#spoonieproblems

[nevergoingtoquit]

Absolutely bullshit that my mother can wreck my mental health with one phrase. And really it’s not my mental health but it’ definitely hurt my feelings. I’ve developed some new issues that I saw a specialist for today. We have a plan going forward but it’s still a little nerve wracking especially when these issues you don’t know anyone with.

So I made one comment after I got home about how I was a little nervous about these issues. Didn’t say anything else about it and moved on. Well I was helping her with making sure the dogs had water and the puppy was very surprised to hear my elbow pop. To be fair it was very loud so I was talking to the puppy when my mother snaps ‘you need to stop, you’re focusing too much on being sick’ and I just shut down. Haven’t said a word out loud since. I hate that this is my response but here I am. I’m going to be 33 in just over a week and I’m so over feeling like this. My mental health is shit and my physical health is doing things I don’t love.

[gh0st-in-the-mirr0r]

[myalgicencephalomyelitiscfstom]

[megpie]

But seriously if any of my many drs told me they were alarmed by my imaging due to finding a *skeleton* inside my body -- I wouldn't be shocked. I'd do one of those The Office style looks at the imaginary camera of life, lol. Because it wouldn't be the dumbest thing they've said to me. 🦴💀👨‍⚕️🚑💉 #skeletons #spoonieproblems #spoonies #chronicallyill #chronicillness #chronicillness #chronicillnessproblems #medicalgaslighting #doctors #autoimmunedisease #hashimotos #adrenalfatigue #rheumatoidarthritis #liverdisease #fatigue #gastritis #ibs #chronicallyawesome #chronicpain #skeletalsystem #jointpain https://www.instagram.com/p/CpejzTZOuzV/?igshid=NGJjMDIxMWI=

[bpdnchill]

Any other spoonies finding lockdown surprisingly good for their mental and physical health?

No pressure to go out, see people, be social.

Loads of fun events happening online so you can participate without losing too many spoons.

People openly talking about their mental health.

When you do go out, noone bumps you or gets uncomfortably close.

For those who struggle with germs on a daily basus, everyone understands when you wear a mask and gloves to shop instead of assuming you are some kind of freak.

People in general seem more considerate and patient when outside.

[reeseinthecup]

Gerd is hitting me hard right now. Taking nsaids & muscle relaxers for my hip is a no go right now. Taking a break from it and keeping meals simple. Chicken breast, potatoes, and zuchinni no oil just sea salt. It still was bussin though. It's something about potatoes no matter how simple its delicious! . . . #Gerd #lpr #SpoonieProblems #acidreflux #seasalt #zucchinirecipes #potatoes #ChickenBreast #injury #heartburn #simpleMeals #GlutenFree #DairyFree #oilfree #HealthIsWealth #ContentCreator #Reeseinthecup (at Finland) https://www.instagram.com/p/CSrZArAIMd6/?utm_medium=tumblr

[little-misses-lee]

Adjustments.

When you become chronically ill, you have no choice but to allow and take adjustments in your life. You become a different person, both to yourself and to others. Life in itself is suddenly a completely different game that you don't know how to play and noone is there to teach you. You have to adjust to a new way of living, a new way of feeling, both emotionally and physically, a new way of how people see and respond to you. You have to get used to feeling bitterness, sadness, anger, in a way you didn't feel before and you have to get used to fighting, for everything. Everything changes, from the way you sleep, to your mobility, to your ability to do a job that you love and are good at, just everything. I have had to accept that the anger towards my illness and disability, to how society views it, has made me mess up a lot of things that are really important to me.

It is hard to adjust to people being well meaning or sincere, whilst being ableist or ignorant at the same time. It is hard to adjust to the fact that if you point out peoples ableism or ignorance, it becomes somehow another flaw in your own personality. It is hard to adjust to the fact that you are often completely alone in your battles. You are somehow expected to stay happy, to control your emotions, to not finally snap at the things that hurt you emotionally, when you have forgotton what not being in pain feels like, when you haven't slept for more than an hour for days, when you are on medications that bring about more symptoms and when you are trying to balance your general wellbeing, your family life, your work, your medical appointments and the emotional upheaval of it all. .

IMAGE DESCRIPTION: A black and white photo showing a small section of building above an archway with a sign for the NHS hospital 'The National Hospital for Neurology and Neurosurgery'.

[nme-flow]

Lovelies! . Have a picture of a sunrise. I'm tired. I've been tired and that's why I want to grow my etsy. Partly because it's work I love, partly to be a safe queer space, and partly to get of out the rat race and be healthy. . I'm also tired because I choose to teach Pathfinder to my friend and her kids. Character creation takes a long time. More so when they've read the DnD 5.0 (I know nothing of it) starter books and I'm trying to explain character creation to three individuals with short attention spans. Imagine trying to get three puppies to pay attention to a training session for 3 hours. Without jackpot treats. . Hopefully, sessions will prove worth it. Because my introverted self was, uh, a little overwhelmed. But happy about it. I just went to bed four hours late. So no crafting this weekend. . Night all! . Shop! Www.etsy.com/shop/MamaChatDesigns . . . . . . #sunrise #tired #spoonieproblems #ratrace #fuckcapitalism #pathfinder #dnd #squirrel #sleepdeprived #westayupallnighttogetlucky #rpg #crit #botch (at Bangor, Maine) https://www.instagram.com/p/CQyUBTCLJJW/?utm_medium=tumblr

[nevergoingtoquit]

Slipping a rib is so much fun said no one ever. Sitting at my desk is not great when breathing hurts

[entrance-to-the-soul]

Sometimes I don’t even know what I want anymore. Things seem to just ebb and flow. One minute I want to self destruct, but then I do something conducive to my recovery. I could have dumped the rest of my feed this morning, but I just sat there instead and listened to the pump churn the formula over and over again, like music, quite hypnotic. Dancing in my wild hunger ravaged eyes. Having a restrictive eating disorder ontop of Gastroparesis is legit utter hell, there was no pergatory, no practice try. It was just there. Came out of nowhere. And now here I am. Watching this calorie laden liquid enter my grossly large physique, absorbed by fat cells, dividing more and more rapidly competing with the speed of the formula. Until there is no more room, and I am just that, I am once more fatter than before. Cue in the self destructive ambiance, but this time, there is no will for conduciveness. It just is.

