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I'm Backkk!!!!
Hey Everyone, Sorry for the “hiatus”. Things got chaotic but in a good way for the most part. In March 2023, I returned to Baylor in Houston and got the results of my bloodwork – My “Chromosome Microdeletion” is 15.21.1-15.21.2 (its rather small) and very rare. there is no other deletion exactly like mine, there are some that are similar, but I am a medical anomaly (as if I didn’t know that…
#Advocate#camp#Chronic illness#Chronic Pain#Chronicillness#ChronicPain#College#College Life#College with Disabilities#CollegeLife#collegeStudent#CollegeWithDisabilities#compassion#Curvy Girl#CurvyGirl#determination#determined#disabilities#Disabilities Dont Limit#Disabilities Dont stop Me#Disabilities need a voice#disabilitiesDontLimit#DisabilitiesDontstopMe#disability#DisabilityBeauty#disabled#DisabledandProud#Disableds#DisabledsNeedAvoice#Empath
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My favorite people to be around.
Who are your favorite people to be around? I have always been “a people person,” and I adore being around people, but it’s authentic people, not fakes. For a long time, I have been able to “read a person” by their body language and the way they talk. I can usually tell if someone is being genuine and sincere or just doing it out of “obligation,” So while I do enjoy visiting with anyone and…
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#dailyprompt#disabilities#disability#disabled#Empath#extrovert#Friends#Friendship#People#Social Media#Social Networking#socializing
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My English Paper- The Lights of My Life (March 2010)
The Lights of My Life Everyone has numerous roles they play in life. The roles I play “send light to people in darkness,” while for me, it’s just what I love to do. The roles I play are best quoted from a close family friend and her family, “Her role is comforter, supporter, friend, evangelist, sisterhood, etc., in our lives and we love her for it.” These roles, along with others, are very…
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#Advocate#camp#Chronic illness#Chronic Pain#Chronicillness#ChronicPain#College#College Life#College with Disabilities#CollegeLife#collegeStudent#CollegeWithDisabilities#compassion#Curvy Girl#CurvyGirl#determination#determined#disabilities#Disabilities Dont Limit#Disabilities Dont stop Me#Disabilities need a voice#disabilitiesDontLimit#DisabilitiesDontstopMe#disability#DisabilityBeauty#disabled#DisabledandProud#Disableds#DisabledsNeedAvoice#Empath
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Marfans Appointment at Baylor Genetics
On Thursday, February 16, 2023, Mom and I traveled to Houston Texas and back. I had an appointment with Baylor Genetics. (THAT WAS A LONG DAY. Left home about 4:15 a.m. or earlier and got back around 4:30 p.m. at the latest.) In July 2021, I got diagnosed with Marfans syndrome by Oschner in New Orleans, they wanted me to go to Baylor genetics as they are the “experts”. it started with Mom and…
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#A twisted Journey#A twisted tale#ableism#Ableist#Ableist Mindset#Ableist Society#Acadiana#Accepting#access#Access is Love#accessibility#Accessibility Matters#Accommodate#Accommodations#accomplished#ADA#Adapt#Adaptability#adaptations#Adult Life#adulthood#Adulting#AdultLife#Adventures#Advocacy#Advocate#Advocation#All Disabilities#Always gonna be another mountain#AlwaysGonnabeAnotherMountain
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Superbowl 2023: So tired of Hypocrisy!
SuperBowl 2023: So tired of Hypocrisy!
Food for thought: Let me start this post by saying this: I did not watch the superbowl nor did I watch the halftime performance. I did however see the facebook blowup about it, calling it demonic and inappropriate, etc. People say that about the halftime performance for the last several years…. Let me start by saying this: TV IS NOT YOUR CHILD’s Babysitter! Social Media is not your child’s…
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#A twisted Journey#A twisted tale#ableism#Ableist#Ableist Mindset#Ableist Society#Acadiana#Accepting#access#Access is Love#accessibility#Accessibility Matters#Accommodate#Accommodations#accomplished#ADA#Adapt#Adaptability#adaptations#Adult Life#adulthood#Adulting#AdultLife#Adventures#Advocacy#Advocate#Advocation#All Disabilities#Always gonna be another mountain#AlwaysGonnabeAnotherMountain
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When my Bestie visited...Pure Joy!

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#A twisted Journey#A twisted tale#ableism#Ableist#Ableist Mindset#Ableist Society#Acadiana#Accepting#access#Access is Love#accessibility#Accessibility Matters#Accommodate#Accommodations#accomplished#ADA#Adapt#Adaptability#adaptations#Adorable Children#AdorableKids#Adult Life#adulthood#Adulting#AdultLife#Adventures#Advocacy#Advocate#Advocation#All Disabilities
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Goodbye 2022, Hello 2023
Goodbye 2022, Hello 2023

