chronically ill & disabled bipoc nb lesbianartist sometimes www.instagram.com/chronicallylavendertumblr.com/wm1nqlv
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would you, could you love me if i got sick(er)?
(and i you?)
when iād become sick
and even more sick
and kept losing parts of myself
would you accept this reality, this version of me
would you get upset with me when i could not show up healthier and less disabled
would you tell me to fight against it
would you understand the chronic nature of it
would you want me
would i need to race to walk with you
would you slow down to walk with me
would we be o.k. to never match each others pace again
would we grow frustrated, impatient with each other's lack of progress
would you look down on me
would you expect me to go over my limits
would you center your fears and leave me alone in mine
when thereād be loss to grieve everyday
when everything would change
and weād leave each other behind
could we be far and near at the same time when we couldnāt live the same life anymore (could we ever) would we be able to still feel each other
would you wait for me when i needed a break
would you push my wheelchair and pick me up from the station
would you go with me to appointments
would i harm myself in trying to please you
and grow resentful
when i could not go with you to a fun event
when i could not join you outside
when i could not move freely with you
when conversation would become slow and iād have troubling catching my words to deliver them from my lips
or when i could not speak at all
when iād only manage to cook sometimes or not at all
when youād need to get or prepare food for and bring it to me, when iād have to be fed
when i could not shower whenever i want or ever at all
when stink started to cover me
my hair knotted and dry like my skin
when there'd be no knowing whether it will ever get better, stay the same or get worse
when looking at the past would cause pain
when i could not raise my arms to hug you
when i could not tolerate your presence for long or at all
when i'd be only half alive
when i could still laugh with you and when i couldnāt anymore
when i could still listen to you and when i couldnāt anymore
when we could look out the window together and when i'd have to live in darkness
when i'd have to let go of all my dreams and when i'd dare to dream new ones
when iād need help to go to the toilet or could not go to one at all
in sight of a healthier me would you forget the sicker one
in sight of the sicker me would you forget the healthier one
would you, could you stay by my side
would i, could i tolerate you by my side
would you grow tired of me
would i be able to receive care from a web of people and would you be willing to be one of them
would you leave me alone because it was too much
could i communicate when i needed to take a break
would you hear it
would you expect me to figure everything out by myself
would you lie in bed with me
would i want you to lie in bed with me
would you hold my hand
would i hold yours
would you see me
would i see you
would you learn about the things iām dealing with
would you try to understand
would caring for me make you sick
would it be too much
could i receive care guilt free
could you drop out and know that your gap will be filled by all the others
what could i do if not
could i tell you the things i need
would your presence exhaust or replenish me or would it be both at the same time
and how would it be for you
would you be able to tell me of your life and feel me share in your happiness
would it be ok for me to be sad too
could you tolerate my tears
could i yours
would i be be able to express my appreciation for you as a person
could i make you laugh
could i still show care towards you
would i overxert myself
making me even less/unable to be with you
would loving me demand too much from you without receiving enough in return
would loving me cause you too much pain
would i misdirect frustration towards you or bottle it all down and cause a rift between us
would you forget me
would i manage to be in contact and nurture our relationship
would i be able to receive your love or would i be scared
how could i protect myself from those that want to prey on me because iām vulnerable
could i see your heart through it all
if you stopped loving me or left would i have enough love around me to hold me
would i be safe in the net of care and love you were a part of
if not would it be better not to love to begin with
if i knew i might potentially die earlier than others could i be in relationship
would it be better to stay in isolation
if you knew i might become too sick one day, unable to bear it any longer would it make everything before turn into even more pain
if i actually got out of that and something worked and i got better again would you still be there to share the joy with me
could i be honest with you
would i have to choose between care and love
would i be able to hold you (physically, emotionallyā¦)
would you help me build a care web
would you help me get access to the things i need
would you hold me
would you stay
would you listen to and hear me
how would i love
would i guide you to your blindspots
would i enforce boundaries to protect and love myself and others and you
would i assist you in realizing you deserve rest and care
or that your value is not tied to your performance
would i remind you of those disappeared
would i tell stories would i share visions
what would be digestible for you
would you do your part to prevent this happening to someone else
would you protest for me and those like me and those unlike me because they didnāt get tp grow up before they were harmed and robbed this way
would you be willing to challenge thought patterns and beliefs
would you think of how to make spaces accessible
would you think of me and where i used to be
would you learn and adapt
would you slow down
which way would you love me
?
