurodivergent folks in your orbit like that - even if it’s not overwhelmingly obvious on the surface. (I’m naturally drawn to neurodivergent people, and lo and behold more late-diagnosed auties keep popping up in my circles 🤷🏻‍♀️)

You know an autistic person? COOL! That doesn’t mean you know autistic *people*. Fuck, autistic people barely know ourselves sometimes. I saw a post that said “I love saying ‘my brain went’ instead of ‘I thought’ because idk what’s going on up there, sometimes I just live here” and I’ve rarely related to something more in my LIFE.

Or some dipshit saying “you’re autistic? You’re nothing like my 11 year old son!” Well...that probably has to do with the fact that your SON is *eleven*, and I am a 44 year old woman - who’s been living in a ND brain a little longer, besides. It sometimes completely stumps one of my general doctors how I’m nothing like his 19 year old son...and I’m so “NORMAL”. 😐 I don’t speak in monotones, I can make eye contact, I don’t seem particularly tense or stressed. Like, what exactly do you expect to see in a 15 minute office visit for a physical checkup? My mama taught me to be polite and professional at the doctor’s (she was a nurse for many years)

So give us auties a chance - get to know us as individuals - just like you’d do with anyone else. And remember - just because YOU experience someone’s autism mildly, doesn’t mean THEY do. xx

———————————————

Day 22 - “Dispel a myth”

Well, I’m tacking this on to Day 21 because they’re related, though the above is more misunderstanding than myth.

I will say, it’s a myth that we’re all math geniuses, or play several instruments, or are some sort of savant like Rain Man. Sure, lots of us are particularly intelligent and lots of us are particularly talented. But not all of us - and those of us who aren’t extra awesome at any particular thing tend to think we should be, because of the NT stereotypes - which adds pressure to be someone you’re not, and that sucks ass. I met a couple kids like that a few years back. They felt they were “lesser” because they had no particular skill or talent that stood out. Neurotypicals who are like this, don’t seem to spend much time thinking about it - but auties sure do.

So take it easy on the stereotypes and expectations, would ya? We pressure ourselves enough. 💕

[thistangledbrain]

Day 19 & 20!

Day 19 - “I hate it when...”

As you’ve gleaned from prior posts, I hate it when you forget autism is a developmental disorder and not an intellectual one. We are so. Fucking. Tired. Of being treated as lesser, or like we don’t understand what you’re saying to us.

Outside of the reactions to others’ behavior, though, I have some personal “I hate it when”...I’ve let you into my mind and told you what I appreciate about how my brain works, but there are things I don’t like, for sure.

I hate that personal stressor things trigger a toddler-like need to SHUT DOWN. Like writing this blog, for example...the vulnerability I feel usually leads to a need to go to sleep for a long time, once I’m finished. Or after a long day socializing. I don’t want to talk to anyone, I don’t want to engage my brain anymore, I just need to shut all systems down and sleep. Especially if there’s been a meltdown (meltdown—->shutdown)...and oh boy do I hate meltdowns. They’re really rare, thank dog.

I hate that my executive function is an absolute bag of ass. This is probably the biggest thing I would change. It got infinitely worse when my disability got bad (EDS), for some reason. And it drives me up the damn wall.

I hate my low function days/moments. It’s like my brain just won’t kick into gear, or the gears and wheels are rusty and grinding, & it’s rather anxiety inducing. I usually “hide” on my low days, sometimes in my darkened bedroom, and watch favorite shows or movies, or get lost in a good book - if I can. On low days I find myself re-reading crap constantly because it’s not making any sense, so I’ll even avoid complicated recipes...I have no idea why these days/moments happen, but boy do they piss me off/make me anxious (that’s kind of the same thing for me. My anxiety nearly always manifests as anger). On my low days, you’ll see (if you were a fly on the wall, because I suppress this even around my own family), me walking in tight, anxious figure 8’s and flapping my hands in a distressed way, as I anxiously try to mentally kick my brain into gear. (It doesn’t work, but it IS a little soothing. And my dogs are SO sweet...they gather around me tightly and just seem to know I need them.)

🤷🏻‍♀️ There’s probably more I could expound on that I don’t like, but writing this one has been pretty distasteful. I try not to dwell on things I hate anymore, so I’ve put this entry down multiple times and come back to it when I’m in a decent frame of mind. I think I’m tired of talking about it now, so I’m gonna just stop talking.....

Which is a good segue into Day 20 -

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“Communication”

Ahh communication. This entry will be long, because I have a lot to communicate LOL....

Personally, I write far more coherently and eloquently than I speak. My brain goes too fast...I often trip over words; my brain’s three steps ahead of what’s coming out of my mouth and I get scrambled sometimes. I can also take the time to think about what I want to say/HOW I want to say it. Like many autistics, I’m a blurter. LOL...I am constantly trying to remind myself, just because I think it, doesn’t mean I have to say it. This gets a LOT of us in trouble...one of my most memorable examples is, I *loudly* blurted “that’s BULLSHIT!!” in a church one time. (I was speaking on how my devout Methodist grandmother, who regularly takes communion at her church, was not permitted to receive communion in a Catholic church, merely because she isn’t Catholic, despite the fact that this woman is all about some Jesus & a devoted churchgoer - not just on Easter and Christmas.) In my defense, it WAS (IS) bullshit. I just didn’t need to practically yell that in church. As you can imagine, it was like a needle scratching across a record & everyone turned to stare. (My poor husband rescued me.) 🤦🏻‍♀️ Sigh. It’s a good idea to keep me out of most church services.

I am rather famous (infamous?) for calling bullshit straight to someone’s face, BLUNTLY. It’s out of my mouth before my brain’s “tact gatekeeper” I’ve spent over a decade trying to train is even half awake at his post (it’s a him because my husband is the one who taught me how to use tact in the first place. And it’s a him because said “gatekeeper” is lazy and falls asleep on the job all the time 😆). Have you ever just blurted your honest thoughts and heard shocked gasps or someone just busts out laughing? Yeah. That happens to me regularly. Or uncomfortable chuckles and someone will blink a few times and say, “oohhhkay, well, you could said that a different way.” (My old response to that was, I’m not responsible for what your reaction is to what I say...you’re in charge of your own feelings. I *understand* now how irresponsible and unfeeling that is, and I try to keep that in the front of my mind, even when I’m frustrated and nearly burning up with the desire to speak my thoughts in their raw form, but this is routinely an area I struggle to adapt to...and I am very sorry when I hurt someone I care about.)

On the other side of this same coin though, this is a trait my friends respect deeply, because I’m not cruel hearted or anything. You always know where you stand with me, and I’m the last person to try and lie to you. I SUUUUUCK at lying. And on the rare times when I do, I usually end up eventually telling on myself (this drove my older stepsister NUTS when we were kids, because she liked to do lots of sneaky things, and I don’t have an inherently sneaky nature LOL...so “DO NOT tell momma” was a *serious* risk for her, if she let me tag along 😂). Lying to someone just feels disgusting. Oily. Shameful. I hate lying. Plus, my short term memory is a grabasstic bag of CRAP, so there’s a good chance I won’t remember the lie and get caught anyway. 🤷🏻‍♀️ My boys also suck at lying or hiding stuff, and generally prefer not to...but I also give them a safe forum to be honest. (I’m sure there’s LOTS of crap I don’t know, but you’d be surprised how much they DO tell me.)