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#A twisted Journey#A twisted tale#ableism#Ableist#Ableist Mindset#Ableist Society#Acadiana#Accepting#access#Access is Love#accessibility#Accessibility Matters#Accommodate#Accommodations#accomplished#ADA#Adapt#Adaptability#adaptations#Adult Life#adulthood#Adulting#AdultLife#Adventures#Advocacy#Advocate#Advocation#All Disabilities#Always gonna be another mountain#AlwaysGonnabeAnotherMountain
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Update: the latest and somewhat greatest in my life...
Update: the latest and somewhat greatest in my life…
Okay, so the last post I did was about Fortitude and public speaking events and such. well, right before my Guns Down Power Up event, I managed to hurt my ankle- It was so swollen and hurt bad. Not broken though thankfully. The diagnosis eventually was “Soft Tissue Swelling” because i had fell on it when my legs gave out (my disabilities make my legs give out sometimes.) Anyway, I ended up going…
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#A twisted Journey#A twisted tale#ableism#Ableist#Ableist Mindset#Ableist Society#Acadiana#Accepting#access#Access is Love#accessibility#Accessibility Matters#Accommodate#Accommodations#accomplished#ADA#Adapt#Adaptability#adaptations#Adult Life#adulthood#Adulting#AdultLife#Adventures#Advocacy#Advocate#Advocation#All Disabilities#Always gonna be another mountain#AlwaysGonnabeAnotherMountain
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Watch "this person has been cyberbullying for a week and refused to leave me alone. please report." on YouTube
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Fortitude and what it means in my life
Fortitude and what it means in my life

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#A twisted Journey#A twisted tale#ableism#Ableist#Ableist Mindset#Ableist Society#Acadiana#Accepting#access#Access is Love#accessibility#Accessibility Matters#Accommodate#Accommodations#accomplished#ADA#Adapt#Adaptability#adaptations#Adult Life#adulthood#Adulting#AdultLife#Adventures#Advocacy#Advocate#Advocation#All Disabilities#Always gonna be another mountain#AlwaysGonnabeAnotherMountain
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Watch "my interview on #bullybox A passion project" on YouTube
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#disabled#disability#disabilities#advocate for disabilities#end bullying#bullying#bullybox#antibullying#cutthebull#cut the bull#stop bullying#scoliosis#marfan syndrome#ehlers danlos zebra#ehlers danlos problems#ehlers danlos awareness#ehlers danlos syndrome#zebra#chronic illness#spoonie#kyphosis#kyphoscoliosis#a twisted journey#twistedlife#twisted sister#curvygirl#curvy girl#scoliosisawareness#scoliosis life#advocate for special needs
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Life update: Passed my College Class of Leadership Communication!
#college #LeadershipCommunication #disabilities #collegewithdisabilities #accomplished #disabilitydoesntLimit
I am not sure if I put on here that I was taking an online class for the Fall 2021 semester at UL Lafayette. I decided to take Leadership Communication thinking I would learn how to speak like a leader; Instead it was reading news articles and writing case studies, and learning different leadership styles; which can be helpful too I guess. I was disappointed at first that it wasn’t what I…
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#A twisted Journey#A twisted tale#ableism#Ableist#Ableist Mindset#Ableist Society#Acadiana#Accepting#access#Access is Love#accessibility#Accessibility Matters#Accommodate#Accommodations#accomplished#ADA#Adapt#Adaptability#adaptations#Adult Life#adulthood#Adulting#AdultLife#Adventures#Advocacy#Advocate#Advocation#All Disabilities#Always gonna be another mountain#AlwaysGonnabeAnotherMountain
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Life Update: Summer Special Needs/Inclusion Camp Proposal Idea
Life Update: Summer Special Needs/Inclusion Camp Proposal Idea
This is a future endeavor for me once I graduate with my bachelors degree. For as long as I can remember, I have been passionate about special needs and disabilities, probably because It is what I know. At age 11, I started attending a Summer day-camp for special needs called Camp We Can Do. (I have previously mentioned my experiences at Camp we Can do- See older blog post titled: “Disability…
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#A twisted Journey#A twisted tale#ableism#Ableist#Ableist Mindset#Ableist Society#Acadiana#Accepting#access#Access is Love#accessibility#Accessibility Matters#Accommodate#Accommodations#ADA#Adapt#Adaptability#adaptations#Adult Life#adulthood#Adulting#AdultLife#Adventures#Advocacy#Advocate#Advocation#All Disabilities#Always gonna be another mountain#AlwaysGonnabeAnotherMountain#another mountain
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Genetics update: I DO NOT HAVE EDS; I Have Marfan Syndrome! 
Genetics update: I DO NOT HAVE EDS; I Have Marfan Syndrome! 
Talk about turning my world upside down!! LMAO..30 years thinking I had one diagnosis ( Ehlers Danlos syndrome).. Come to find out it’s a different connective tissue disorder, Marfan syndrome. LMAO 🤣🤣 My life is never dull.. it’s a roller coaster.. another loop de loop, turn in my life lol 😆I just got the diagnosis from the genetic testing, today!!! I am still in shock..30 years of lies!…

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Watch "disability history: ugly laws?!" on YouTube
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#advocacy#disability#disabled#Disabilities#ugly laws#uglylaws#eugenics#disability rights#disability rights movement#Youtube
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Watch "Tom MacDonald - "Brainwashed"" on YouTube
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#tom macdonald#brainwashed#politics#political game#dividedwefall#united we stand#standtogether#wake up#society#sheep#truth hurts#Youtube
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