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made a little catalogue of queer stuff iāve read for no reason (also a very few didnāt make it on here)
and because itās disability pride month and iām disabled i put * where it features a disabled or chronically ill etc protagonist though i didnāt have energy to specify
also i have memory issues and read some of them years ago or havenāt finished them yet so there might be mistakes
also my tbr list is soooo long
anyways
list of titles under cut
some of them are not free of (anti casian) racism & i put a ⢠there
slide2:
multiple povs: the death of vivek oji; freshwater*; girl woman other; light from uncommon stars
YA: last night at the telegraph club; die sonne so strahlend und schwarz; pet; magnus chase the complete series*
slide3
(a)historical: the seven husbands of evelyn hugo; fingersmith; clear and muddy loss of love/jwqs; golden terrace*ā¢
indigenous: inara - light of utopia; jonny appleseed; under the udala trees;
colonialism: taiwan travelogue
slide 4
fantasy, mythology: heaven's offical blessing/tgcfā¢; the song of achilles; girl, serpent, thorn; the grandmaster of demonic cultivation/mdzs; raybearer (not protagonist)
science fiction, fantasy: the left hand of darkness; iron widow*ā¢; to embers we return
slide 5 short:
1st row: sister outsider; loving safoa; the deep*; walking practice*;
2nd row: kari*; as the sun comes up*; a masc for purim*; your name engraved herein; the bruising of qilwa
slide 6, comics
1st row: puu; the essential dykes to watch out for; the magic fish; stone fruit*; my lesbian experience with loneliness*
2nd row: she loves to cook and she loves to eat; her tale of shim cheong; her mountain, her ocean; double house; i want to be a wall; the moon on a rainy night*
3rd row: the tea dragon society*; the guy she was interested in wasn't a guy at all; wash day diaries; couple of mirrors; navigating with you*, saved the public enemy by mistake
slide 7, part of tbr
1st row: metal from heaven; a master of djinn*; on earth we're briefly gorgeous; hammajang luck; when we lost our heads
2nd row: the creator's grace; she who became the sun*; the unbroken*; an unkindness of ghosts*; ballad of sword and wine*
3rd row: dd's umbrella; junker seven*; we are okay*; gideon the ninth; hani and ishus guide to fake dating
slide 8 more cnovels (baihe & danmei)
1st row: mystery: silent reading/mo du; (a)historical: purely by accident; ru zhui/matrilocal marriage; female general, eldest princessā¢; stars of chaos*ā¢
2nd row contemporary: fangsi/presumptuous; if i could mail you a book; she is the protagonist; mystery, fantasy: global examinationā¢; guardian/zhen hun
3rd row fantasy wuxia: the beauty's blade; faraway wanderers/tian ya ke; xianxia: the dragon; the scum villains self saving systemā¢; yuwu/stains of filth
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idk if iām ever gonna have a/multiple carer(s) that would do the everyday stuff with me like if i actually became fully bed bound. the things i couldnāt do. because so far if someone offered to do the things i needed to have done i havenāt even been able to have them help me with everything i thought of/needed. maybe this would be different if it really was a regular thing. or maybe iād just suffer even more ugh itās scary
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having a chronic illness that has me mostly house and bed bound and abandoned by society and most friends for me means among other things returning to my younger selfs coping mechanisms and interests (as long as i still can)
iām isolated and lonely but thatās nothing i havenāt experience in already
so let me return to the things that bring me some moments of joy
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šø From One Motherās Heart ā Please Read šø
My name is Saja. Iām a wife, a mother, and a woman who once believed her story would be simple. I thought my days would be filled with watching my daughter grow ā from her first smile to her first steps ā surrounded by the small joys of everyday life.
But life had other plans.



War has returned to our home. Again. And once again, we find ourselves living under skies that never seem to rest.
There was a moment ā a fragile, breathless moment ā when the bombs paused and the world seemed to remember us. It gave us hope. We thought maybe, just maybe, we could start to rebuild. But now, we are back in the dark ā hiding, holding on, praying.
Iām writing this not as someone seeking pity, but as a mother who has no other choice but to speak.
Imagine holding your baby in the middle of the night, not because she cried, but because the world outside roared too loud for either of you to sleep. Imagine whispering bedtime stories not to lull her into dreams, but to keep the fear from settling into her tiny bones.
This is my life.
This is my daughterās life.
And even now ā especially now ā I believe in softness. I believe in kindness. Because when everything else is taken from you, hope becomes the most valuable thing you have.
Why Iām Reaching Out Our home has been damaged. Our lives changed. But through it all, my daughter wakes up every morning with a smile. She reaches for me with trust, with love, with faith that I will keep her safe.
Thatās why I keep going.
Iāve launched a campaign to ask for help ā not because itās easy, but because silence is no longer an option. I am asking for support not just for me, but for my baby, and for the quiet strength of so many mothers like me who are fighting, every single day, to hold their families together.
How You Can Help: š¤ Help us restore parts of our home so we can live with dignity š¤ Support women and mothers in Gaza with access to care and resources š¤ Keep the light of hope alive for a generation born in the shadows of war
š If you can, please support our journey here:
If you canāt give, please consider sharing. Your voice might be the reason someone else hears ours.
From My Heart to Yours Maybe our lives are worlds apart. Maybe youāve never lived through war. But if youāve ever held a child and wished the world could be better for them ā then you understand more than you know.
I donāt want my daughter to grow up thinking the world turned away.