Another thing with me personally is that I go mute sometimes. I’m not being deliberately obstinate. I’m not REFUSING to speak in those moments...sometimes I literally can’t, and the effort of doing so will make me gag, or even projectile vomit. Sounds very dramatic, doesn’t it? It is. (And it annoys the SHIT out of me.) There’s not a fucking thing i can do about it. The movement of my tongue in my mouth will literally begin to trigger my gag reflex, and if I try to power through it, I’m rewarded with my lunch returning to the surface anyway, regardless of my desires, and sometimes rather unexpectedly & violently. USUALLY this happens when I’m uber stressed, but sometimes it seems kind of out of the blue & catches even me off guard. If this happens but I still have something to say, I start texting instead, and explain. Most people - especially my hubby - are very kind when this happens. (I don’t want your pity, I just want you to switch to written communication for a minute until I can figuratively kick the fuck out of the engine in my “speaking center” and get it to work again.) Other times, I will literally get tired of talking. Like my mouth and tongue - and somehow, the “word forming” part of my brain feels physically exhausted (weird, I know, but I also spend the vast majority of my life silent - I am home alone all day, hate talking on the phone, and simply don’t speak much, by choice. So maybe it is actual “mouth fatigue” 😂😂😂 - I’ve stopped eating before because I just got tired of chewing, too, even though I’m still somewhat hungry. 🙄) I am usually *perfectly* happy to keep listening! And I’ll stay engaged in the conversation usually. I am just...done audibly talking. I’ll literally say “my mouth is tired of making the sounds now, but please keep going”...but I think my husband is the only one who doesn’t find this unusual, and rolls with it. It usually happens after a long, animated conversation...instead of winding down, though, it just..stops. If I try to keep going, cue the gagging. I can stay engaged in the conversation if you let me start writing/typing instead of speaking, for my responses. So that’s a “fun” little trait of mine that many neurotypicals find unsettling. Please don’t take it personally. My mouth just doesn’t want to make the words anymore - and I’m probably mostly done adding what I needed to add to the conversation anyway. I’m a great listener when this happens, though. 😆

Communication is a really interesting thing with all of us, because it’s a struggle on one level or another. I will tell you, it’s a frequent topic in my groups. “WHY CAN’T NEUROTYPICALS JUST SAY WHAT THE FUCK THEY MEAN?!?! 😩😩😩” I’m dead serious - you might think, because we’re sensitive (generally), we can’t “handle” it? You’d be so very wrong. What we can’t handle is when you dance around a subject or we have to try and translate what you just said to us (which most of us are not that good at). Just fucking say it! Nine times out of ten, you’ll just get a look of dawning realization and a “oh, shit, okay” response. We can handle it. Just. Say. It. We’ll respect you a lot more in the morning, LOL 😆

I think every autistic has some sort of beef with neurotypicals when it comes to communication (as I’m sure you have yours with us, obviously).

You guys operate under some weird ass rules that we simply don’t understand - especially if you don’t tell us those rules & just expect us to know. Like, if my husband hadn’t patiently taken years to show/teach me how the way I said certain things were hurtful, I would still be in the “yeah she’s cool but she’s kind of an asshole” territory. (I still struggle to grasp this, or at least it still frustrates me....truth is truth, whether it’s an ironclad general fact or your own personal truth - and yes sometimes the truth hurts, but like...I don’t pin any responsibly for that on the truth teller, if that makes sense?)

Working in rescue also helped hone my ability to speak “neurotypically” to others - I work with a LOT of women, and boy do a lot of them NOT appreciate when you bluntly tell them what you think. Men on the other hand....

I know *lots* of autistic women who prefer friendships with men, largely centering around this communication thing. We hurt men’s feelings a little less regularly than other women’s. I know I was like that, until I got a little more used to how I have to modify my communication with most women (but that annoys me, I’m gonna be honest - it annoys my Autie friends, too). The only time I am as starkly blunt as I used to be, is when speaking to my female Autie friends (because they can handle it), or most of the dudes I’m friends with. But if my message is getting “lost in the sauce” and you’re not getting my point, I usually give a frustrated sigh, WARN you that I’m about to tell you flatly what I need to say, because we aren’t getting anywhere, and just say it.

Yes I am the friend who, when you gush on and on about your new back yard bred puppy, talking all about how you’re gonna breed him when he grows up, is gonna flatly say “he’s not breeding quality”, if they’re not. Then I’m gonna ask you why you want to do such a thing, given that you’re aware of the massive load of rescue dogs (PARTICULARLY Great Danes and Cane Corsos) - and probably beat your argument down every step of the way. That doesn’t always go badly though - one of my closest friends was considering breeding their dog, and while it was a beautiful dog, it was not one that should reproduce (from an “improve the breed” perspective). We barely knew each other, but I gained a reputation for being kind but starkly honest...and I knew what I was talking about...and now I have this person’s deep respect, and they have mine (because they listened and did the research I asked them to - and did not add to the breed population). So it’s not *always* a trainwreck, because the people who end up respecting how I communicate, usually end up VERY close friends. AND I WANT THAT IN RETURN, which is refreshing for a LOT of people. I want your dead honesty in return - PLEASE. It’s so much easier for me to process and accept. For example, my house is almost constantly in some sort of disarray. I have one friend who will come in and go, “girl. I almost can’t breathe in here - this clutter is too much”(and then she offers to help me tackle it!!).

Or, fairly recently, “oh my god those curtains are so horrible, I hope you’re getting rid of those when you redo this room.”

“But I MADE those curtains! I love that print!”

“Ugh. No. They’re terrible. Get rid of them.”

My feelings were not hurt in the LEAST (I of course had a flash of “you bitch, I was so excited to find that print and I MADE THOSE, ya jerk” 😂). At first I said, “well you’re just gonna have to suck it up and deal with my shitty curtains, because I like them” 😂, but then as I was redoing the room, I took them down...and it DID look a lot better, so I left them down 😂😂😂....

So I guess my point with all this is: every autie I know deeply wishes you’d just fucking spit it out. We WILL often miss or misinterpret the point if you “fluff” it too much (around my neck of the woods, we call it putting too much gild on the lily, though I’ve never understood that one. Idk if a “gilded lily” is/was ever a thing, why anyone would gild a lily in the first place...LOTS of us struggle with colloquialisms that don’t make literal sense. 😆 Recently a friend was baffled over “shit in one hand and wish in the other and see which fills up faster”, and fully half of the respondents to her post were people baffled by why anyone would shit in their hand - I and a couple others had to explain, and it just ended with them going “well that’s a fucking stupid saying anyway, and wishes aren’t things you can put in your hands, either” 😂😂😂...but I’m from the south, and these things are just part of our vocab. MOST of them are easy to grasp for me, like “nervous as a long tailed cat in a room full of rocking chairs”, because I immediately picture it and can grasp the meaning. But others I don’t get - the gilded lily is one LOL)...

