A place to fill with the rants, thoughts and occasionally images of a short, hairy and angry Devonian with Cystic Fibrosis... It ain't easy being wheezy
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I shot a video with @dayglowdunn it's pretty wild. The full thing is on YouTube and Facebook and so far it's gone down bloody marvellously. Give us a like and a share! 馃馃徏
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George and I recorded a companion podcast for the EU referendum live as the clock struck 10pm. It's available on all the usual outlets.
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This was today... Nou Camp this morning, Barcelona Olympic Stadium and then the sensational view from the Museu Nacional d'Art de Catalunya. All sun baked, suitably topped up with Estrella and great laughs. This has been exactly the break away from real life I've needed. Now is paella time.
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Fort Bill is a special round of the World Cup. Here's a clip I felt it appropriate to dig out from the harddrive way back from 2013 when the sun was shining, 98% of the field were on 26" wheels and Stevie was laying it down in practice. #longlivechainsaw
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A new episode of George and mines silly little podcast is live. The link is in my Profile description. This week we talk about when I got my head stuck in one of those picture boards at a theme park age 7 and when George found knives thrown into his garden on multiple occasions along with all sorts of other rubbish. Have a listen. https://itun.es/i6Ys5gQ
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Great morning in the sunshine at Donnington. Running 2nd in class in Practice ready for Quali and Racing this afternoon! (at Pit Lane Donington Race Circuit)
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Happy 80th Granny Anne. You are a total beast in that regard. Grandpa Tone your a bit weird but I'll let it slide... (at Coworth Park Hotel, Ascot)
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Seriously special day at McLaren for a factory tour for Grannies 80th birthday. Ultimate day trip for a Motorsport obsessed family. (at McLaren Technology Centre)
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"What you up to this morning Phil?" "Nothing too much pal. Just taking the parrots out for a stroll down Fulham Road."
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Man's been to the barbers and had his beard and eyebrows seen to. (at Teignmouth Beach)
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Dog walks take me to some pretty amazing views. I don't know how I've never been to the Mamhead obelisk before! (at Mamhead Obelisk)
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Our favourite thing about wet walks is the HAIR DRYER! Apparently its essential to try and eat all the air.
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Afternoon hangs and the all important licking/beard crumb removal with Roz. This Xmas period is gonna be great.
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I look up and find this absolute retard enjoying life, sparko, infront of the fire. You keep doing you Rory.
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My online family.
Over the last few years I've accrued quite a support network of friends from all round the world online all with one shared common theme. We all have Cystic Fibrosis or have close connections to it. Apart from one or two exceptions meeting in hospital corridors for 60 seconds, I never have or never will get to meet most of them face to face due to the fact that we aren't allowed to mix because of the associated risks of cross infection. The thing that I still find weird about this is that I know some of these people better than a lot of people I call my "real life friends" despite never meeting them face to face. We've discussed everything from religion, politics, healthcare you name it. Ive probably debated it online at length. I've confided in these people when I've been going through the tough times and they have confided in me when they needed it too. It's an amazing network and most of the time I truly thankful it exists. This week I was absolutely gutted to hear the news of the passing of one of life's good guys, Anand. I feel it's knocked me off my stride. We met on the ward a few years ago and ever since we've kept in regular contact whether that be passing in corridors refilling at the coffee machine or digitally. During some of my stupidly long 2 month stays Anand would come and go twice in the time before I would get to go home. It's ok to laugh about those kinda things because we were in the same boat. We were pretty similar I guess. Two young guys in their 20's sadly not being able to reach their full potential thanks to circumstances completely out of their control. We shared the same frustration and much the same problems. I haven't really made a secret that the last few months have taken me for a ride mentally and physically. Anand was the guy who helped me through the tough days on the ward whether that was with a smile and wave or advice. It's the little things that help on your dark days. You were a hell of a guy, thanks for everything you did for me. I'm sure it felt like nothing at the time but right now I never feel I got to thank you. I hope that one day I can be 1% as helpful to someone as you were to me on occasions in the last few years. Take it easy dude. Ps. I'm not sure where I would find you now but I still haven't changed my mind on wanting a slice of the flu from you... Your good thanks 馃槉
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