[myalgicencephalomyelitiscfstom]

[megpie]

"Wild woman are an unexplainable spark of life. They ooze freedom and seek awareness, they belong to nobody but themselves yet give a piece of who they are to everyone they meet. If you have met one, hold on to her, she'll allow you into her chaos but she'll also show you her magic." -- Nikki Rowe. Embracing my wild. Accepting that I can't know everything. Learning to breathe, let go, trust the Universe. Because all the illnesses are flared af, had an ambulance ride and an ER last week, my face is puffy as heck from inflammation and meds, I'm exhausted -- and frustrated, because drs never treat #chronicillness patients right. Sigh. Hanging in there tho. ✨️🌙💛 #nikkirowe #quoteslover #quotestagram #wordsaremagic #messyhairdontcare #bohohair #bohovibes #gypsysoul #wildchild #loveherwild #leaveherwild #spoonieproblems #autoimmunedisease #chronicallyill #chronicillnesslife #chronicallyill #chronicpain #liverdisease #ibs #neuropathy #neurodivergent #hashimotos #adrenalfatigue #gastritis #sickandtiredofbeingsickandtired https://www.instagram.com/p/CpcIX59uIWC/?igshid=NGJjMDIxMWI=

[jparkko6]

Anyone see the problem 😂 I've been wearing these masks for a week now and can't wear my glasses with them, however, as long as nobody wants me to read anything or walk across the store, I'm all good! #coronavirus #essentials #frontlines #coronamemes #glasses #chronicallyfighting #chronicallyill #chronicallyfabulous #spoonieproblems #fibrowarrior #painwarrior #nervepain #nauseasucks #butyoudontlooksick #makeup #maskedup https://www.instagram.com/p/B-RPbCXJgSa/?igshid=72tlgwz81552

[reeseinthecup]

My sound turkey soup from the other day. Delicious! Team no cook for a couple days😎 There are three types of broth in this cuz it's what I had on hand. Chicken, Beef, & a Chicken, Turkey, Beef Bone Broth.I 🍲 . . . . . . #GroundTurkey #Soup #Zuchinni #GoldenPoatoes #Carrots #Celery #Bayleaves #FennelSeeds #GlutenFree #DairyFree #LeanProtein #SimpleMeals #NomNom #Organic #spoonieproblems #EatClean #PicOfTheDay #ChickenBroth #BeefBroth #BoneBroth #Chill #ColdDays #Contentcreator #gerd #Soupaddict #Bayarea #Foodpic #MondayMood #HealthIsWealth #Reeseinthecup (at San Francisco Bay Area) https://www.instagram.com/p/CMdd35JhmTy/?igshid=19ew0jorkq28w

[themadornithologist]

This is how a disabled, autistic human human adapts to an emergency evacuation to a hotel. I fled my home to escape the hazardous AQI. I have severe asthma along with all my other insane chronic illnesses. 🫁 1. New environments and sudden changes to my routine are extremely stressful. Autism is debilitating in this way. 😣 2. I have severe photosensitivity from Ménière's Disease and ASD. I'm glad I wore that yellow dress yesterday, it looks pretty - ironically. Here's a tip, always carry paperclips so you can safely clip cloths on lamp shades without risking fire. 🖇 3. I'm having more surgical complications with my incision. It's developed an abcess inside of the tear it suffered two weeks ago. This is because I've had to push my body to the breaking point. I do not have support here. My labia hurts so, so much. 💔 4. The hotel is peaceful and clean, there's AC and I can finally take a deep breath. I'll be here awhile while I heal up and wait out the terrible wildfire smoke and ozone. I hate purple air! ❄ #crisismanagement #survivalkit #crisisoninfiniteearths #crisis #autismacceptance #evacuation #autoimmunedisease #spoonie #spoonieproblems #DisabledinSTEM #hydratinitissuppurativa #survivaltips #disabled #spoonielife #hotel #wildfiresmoke #survivalist #adaptation #wildfires #spooniestrong #engineer #disabledartist #survivalgear #disabledandcute #inventive #autismawareness #survival #autism #spoonies #menieresdisease www.hannahcrazyhawk.com (at Eugene, Oregon) https://www.instagram.com/p/CSjG0awL76W/?utm_medium=tumblr

[nme-flow]

Hello lovelies! . I've had a hell of a chronic fatigue flare. I only got an hour of tabletop gaming done on Monday. And slept far too much. Because my spoons are non-existent. Let's hope I can get work done properly. . Somehow, I did manage to make a lavender sachet, to order. I think it came out well, but not sure how. I'm gonna go hibernate some more, hoping to muster some spoons. . Night all! Sachets are not on the shop yet, spoons and all, but if you request a custom order, I'll gladly make one for you. . https://www.etsy.com/shop/MamaChatDesigns . . . #spoonie #maine #mamachat #handmade #crochet #progress #sachet #heartshaped #lavendar #wherearemyspoons #spoonieproblems (at Bangor, Maine) https://www.instagram.com/p/CKjea8HreWN/?igshid=muq73o26q3sr