We are LITERAL AS FUCK. It’s why we ruin lots of jokes, too. My poor husband is the dad joke king - and I ruin fully 1/3 or more of his jokes by being too literal (which he also finds amusing, so that’s good). Sometimes we realize we’re ruining the joke but we don’t care, because it’s dumb, or we just .... can’t....HELP IT. 😩😂

Jeez, I could almost write all day about autistics and communication LOL!!

But to summarize (and not succinctly, sorry), I guess, for me and many many others...we are often blunt, direct, almost painfully honest, and very, very literal. Your unspoken rules of communication absolutely go over our heads, unless you - yannow - *communicate* and explain them. We’ll probably tell you those rules are stupid and exhausting, but we will TRY and stick to it as best we can. But see, we literally have to think about every single word that comes out of our mouths, because we communicate far more directly than you weird fuckers do. And it is literally actually exhausting. It’s not an easily natural thing for us to adapt to, your weird way of saying things but not saying what you really mean. You’re wasting a LOT of words there, sir, and we are now getting obsessively confused over why you would do such a thing. 😂 It’s also why I keep getting banned from Facebook. My recent one was because I said - in one of my Autie “safe” groups, where I should be able to just say what I mean - that I tend to punch or want to punch people who deliberately startle the shit out of me. We were talking about how stupid April Fool’s Day was, and how we hate pranks. Three of us got banned for 30 days for just...well. Facebook called it “incitement of violence”. 🙄🥺🖕🏼🖕🏼🖕🏼🖕🏼🖕🏼🖕🏼🖕🏼🖕🏼

But I haven’t met - yet, maybe? - an autistic person who is cruel natured - not one of us gets any joy from being a bully type. WE feel everything on a higher level, so we kind of assume you do, too...you might think, “then why are you such an asshole?!”, but it’s simply that we - or every Autie I know, anyway - struggle to grasp how directly communicating your feelings is so fuckin hard or hurtful for y’all. I think anyone struggles to grasp something they themselves don’t experience. All you have to do is explain, though, and keep guiding us towards communicating in ways that we both find acceptable. I mean we’re champs at accepting all manner of different human - regardless of race, sexuality, and so on - but the communication is one area that frustrates the ever loving SHIT out of most of us, because it makes so little logical sense why anyone would say a bunch of useless words that muddy up their intent.

My closing advice? Help Your Pet Autie ™️ (this is absolutely a tongue in cheek term btw) understand how you’d like to be communicated with, and guide us. BE SPECIFIC for fucks sake - we suck at guessing what you might want, and it’s so frustrating that we’ll often just stop communicating at all. Instead of saying “it hurts me when you say this”, try saying “the WAY you said this hurt my feelings because of ____. Maybe you could put it like this instead” (or, “you know, you should really just keep shit like that to yourself”) and *give examples*. Don’t expect us to come up with different ways of saying shit, because we don’t understand what it is specifically you want, and it’s not very logical, therefore it’s not “natural” for us. Plus, everyone is different. I can’t talk to one of my sons the same way I can talk to the other, without certain negative reactions. Give us a chance to know your needs - we DO CARE!!! - but be CLEAR. I know in your world, tact is a big deal, but MOST of us will miss the fucking point if you’re too tactful (and when we misinterpret, we always err on the side of worst case scenario, and make the issue wayyyyy bigger than it should be. Being clear is soooo important).

And hey. Maybe it’ll help clear up some communication in other areas of your life. Being clear isn’t a license to be a fucking asshole; nobody’s giving you a license to unleash on everyone about how much you can’t stand humans...if WE hafta be quiet about that, so do you lmao...fair’s fair. 😆 But quit hedging and hinting and hoping we will pick up on the whatever your grievance is - because we won’t. We’ll just know you’re unhappy, and start panicking over guessing what we did wrong, and just shut down, because we have no idea.

Just. Fucking. Say it. 😘

[thistangledbrain]

Deliberately lumping 17 & 18 together this time, because 17 isn’t that big of an entry.

Day 17 - “Accommodations”

So from a *personal* standpoint, I need few or no accommodations, as I’ve learned to make my own & have my own coping skills - when you spend most of your life not even knowing you’re autistic, you’re less likely to ask for something to help you with “your weird hangups”.

But younger auties often DO need accommodations- like being allowed to wear headphones/muffs in school, having a quieter testing environment, smaller classes, and so on. And obviously, the more you struggle with certain aspects (like loud noises or crowds), the more accommodations you’ll need.

I admit I don’t have much experience with the kids who truly need the total SPED environments. *Most* (definitely not all) kids I’ve known have all been capable to a degree of adapting to a NT environment. It’s *exhausting*, but possible *most of the time*. So since I’m a child of “suck it UP!”, I’m unfamiliar with this outside of simple accommodations I asked for, for my youngest, when he was in his earlier HS years - like headphones being allowed, and letting him keep his cell phone on him so he could quietly text with me if he was having a rough day & we could walk through it together. As he’s progressed through high school, he’s needed these accommodations less and less. I’ve noticed as my boys have edged through puberty, they leave more and more of their younger struggles behind them.

Your results may vary, of course.

———————————————

Day 18 - “Someday”

Hm. Boy, that’s ambiguous. Maybe I’ll take this one on from a couple different angles.

Someday I hope NTs understand autism better. Someday I hope each autistic person can be judged on their OWN PERSONAL strengths and weaknesses, like NTs are, instead of lumping us all together and deciding we can or can’t do something, based on the fact we’re autistic. For example, I know *plenty* of autistic musicians who play in bands ranging from death metal & punk rock, to smooth jazz. “But I thought autistic people couldn’t handle loud sounds!!”, you exclaim. Yeah, and some of us can. Also, not all loud sounds are created equal. Or sounds in general. A good example for me is, I occasionally jump and let out a little scream when the toast pops up 🙄, but I don’t flinch at the sound of gunfire - because I love to target shoot (I do not hunt), and it’s something I’m really good at, so I enjoy it thoroughly. (I’m not going to get started on America’s gun violence problem because it enrages me. I can rant about that allllll day & already deleted two paragraphs doing just that. This was just a convenient example.)

I’ve been thinking about this a LOT lately, actually. We have our own hurdles, without NTs adding to them, anyway. But I think about “what if I knew I was autistic, before I joined the Marines? Would I still have been as determined?” YOU’RE DAMN RIGHT...BUT I would have hit a brick wall, because they wouldn’t have let me (if I was honest about it, anyway - I’m telling you right now, if every applicant was 100% honest about their background, almost NO ONE would be accepted). So what happened? Well - I was a damned good Marine, that’s what happened - because I didn’t let *anybody* tell me I couldn’t do something. And as I mentioned before...for certain types of auties, the military is actually a pretty fucking brilliant, comfortable environment that we literally thrive in. Again - we are all different. So this “someday” one is BIG for me. Someday I hope we are judged individually on our merits, someday I hope we are looked at through the lens of what we CAN do, versus what *someone else* thinks we cannot do. I have YET to meet an Autie who doesn’t go “OH YEAH?!” when we’re told we “can’t” do something because of our autism. (We might not always succeed, granted, but we really hate being told we “can’t” do something, based on what YOU think we can and cannot do.)