Please, if youāve read this far ā thank you. Thank you for seeing us. Thank you for caring. We are still here. Still hoping. Still holding on to every kind act like itās a lifeline.
With love and endless gratitude
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i really didnāt understand at first that we should keep masking to protect everyone and especially the vulnerable. but with time i understand more. i started masking in public spaces again and took it off when i was with my friends. thatās not enough but itās a start. now *if anything* people around me mask for me. but not for everyone else or even themselves. so sometimes i get this feeling like it doesnāt matter. but thatās not true of course. iām scared for myself but i live with a lot of people and they donāt mask everywhere so iām not very protected anyways. they care for me in a lot of life sustaining ways but I donāt see myself surviving for a long time.
i just wanna tell everyone please please mask in public spaces, please try not to keep spreading this disease if you care about anyone. educate the people around you.
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i miss myself so much
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everything i could even potentially dream of seems completely out of reach and impossible now
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Turns out lonely people are all the same.
Happy Together (1997), dir. Wong Kar-Wai
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im sooo late but hereās armenian miku!!
(bonus under the cut)

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Hey people, most of the people asking for aid arenāt actually people. Theyāre scams. The same messages are copy and pasted ALL THE TIME.
Also, where are the Palestinian people going to use the money? They canāt leave and the facilities they buy food at are goneā¦
Those arenāt Palestinians. Those are scams.
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you cannot talk about the homophobic murder of jonathan joss without including in the conversation that he is indigenous.
american indian men are at the 2nd highest risk of death by murder compared to all other ethnic groups. in their lifetimes, 82% of native men report having experienced domestic violence. yet the overwhelming majority of perpetrators are non-natives (88% of native men and 92% of native women who reported violence said their attacker was non-native). whatās more, tribal governments are often stymied in their attempts to bring justice against non-natives, meaning that many of these cases go unresolved.
this was an intersectional attack. the fact that he is indigenous matters, even if the motivation was homophobic, because it made him even more vulnerable and disposable in the eyes of his killer.
as always, look into MMIWP to learn more, and speak up for us. miigwetch, take care
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Last year I finally had an excuse to illustrate this simple little Tumblr story by @bees-with-swords I've had bookmarked forever for class.
I hope you like it :]
Image ID under the cut
[id: a series of five watercolor and guache paintings with digital text added to each one. the paintings depict the conversation between the whale, the tuna, and the salmon from the story in the post.
the first painting shows a humpback whale swimming with a bluefin tuna as they talk, with a skeleton of a whale in a small panel above them. the skeleton is labeled to note the skull, ribcage, spine, pelvis, and other major structures. "Do you ever dream of land?" the whale asks the tuna. "No." says the tuna, "Do you?" "I have never seen it." says the whale, "but deep in my body, I remember it." "Why do you care," says the tuna, "if you will never see it?"
the second painting shows the humpback and the tuna from a different angle, the faint impression of trees surrounding them in the water. the humpback has a series of skeletons extending behind it, each showing a progressively older evolutionary ancestor and showing the change from land animal to ocean animal. it also notes the whale's own small but still present pelvis and femur bones. "There are bones in my body built to walk through the forests and the mountains." says the whale. "They will disappear." says the tuna. "One day, your body will forget the forests and the mountains."
the third painting shows a whale skeleton at the bottom of the ocean being picked at by scavengers. a small panel below the skeleton shows the salmon joining the conversation. "Maybe I don't want to forget," says the whale. "The forests were once my home." "I have seen the forests." whispers the salmon, almost to itself.
the fourth painting shows the progression of a salmon growing from egg to adulthood as it swims downstream, with panels showing the eye of the whale and the salmon looking at one another. "Tell me what you have seen," says the whale. "The forests spawned me." says the salmon. "They sent me to the ocean to grow. When I am fat with the bounty of the ocean, I will bring it home."
the fifth and final painting shows the whale, the tuna, and the salmon from below, backlit by filtering sunlight and surrounded by other silhouettes of fish. in the foreground are tiny, microscopic plants labeled "proterocladus antiquus, oldest land plant ancestor, alive one billion years ago." "Why would the forests seek the bounty of the oceans?" asks the whale. "They have bounty of their own." "You forget," says the salmon, "That the oceans were once their home."
/end id.]
(Thank you @saffronlesbian for the beautifully descriptive id)
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#my whole life except now i have donāt do things you like bc youāll overexert yourself and crash disease#mecfs#adhd#executive dysfunction
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āThis world we live in... It is actually full of happiness. Everyone is too kind...People's sincerity and kindness... If this all came out clear as day everyone would just be so thankful... They would be crushed by happiness.Kindness... It is everywhere. It is everywhere in this world.ā
loneliness, isolation, lack of authentic connection can make you quite clueless. like an alien attempting to be a human. how can you learn when youāre alone and there is some kind of barrier between you and others.
this can also leave you vulnerable & unprepared against manipulation.āØwhen we take off our masks we can find true connection (and yet you might never know if there is another one underneath.)
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