Someday I hope autism is actually celebrated, instead of thinking it’s some sort of scourge. I hope to see that happen in my lifetime.

Someday I also hope that people (the doctors and psych folks and whatever) realize there’s actually a *considerable* difference between male and female autistics - which is why females are so often diagnosed late in life, because we “don’t fit the profile”. I also hope they realize that some females are more like males, and some males more like females, as far as the expression of our ASD. In other words - back to HOW ABOUT YOU EVALUATE US INDIVIDUALLY, FFS. I hear all this shit about how “autism is a spectrum”, and it just seems like lip service - if you KNOW it’s a spectrum, then why are you still trying to pigeonhole us into the DSM-5 definition or whatever, and operating inside generic parameters?? Auties are the most complex human beings you will ever meet in your life - and I stand FIRMLY by that - so your attempts to shoehorn us into your basic understanding of it is frustrating as FUCK. Infuriating, even. No wonder we fight you so bad when you try it. How would YOU like it if we decided that every middle class blonde woman is a “Karen”, and treated you as such? Or if we decided everyone with brown eyes are slow and we should treat all of you brown eyed people the same, like infants? You’d be like, “what the FUCK?” Yeah. It’s a lot like that.

Someday, I hope more therapists understand the autistic brain better, so they can be more helpful. Sometimes the same advice you’d give a NT patient struggling with an issue (let’s say, the death of a loved one or executive function) just won’t ...WORK...for an Autie. As it stands now, most therapists I’ve known go straight to ABA, and that gets frustrating when you just need to let it all out so you can re-center and actually have a discussion. Speaking of ABA, someday I hope teachers and doctors and therapists understand the resentment and feelings of being “wrong” or “bad” that result from ABA. SOME of it is necessary I think, but mostly, all it does is teach repression & lets us know loud and clear that the way we are is “wrong”. I desperately hope ABA is reevaluated - with the input from ACTUAL AUTISTICS. Using ABA for to overcome a problem like, say, potty training or something, is often seriously necessary. But potty training isn’t part of *who we are*, if that makes sense. Most ABA is basically like putting your Autie kid in a dog training bootcamp, with little to no thought about “what makes that kid tick”. It’s all about training you to act in a way that NTs find acceptable (and I have lots and lots of cuss words about that........) I don’t even train DOGS like some schools or therapists train auties. Dogs aren’t beings to dominate, control, and condition to act in ways I find pleasing (but I’m also not a “general trainer”...I’m on the behavior side of things). They’re sentient beings who deserve to have their personalities discovered, their traumas and their hangups, and THEN we work inside THAT dog’s parameters until we’re solid...*then* we start working on pushing them outside of comfort zones and such. AFTER that trust and understanding has been laid down as a solid foundation, for *that specific dog*, regardless of my experience with past dogs (though I do rely heavily on past experiences of course; knowledge of what did and didn’t work with some other dog similar to the one I have now - that sort of thing - but every dog is a whole new being to me...because, well, they actually *are*). Nothing is “cookie cutter”. Every dog is a brand new exploration. I understand that’s putting a lot of pressure on SPED teachers. I understand they’re baffled when I tell them ABA sucks as a because they see “positive results”. Sure - you see positive results in your ability to repress that child. Positive results in the fact that they’ve now learned to hide themselves from you and others. It seems the current ABA methods don’t necessarily teach any sort of useful skills for actually adapting to the flow of the NT world for that kid - just how to repress who they are, so they fit in. In other words - ABA is successful for the NT world - not us. It actually depresses the shit out of me to think about how teachers and counselors view the rocking and flapping kid they’ve now trained to sit quietly in class feels like their work is successful. You didn’t help that kid - you BROKE them, you broke their spirit, you broke who they are. That makes me so angry. Same when these so called “star trainers” can force or intimidate any dog to performative good behavior. Same as the difference between how native Americans train their horses versus how Anglo Saxons or others did/do. In the native culture, we call it “gentling”. In AS culture *it is LITERALLY called “breaking”*. I’m not kidding - look it up.)

As for my personal “someday”....

Someday I’ll write a book about my adventures & struggles in life and what it was like inside my brain through each one. It’s not that I think I’m anything special, but I’ve been asked to do this, and the reasons were pretty logical. And I do love to write, usually. Or maybe it’ll be a book about how my autism is a HUGE advantage in “my line of work” (the dog thing...being sort of more of a dog/human “guidance counselor” than a trainer - since I hear your voice and feelings, and I also hear your dog’s, I’m less of a trainer and more of a bridge between the two. An interpreter, but also almost like a marriage counselor too LOL). I think that’s my biggest “someday” and the only one worth mentioning, because it’s such a huge goal...most of my other personal “someday” stuff, I eventually kinda go “well fucking why not TODAY, bish?!” and I just...DO it.

But generally, someday I hope it’s understood that no two autistic people are alike - but we share enough commonality that it’s possible to understand we’re basically in a different category of people from “normal”. Someday I hope NTs in general drop their stereotypes and get to know us one on one. Someday I hope people realize and understand that even nonverbals are whole ass human beings, with thoughts and dreams and opinions and a whole complex personality that you missed, because you were too busy judging the fact they can’t speak like you do.

Someday I hope you realize we *enhance* the human experience, we don’t detract from it. Someday I hope you realize we are not BROKEN, we are just different. Someday I wish you’ll stop being so smug and stuck up in your “normally functioning brain”, and stop PITYING us. For fucking what??? Experiencing life in a much more complex and deep way?? Bruh. We pity YOU, too. Your world perception often seems dull and wasteful. Limited. OPEN UP - there’s a whole universe out there that you haven’t even explored. So, someday I hope we can enhance each other’s human experience, like my friends and I do. I’d love to see that on a larger scale.

Someday.

[thistangledbrain]

Day 16!

“Work/school”

Well...EDS robbed me of my ability to work 3-4 years ago, but I can tell you about prior stuff.

I started off going to college right out of high school, but realized I was just burning through money, because I had no idea what to major in - I have *too many* interests, and most of them don’t really translate to a well paying job...not enough to warrant the expense of the education, anyway. If higher education wasn’t so expensive in this country, I would be one of those people who just sort of...collects degrees, though. I daydream of that often...but, thanks to my oldest son, I’m sort of vicariously gaining a bit of higher ed in Physics, one of my *favorite things evarrrrrrr* (but I trip so badly over the math, so idk if I’d ever get far, myself). He sends me pics of his notes, video clips, and when he’s home, we love to sit down while he walks me through all the equations and the processes (and when he explains them to me, it helps him get an even deeper grasp of it sometimes, so it’s good for both of us ☺️). Quantum physics/mechanics and theoretical physics are 🤯 to me, and I can’t get enough! Astrophysics is pretty damn cool, too. One of my favorite things ever is when we nerd out together on this stuff. I remember when he was in high school and first started being interested in it...I was so excited I could barely contain myself (I was already very much obsessed with these sciences), and watched with delight and excitement as his passion grew. I remember he brought home this like 10-15 question beginner physics quiz he took when he first started, that he handed to me. “Can you answer these?” he says, as he hands the paper to me. “Fuck YEAH I can!!!” So I excitedly went down the list - there was only one question I wasn’t sure about (and I think it had to do with thermodynamics but I don’t quite remember)...I just remember HE got so excited that I was already familiar with stuff (like particles and waves), and it was in that moment that we just...gained this incredible connection that still makes me feel all gooshy inside. Physics isn’t the only science that gets me excited, but I’ve written enough about that for now 🙃...

So. Yeah. Maybe someday I’ll win the lottery, go back to school, and probably just stay there LOL...

You guys have already heard me ramble about the Marines, so I’ll leave that part out...

So my work history is similar to my school history, I guess. Rather scattershot. Since I know my keenest interests won’t make me a ton of money (without a degree) or aren’t really necessarily *career* choices, I’ve been fairly comfortable with...idk. Trying things out that I wanted to do, because being rich and having “things” just doesn’t...well, I personally don’t understand the draw, and it has never been a real goal. I’m flying high if I can pay the bills on time LOL...I have to leave the rest of the financial planning to someone else, because I just...don’t...care enough. The things I care about in life *require* money (what doesn’t), but obtaining personal wealth just to have more of it/more “things” baffles me (you can do your “grind” to have your “fat stacks” - my interests lie well outside of material gain, and this is something we just won’t connect on. Your Birkin bag and sweet ride mean positively zero to me as far as how I look at you as a person...except for the fact that I think it’s bizarre for someone to spend tens of thousands on a purse or shoes, and I question their logic lmao). I’m not sure I’ll ever know what it feels like to just want to be rich, and damn near kill yourself to obtain that big house and nice cars and designer clothes or whatever. I like nice things too, but frankly I’d rather actually live my life? I’m not gonna be here long...it makes zero sense to me to break myself for the material gain of “things” (and people who do that, actually upset me a bit. I feel like they’re missing the point....or, it makes me sad to think that their existence is so empty that things like labels and status symbols are what they’re hyperfocused on, what matters the most to them). That being said, I DO enjoy the *immaterial* gains - respect, love, making animals and humans happy and whole, growing my mind, sharing my experiences and knowledge for the benefit of others. This probably sounds way too candy coated and cheesy to believe, but it’s easy to prove through my actions. This is *genuinely* what matters to me.

My first couple jobs were not my speed, but I did learn a lot about how companies run (from an administrative & bookkeeping standpoint), and that’s been sort of my “fall back on” career, since - but it makes me really, really unhappy to be stuck behind a desk, even if the work is fairly interesting or challenging. I’ve also been a horse stable manager, an exercise jockey for race horses (shattered pelvis ended that venture though), worked in an exotic pet store (I LOVE reptiles!!!!), and dabbled in nearly every trade in the construction industry (I am the quintessential “Jack of All Trades, Master of None”)...eventually landing in a position that I was very comfortable with - superintendent/jobsite manager for a smaller residential company. The job was always different from day to day, so I had little time to get bored. I guess that’s the big hangup - i don’t like being bored at my job. (I don’t like being bored, period, but rarely am...even though I live out in the middle of nowhere and don’t have gainful employment anymore. I have tons of interests involving animals, art, and building/creating, plus I love to read and learn. Or take walks through the woods and photograph tiny environments. Train and rehab dogs. Remote train and help people as far away as the UK. If I’m bored, I’m probably just being lazy.)

I’ve realized - and come to learn that many auties share this with me - that working alone or with a very small group of people is ideal. We all have our different strengths and interests, but jobs that keep our brains engaged and keeps us out of “general human traffic” are much preferred. I often wonder how many auties are also actually add/adhd, or if it’s just another facet in our prism. 🤷🏻‍♀️ It’s both a bane, and a boon, depending on the situation.

You’re HIGHLY likely to come across *a lot* of Auties in STEM fields...or lurking in warehouses and stockrooms, content to be left alone with their thoughts or music while they sort and pack. There are also a crapload of autistics in the creative arts - writing, music, acting, painting, and so on. You are UNLIKELY to find many auties in mundane tasks that require little thinking, long term.

One of my favorite bits from a Temple Grandin lecture was something about how over half of NASA would be gone without autistics, and back in caveman days, it wasn’t the social gabby gabbies around the campfire who were thinking up new tools and weapons - it was us antisocial weirdos off to one side whose brains *just never shut off*. 🤷🏻‍♀️ This is why I struggle to understand the people who think autism is some sort of ...horrible plight that’s descended on the human species. You’d be screwed without us, and I don’t care if that sounds arrogant, because it’s true. We might be weird and make you uncomfortable sometimes, but we do some DAMN cool shit. We just might prefer to do it in ways that don’t make sense to you. It doesn’t HAVE to make sense to you - WE don’t have to make sense to you (and we probably won’t anyway, so why do you keep trying? Try just accepting instead).

I’ve been slowly collecting links to Autie blogs, artistic works, scientific contributions, and so on. When I’m satisfied that it’s a broad cross section of who we are and what we do/contribute to society, I’ll share it...but in the meantime...

We might be more comfortable within certain parameters (like, “can I please keep the fluorescent lights off in my office”), but shoooo lawd, don’t sell us short on anything else. Just cut us loose and let us do our thang. ☺️

[thistangledbrain]

I’m writing when my schedule allows! Sorry I’m having to lump days together- but here’s 14 & 15. ☺️

Autism Acceptance Month

Day 14!

“Routine”

Good topic!!

We love routine & structure. Breaks from said routine should come with plenty advance warning, usually, because even if it’s an activity we love, if you spring it on us suddenly, we will likely be less than thrilled. (For example, one beautiful summer morning we approached my youngest and said “let’s go to King’s Dominion today!”...he was about 8. KD is one of his favorite places. But he had already started gaming and was *pissed* about the change of plans. I myself only have two scenarios where I take a sudden change in plans in stride: military/high stress situations, and if it’s my idea. Like if I go INTO a situation knowing things might change on a whim, like chaotic times or what to do on any given vacation day, I usually roll with it really well.) Some auties are better with this than others - remember, we’re all different - if you’ve been reading along since the beginning, you’ll remember I said we all sort of have a “mixing board”, and specific traits are at different levels in different people...and it also tends to ebb and flow as we age.

“Routine” also encompasses what we expect in our immediate environment, to me. I remember when I was a kid and my Momaw (grandmother who mostly raised me) changed her frames on her glasses from those black hornrims to more delicate frames, and the lenses were a different shape, too.

Oh. My. God. I hated it. I HATED it. To this day, I scowl when I think about it. It upset me so badly. She was my rock, my steady - and when her appearance changed, I had a very visceral reaction. I don’t remember if I was ever able to articulate what was wrong, but she must have figured it out, because from there on out when she changed her glasses, I was involved in picking new ones. (That made it SO much easier to accept.) On the same topic, my husband has kept his head shaved since well before I met him. He was still in the Marines when I met him (I had just gotten out 3 months prior), and the man I fell in love with had a shaved head and clean face. Since he’s gotten out, I get uncomfortable when he lets his hair get too long...I’ve gradually come to accept and even appreciate his goatee, but when the rest of his facial or head hair gets long between cuts, it makes me squirm. I am usually more distant when he’s all shaggy - it’s not that I think he looks bad, it’s just that it’s not my familiar guy. (Oh and it *is* a sensory issue. I hate the way facial hair feels when it touches my face - mustaches are particularly offensive.)

But back on “daily routine”....this intense love of the structure *again* comes in handy with the behaviorally challenged and traumatized dogs I work with. (Oh yeah - it came in handy raising two autie boys, too, obviously.) I’m hyperobservant of dogs’ behavior & realized early on that disruptions in routine caused upset or even chaos. Dogs who were not destructive became destructive. Dogs who were calm and measured became frantic. So even when *i* get more relaxed about routines, I am cognizant of the fact that it upsets *them*, and we make adjustments for that. Structure and routine are the bedrocks of working with a “broken” dog. Predictability is key until trust and confidence is gained.

Our love of routine and structure also comes in handy in the military. Of course there are times when a lot of unexpected shit happens, but like...you still have a *mission*, if that makes sense, so shit that happens while accomplishing that mission is whatever (again, same with dogs). Adapt and overcome.

But let’s talk just daily (civilian) life, right?

If I don’t set my alarm early enough to drink a good bit of coffee (slowly and undisturbed) and get used to the idea, for about an hour, that I’m awake and now must Person, it’s a bad day, ‘tater. I don’t care if I have to get up at 3 am to have that hour before work or travel, I NEED that hour. Sometimes I wonder how I made it through motherhood...(I guess once again, when it’s important enough, you just suck it up, buttercup). I also have my evening routines that are important, as did my kidlets, growing up.

Screwing with those routines usually means short tempers, hatred of everything around you, sometimes meltdowns, and just an all around bad time for everyone involved.

So if you have auties in your life, understand that they may *need* that nap during that *specific* time of day, meals should be in certain timeframes, and so on. We all have our little rituals, too, and when those are disrupted, we get disgruntled. We tend to resist changes...even introducing a new food dish or, say, not having spaghetti on Tuesdays when you usually have spaghetti on Tuesdays, your favorite mug not being available for use/lost/broken & now you have to use a different one, not getting to shower before work if that’s your usual, things like that can cause MASSIVE anxiety. I don’t know about other people’s Autie kids, but I know MINE handled routine disruption/change *so* much better when *involved* in the change. Like, sorry that it’s bedtime, but you have choices in what jammies you want to wear, what story you want read, and so on. I know I’m making a new thing for dinner tonight - how about you come help me make it? Stuff like that.

So...I’m ending this post rather abruptly awkwardly & I’m aware it’s a little redundant and scattered, but it was written over the course of 2 days because I’m busy with a dog and a stressed out teenager lately. 🤷🏻‍♀️ Sorry about that!

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Day 15!

“Everyone should know”...

I could probably keep adding to this post daily. Sigh.

Everyone should know even nonverbal autistics have something to say - you should read their blogs & find out. Everyone should know it offends and hurts us when you treat us as lesser somehow - especially if we know we’re smarter than you, to be frankly honest. Everyone should know autism is a *developmental* “disorder”, NOT an intellectual one - the weirdest, hand flapping, rocking, screeching, seeming mess of an Autie might be one of the most brilliant writers you’ve ever read - I’m dead serious. Everyone should know we all have a voice but sometimes do need some help finding it (and “voice” doesn’t mean just speaking.) Everyone should know talking about autism like it’s an “epidemic” that needs to be “eradicated” invalidates our very existence, and I don’t think I need to expound on what that must feel like, yes? Everyone should know that most (maybe all, idk) of us *would not change* the fact that we are autistic - we aren’t “suffering” with it, YOU are, apparently. We’re occasionally *frustrated* with our brains, but a whole lot more comfortable with how we are than a lot of neurotypicals seem to be. Everyone should know that if someone seems “mildly autistic” (which is what is said about me by people who don’t KNOW me 🙄), know that YOU experience my autism mildly - I don’t. We KNOW you don’t approve...we either hide (mask), or we flip you the big middle finger and say “too damn bad” - and both are usually true with autistic women. (Lots of us start off trying to fit in, but really run out of patience with it. I’ve noticed most of the boys don’t seem to give a flying shit about “fitting in” from jump street LOL...) Everyone should know a LARGE percentage of us are NOT heterosexual. Everyone should know neurodivergence has always been within the human species - it’s just we have more names for shit now, and it’s a little more more socially acceptable to be different, so there are more people “living out loud”, as it should be. Everyone should know that lots of delayed autistic kids grow up to be brilliant scientists and engineers and contribute massively to society - look at Einstein. 🤷🏻‍♀️ Everyone should know we’re human beings, and should be treated as such. xx

[thistangledbrain]

Ok y’all, I’m sorry I’m having to catch up! We got a new foster in a few days ago - a particularly broken soul - and my mind has been *entirely* on him. But he’s settling in a little now, so here’s the last 3 days in one post ☺️

Autism Acceptance Month

Day 10!

“Sensory Life”

This is sort of hard to describe, but I’ll try! This is different from the next entry about stims, though both are sensory related.

It’s like being on microdosed ‘shrooms *all the time*. If you don’t know what that’s like, I’ll try to describe (this is collaborated with a friend who regularly does this - I don’t...it would probably be far too overwhelming).

Colors are far sharper to me & I emotionally react to them far more than most people. That results in some colors being genuinely offensive - not just “I don’t like that color”, but it will make me intensely angry or physically sick. This makes me curious about chromotherapy, but I haven’t really looked into it that much. My tolerance of certain colors can ebb and flow depending on my emotional state/mindset. (This crap is so sharp, I’m actually getting a twinge of irritation just *thinking* about my most hated colors LOL 😂 🤦🏻‍♀️)

Textures/skin sensations are another big one. (By now you may be asking, how TF did this chick manage Marine Corps training/exercises?!) I guess if you want something bad enough, you can shut down some of the overwhelming aspects of the sensory thing...this ability to disassociate probably isn’t what NT’s would call “healthy”, but it’s quite handy if you’re autistic, and those of us who have been through real trauma seem to be especially skilled with our ability to just shut off all circuits and “embrace the suck”). Like...I’ll nearly panic to get out of a store or something if my underwear starts feeling uncomfortable, but I’ve literally been soaked head to toe, covered in mud and sand in my *everywhere* (and I HATE SAND anywhere but on my feet) AND I pissed myself, because nobody’s gonna stop shooting/training just because you have to go potty 🙄), and I remember literally giving zero fucks about it...so it really is entirely a mindset thing. But let’s talk about when I’m NOT in “Marine mode” (cuz let’s face it, it’s been close to two decades since I got out, and I no longer HAVE to tolerate overwhelming sensations).

Sensory input is just basically dialed to 11 & the knob’s been snapped off. Bright lights, loud discordant noises, too much touching/not touching the right way, things like that. I am particularly sensitive about body hair (my own). I *strongly* prefer to have my head shaved on the back and sides (but I leave the top long). The only time I haven’t done this, was in the Marines (it was considered “eccentric” and not allowed, so they made me grow it out). Even though I leave the main part long, it’s *always* in a bun or ponytail - well, unless I’m super dressed up for something, but even then I prefer some sort of updo. Despite the fact that I like my long hair (well on the top anyway), I can’t *stand* the way it feels on my neck or especially my face - I HATE IT when my hair touches my face. If I wasn’t married...there’s a decent chance I’d just shave it all off and be done with it LOL 😆 My ponytail pulled through the back of a baseball hat is I guess what they’d call my “signature look”.

And you think NT’s have bad misophonia? *I’ve jumped out of a moving vehicle before* to get away from the noise of someone chewing loudly/smacking their lips in the back seat (he was a coworker and punching him in the mouth - which is what I DESPERATELY wanted to do - would have gotten me fired 😕)...but humans eating, or dogs licking their junk, makes me want to crawl out of my own skin. It’s mostly humans though....you have *no idea* the level of self discipline it takes to keep me from either rage crying or actually getting violent around someone smacking their mouth during a meal. I *cannot* be around my husband when he’s eating breakfast cereal even though he’s a very mannered eater - I don’t know why, but it’s *so loud* (and I’m terribly hard of hearing) - it sounds like he’s chewing rocks. It took us years to work this problem out LOL - he thought it was dumb that I had such a deeply emotional reaction. Then he tried to “chew quietly”, which all that did was slow down the rock tumbler inside his mouth 😂...gradually, for everyone’s sanity, we realized that cereal eating should not be done in close proximity to each other lololol....and now, when it’s time for family meals around the table, I’ve learned to either keep the range hood fan going (white noise is definitely my friend), or have the TV on. If it’s just mainly the sound of everyone chewing, I simply won’t eat at the table. I lose my appetite. (And all of my dinner guests/family are very polite diners. It’s MY hangup.) Phone calls are another big one. I could probably come up with several reasons why I hate it...I LOATHE it. This is one sensory hangup some people in my family just refuse to accept. I don’t think they realize I equate unexpected or immediately demanded phone calls to running naked though a mall or getting a root canal. Hissssssssss!! Give me some time to prepare myself for this shit please - you’re actually asking a *lot* from me. (And when I do have a call? Ugh I babble and am so awkward, because I’m so effing uncomfortable, which I also hate.)

But here’s an area where my “sensory overload” serves me very well:

Dogs.

I am usually *intensely* dialed into the energy and body language of an animal, but particularly dogs. I’m *so* sensitive to them, that I often actually can feel things even happening behind my back - can basically sense the energy in the area shift. (Roughly 75% of the time. I’m spacey sometimes too LOL.) The work I do with “behaviorally challenged” dogs is the biggest area where I am *grateful* for my autistic mind. I don’t think I could really do the things I do without it, successfully. (I can do this to a large degree with people as well, as can my youngest son. You cannot lie to that boy about your feelings or mood.)

We all have different levels of sensory sensitivity and different triggers, but every autistic I know has several “sensory hangups”. It often is one of our biggest hurdles to deal with, when it comes to “normal functioning”. So, many of us constantly have headphones (or muffs) on, some of us wear sunglasses *all the time*, etc (I wear a baseball hat - and I genuinely don’t like going anywhere where I have to get dressed up and can’t wear my hat. Been like that since my early teens. That hat shields me from all sorts of real and imagined sensory triggers.) You do what you can to mitigate, you know? But my “microdosing shrooms” and “knob dialed to 11 and snapped off” is really the best way I can summarize. (And that’s not all bad - my trips into a new natural space, like the redwoods, is an absolute *thrill*. I also occasionally love sensory overload - many auties do - like rollercoasters. My youngest son and I can ride till we pass out LOL!) So sensory life is love/hate, really....but I don’t think I’d change much about it.

Except the fucking misophonia. I hate that I go into almost a murderous rage over someone just chewing food loudly 🤦🏻‍♀️ - but seriously. It’s impolite anyway. Don’t do it. 😆

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Day 11!

Stims

This is one of the biggest areas where neurotypicals struggle to understand us.

We all have stims. Stims are basically any stimulus that brings us joy or comfort. It could be rocking, flapping, walking in tight little circles, clicking your fingernails together, spinning, making weird sounds or whistling, etc. And it’s usually repetitive - that’s the part that gets on people’s nerves.

I’ve found that most *women* hide most of our stims. We only let go and stim our little hearts out when we’re alone. I do that, because some of my stims grate on my husband. Sometimes I don’t WANT to feel “watched” anyway...I’ve noticed males don’t have quite the same issue with that.

I have quiet stims I do to soothe myself, and happy stims. One of my quieter stims when I’m trying to soothe myself (like in public) is clicking my teeth, particularly my right canines. I also have this silicone bite stick I wear around my neck sometimes, that I chew on (my sons like the bite sticks as well). I carry a little bag of fidget toys in my purse, to soothe myself with when I’m stressed. There’s a thing sort of like a fidget cube, a little cowrie shell and twine bracelet that I fiddle with almost like a rosary, a small stuffed axolotyl (her name is Blossom), and a few other toys. My little stash also comes in damn handy when I encounter a bored child LOL!

One of my sons makes funny little sound effects randomly (and he’s grown & still does it). The other used to randomly shriek when he was younger - then he learned how to whistle, so he couldn’t say a whole sentence without punctuating it with little whistles (we actually thought it was adorable).

My favorite stim is putting my headphones on, putting on some favorite music, sitting with my legs crossed, closing my eyes, and rocking. I’m happy to TELL you about this stim, but it’s one I do alone, because I like to get completely lost in it and I can’t do that if I feel I’m being watched...and you’ll damn near give me a heart attack if you touch me while I’m lost in that world. (And boy does it irritate me to get yanked out of that before I’m ready, for some bullshit non emergency reason.) Better to just isolate myself (except my dogs are always with me). Another one I do alone - and I have no idea why i like it so much - is squeaking my bite stick across my teeth. (This one is weird to me because I usually HATE my teeth being touched...yes dentists are a problem.) This one I enjoy doing kind of mindlessly while I read, but damn would it irritate anyone in listening distance LOL...I mean, it would irritate the shit out of ME if someone else was doing it, because *other people’s* repetition, especially if it makes noise, gets on my damned nerves. 🙄 Figures lmao!

Stims can be damaging sometimes, though. Like I used to twist and twirl my hair when I was younger so much that the areas I usually grabbed were frayed and broken (I also chewed my hair sometimes). One stim I cannot break myself of even though sometimes it’ll make me bleed, is chewing the insides of my cheeks or my lips. That’s my most frequent (several times a day) one, and the one that is both gratifying *and* soothing. It’s also the one that’s hardest to suppress.

Some auties are either unaware or literally don’t care how you feel about their stims, but I am and do. I’d like to think I’m pretty “appropriate” *most* of the time with my stims and other people around, except the lip/cheek chewing. If my husband notices I’ve gotten pretty furious about it (even using my hand to push my cheek into optimal biting position), he’ll gently put his hands on mine to bring me back to awareness - if I’m gnawing away, I’m either super stressed or way lost in thought. Either way, I can accidentally hurt myself, so he gently guides me away/distracts me.

Stimming is an important part of Autie life and should not be discouraged unless it hurts Your Pet Autie ™️.

And if you’re looking for a neat gift for an Autie? They actually make stim toy packs. Get them one, they’re fun. ☺️ (Most stim toys are designed to withstand being put in mouths and bitten/chewed, too - LOTS of us have oral fixations.) And hey, even if you’re a NT, try stimming sometime (lots of normal people have stims, they just don’t realize that’s what they are - like nail biting. Bite your nails a lot? Get a bite stick!! God they’re so satisfying!)....

Happy stimming!

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Day 12!

“Favorite Autism Charity”

This one is short and easy: ASAN. Autism Self Advocacy Network.

“The Autistic Self Advocacy Network is a nonprofit organization run by and for individuals with autism. According to its mission statement, the Network’s goal is ‘to empower autistic people across the world to take control of our own lives and the future of our common community, and seek to organize the autistic community to ensure our voices are heard in the national conversation about us.’”

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Day 13!

“Family”

Well that’s kinda ambiguous, isn’t it? 😒

I’ll start with this tack:

Being an autistic mom with autistic kids.

I mean for years, none of us KNEW LOL - and maybe that’s what took me so long to get around to pursuing a formal diagnosis for my youngest. To me, for the longest time, he was just sensitive and different like me (same with my oldest, for the most part, but I’m pretty sure that was me buying into the “brilliant people are just fucking weird ok” mindset also), yannow? So it was like, “well mama always told me I’d have one like me & then know what I put her through” 🙄 My oldest got lumped into the “all bright kids are quirky” category - but as I learned about ASD through my youngest and myself, it became damn obvious the oldest was also in our camp. (He’s taken the prelim test now anyway, but is not formally diagnosed.) I genuinely believe that our “shared weirdness” binds us very tightly to each other - and I’m super pleased about that.

It brought a whole new level of understanding and awareness within our little family when we realized it was ASD I guess - and acceptance. (I 100% believe that diagnosis - or even affirmation - is critical to our self acceptance and understanding.) I wouldn’t trade my little family for anything, and consider myself remarkably blessed. I can talk about how complex and brilliant my boys are ALL day (and often do LOL). Hubby is neurodivergent, and can identify with (or at least sympathize with) MANY of our hangups....but he’s “normal” enough that he’s been able to guide us (mostly me) with things like how to use tact (not often a skill we naturally possess lmao). My heart breaks when I read posts by auties whose families either don’t understand or don’t accept them & are constantly trying to basically mute who they are. Auties “live out loud”, and some people find that off putting. I know growing up, I was constantly getting my ass chewed for being “dramatic” or too sensitive, too, so I shut down and hid my sensitivity far, far away. I’m only *lately* (last few years) discarding that silly tough girl mask. (I can still be quite the little wolverine at times, but I’m not afraid to show my soft sensitive actual self anymore...to stay soft in today’s fucked up world takes actual courage - a lot of it - and strength. I was looking at the concept of being “strong” entirely the wrong way.)

I swear my husband has lived with nearly as many phases and facets, as years we’ve been together. Sometimes I ask him if this ever bothers him. He says no, because who I am at my core never changes...and he grins and says “and you damn sure aren’t boring” 😂

But since I’ve known I’m autistic, I’ve given myself more freedom to discover who I am without these socially dictated parameters. And permission to be precisely who I am, without cringing apologies when the real me shines through awkwardly.

And my husband and boys have been there every step of the way, embracing me, as we do with them. ♥️

Yeah. I love my family. We’re some pretty cool people. 😁

[thistangledbrain]

Day 9!

“Favorite Autistic Owned Businesses”

You know, I don’t actually truly know any? But the kickass chick that runs this FB group does “advertising friday” and folks post their businesses. ☺️

Sorry to say, you can’t join the group unless you’re autistic and identify as female. It’s our safe place. 💗

https://www.facebook.com/groups/781512985225923/?ref=share

[thistangledbrain]

Day 8!

Okay so I actually can’t find the links I had because my tablet crashed...BUT I do have one incredibly informative essay that I love to share for NT’s.

If you have any blogs to recommend to me, I’m wide open!

https://neuroclastic.com/2019/05/04/its-a-spectrum-doesnt-mean-what-you-think/

[thistangledbrain]

Autism Acceptance Month

Day 7

“The Autistic Community”

I can’t really tell you much. I’m a member of a few groups, but I read more than I write. I struggle with saying things “the wrong way” there, too, so I just stay pretty quiet. Many autistics are very, very sensitive & have rigid parameters around acceptable speech, and I usually end up being corrected about how I said something more in the groups than I do anywhere else, which starts to get annoying. I occasionally get the feeling I’ve got to “learn how to be autistic” with some folks, and that’s a huge turn off because I already have to try and navigate the NT world with this 3 pound lump of weird between my ears. 🤷🏻‍♀️ So I mostly lurk. I HAVE learned quite a bit, though.

I’m not sure if other autistics feel like they don’t fit in a-n-y-w-h-e-r-e, but 🙋🏻‍♀️

Maybe it’s because I’m just not a “community” *type*. I HAVE made some fantastic friends, though, and greatly enjoy interacting with them.

Though I have autie sons, I find the parent groups exhausting. There’s never any good advice for me to collect, really, and I end up *giving* more advice than learning anything.

Bleh. This is shaping up to be a negative ass post, huh?

In short - if you’re looking to learn something about the autistic “community”, I am soooo not gonna be able to help ya lol. I can point you to some group admins and mods who can, though. ✌🏼

[thistangledbrain]

Autism Acceptance Month

Day 6!

“Support and appreciation”

Not sure specifically what this means, but I’ll assume it means what support and appreciation I have?

Well...mainly, my husband. After nearly 15 years together (almost 17 now, this was a while back), I broke all the way down and he saw the raw me (and I put him through straight hell), but didn’t leave. It actually bonded us more tightly together, I’d say.

No one in my life has ever accepted the “whole me” like this dude. I mean...I can be a real mess.

And my boys. I get the impression that both actually prefer me a little weird. 😉 I know my youngest appreciates that I know what meltdowns feel like & am there for him when they happen...my oldest gets pretty pumped that we can connect and identify on many levels...both speak so highly of me to their friends, that I often worry I’m not living up to the hype LOL. But idk what I’d do without these two quirky, brilliant, fascinating young men. I thrive on their love like a creepy little vampire LOL...

I guess a handful of friends are actually supportive...for the most part though, I’d have to say it seems folks would rather just not “count that part”. They’d rather ignore it. 🤷🏻‍♀️ I’m not sure how I feel about that quite yet (keep in mind, I’ve only known for about 3 years).

So...yeah. I guess I don’t have widespread support, but that’s ok. I don’t really feel like I need anyone cheering from the sidelines - “Go Autismo Go!” 🙄

My besties support me, as best they can. 💗

This is a weird entry and I’m not so sure I’m comfortable with it. Or how to interpret it. Mostly, it seems like the folks around me (with a few exceptions) would prefer I was NOT autistic.

Sorry for your luck.

I don’t.