Averey, 32. Primarily adhd/autism blog but also general disability, life hacks, and memes. Always happy to help out, send me an ask if you have any questions! This is a self-dx positivity blog and anyone against it should not follow me. :)
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Please help if you can! Losing this car will wreck our lives even more than this year already has.
Hi friends. We're officially at the emergency gofundme stage of struggling to keep up with bills. My wife's car was towed today for late car payments. We are both disabled and have a ton of appointments we need to get to, including my surgery at the end of the month. They won't be able to get to work anymore, and we're already down one income because I can't work right now.
We have one week (until the 24th) to pay off over $1,200 or their car will be auctioned off. We CANNOT get by without our car. Please, if you're able to give anything at all, it would make a big difference. Even if you can't, please please reblog this.
Kitty for tax

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Only two ADHD tasks
1) this task will take me five minutes but I couldn’t possibly do it because I have an appointment in six hours
2) this task will take five hours but I’ll just do it first thing in the morning before I leave
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the thing about disability is it really does sometimes boil down to "wow i wish i could do that" and then you can't. and it sucks.
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Does anyone know of any good chronic illness journal/planner? Not printable (I don't have access to a printer), an actual, physical journal. Most wellness planners/journals I find are clearly made for people who don't have problems. I found one I liked a while ago, but only bc I used white out tape to cover up a bunch of stuff and customize it. Which takes a lot of time and energy.
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"I'm not one of THOSE disabled people."
Good for you. I am! Get fucked!
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remmick and the vampires present a false dichotomy
Hogwood (the man who sold the twins the mill) and the KKK are very obviously bad, they are outright malicious bigotry, they use the n-word and plan to lynch the moore's and their community, they are so blatantly racist and hateful it's unavoidably obvious
remmick and the vampires however say that they believe in equality, say that they want to create a community, and yet remmick's goal throught the movie is to both metaphorically and literally steal sammie's ability for his own goal of reconnecting with his irish ancestors, a white man wants to harm a young and upcoming black man and use talents for his own goals without giving any regard to said black man's autonomy or agency
when sammie sings 'I lied to you' in the juke joint and calls forth the spirits from the past and future, it's a blend of cultures; west african, east asian, native american, and african american song and dance blend together across time and space to tell the stories of blues; where it takes its inspiration from, the music genres it then inspired, the complex history of black american culture and its intersections with other peoples of colour in the USA
when remmick and the vampires kill and turn the people in the juke joint, and then perform rocky road to dublin, only remmick's irish culture is on display, there is no influence from the black and asian people he has forcibly assimilated into his song, it's juxtaposition with the earlier scene is blatant, remmick is more than happy to assimilate people of colour into his 'community' of 'equals', and yet its only whiteness that is celebrated, that is normative
remmick claims that he's doing people a favour by turning them immortal, conviently ignoring that he literally has to suck the life out of them to do so, trapping their spirits on earth, he claims that he's the good guy, that the KKK were gonna come and lynch everyone at the joint in the morning anyways, conviently ignoring that he's doing the exact same thing; a white man leading a mob to kill a bunch of black people
in the final confrontation with sammie remmick repeatedly dunks him into the river, a forceful baptism. both the celtic irish and enslaved west africans had their religions suppressed and destroyed by colonialsm, had christianity forced upon them by the british empire, and in that scene we see remmick repeating that cycle, using christianity to inflict harm, and sammie reclaiming christianity, despite all the complex emotions he has arround it, as many colonised peoples have and still do, when he recites the lord's prayer
remmick and the vampires are no less racist than hogwood and the KKK, are no less predatory or evil, they're just less blantant about their bigotry, they represent the system, the normalised white supremacy that is seeped into the very foundation of culture in america, the point isnt that remmick would call any of the black characters in the movie the n-word, i dont think he would, the point is that his exploitation and desacration and inserting-himself-into-when-he-wasn't-invited of the juke joint is a microcosm of what white people have done to black american arts and culture since ever since there have been black and white people in america, and even before that
theres a reason vultures are shown early on in this movie
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THEY MIGHT HAVE FIGURED OUT WHATS CAUSING LONG COVID?!?!???
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BE ACCESSIBLE THIS PRIDE MONTH!
as of posting this, pride month starts tomorrow, and PLEASE keep your disabled community members in mind!
physically disabled people, mentally disabled people, the deaf community, those with chronic illness, the blind community, all queer people should have the choice to be able to celebrate pride just like anyone else! ☆
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'female lions with manes aren't intersex, they just have a hormone imbalance! it's like PCOS!' wait until you realize that PCOS is relatively welcomed as intersex by the community. people have got to talk to intersex individuals for once before saying dumb shit about us online.
#also... is it just me or is the phrase 'hormone imbalance' bordering on intersexism?#cuz like. sure there are cases where someone has way too much of one hormone#but people seem to use it to mean 'someone with more of the “wrong” hormone' way too often#which forces us into their binary ideas of sex because we have 'too much' of a hormone the sexes we're assigned aren't 'supposed to' have#<- prev tags hellloooo#society would rather call us damaged perisex women than acknowledge that we're intersex
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'female lions with manes aren't intersex, they just have a hormone imbalance! it's like PCOS!' wait until you realize that PCOS is relatively welcomed as intersex by the community. people have got to talk to intersex individuals for once before saying dumb shit about us online.
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Inside my ill body
A venting art that i made in pain day

The text is two quotes of Blue eyes musics mixed
"I am trying tô mourn somebody im not anymore" and "suddenly im right back in It shaking and scared of dead"
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"Two researchers in the US and Australia have discovered important mechanisms that prevent B cells from attacking the body’s own tissues in autoimmune diseases like arthritis, lupus, and multiple sclerosis—and in the process have won a prestigious prize.
Normally, the body’s immune system protects us from viruses, bacteria, and foreign substances. However, in autoimmune diseases, the immune system starts attacking tissues in the body instead.
Researchers had long tried to discover the cause of autoimmune diseases. But, Christopher Goodnow and David Nemazee, independently of each other, adopted a new approach.
They asked why we do not all develop these diseases. Their focus was on B cells which, together with white blood cells and T cells, are the building blocks of our complex immune system.
“They have given us a new and detailed understanding of the mechanisms that normally prevent faulty B cells from attacking tissues in the body, explaining why most of us are not affected by autoimmune diseases,” says Olle Kämpe, member of the Royal Swedish Academy of Sciences and chair of the Crafoord Prize committee that awarded the pair 6 million Swedish kronor ($600,000).
Neutralize B cells
In recent years, physicians have started to experiment by using existing drugs to neutralize B cells for patients with severe autoimmune diseases, including lupus, rheumatoid arthritis, and multiple sclerosis, which has proven to be very effective at improving their quality of life.
Thanks to this year’s Crafoord Prize Laureates, we have gained fundamental new knowledge about what is happening in the immune system during autoimmune disease attacks.
“This also paves the way for development of new forms of therapies that eventually can cure these diseases—or might prevent them in the future,” said one professor of clinical immunology at the Royal Swedish Academy of Sciences...
youtube
More details from the video, since the article glosses over the particulars:
"The laureates discovered what is now called B cell tolerance.
When B cells develop in the bone marrow, not all of them are perfect. To remove the faulty ones, a mechanism starts, in which defective cells are programmed to destroy themself through apoptosis.
The laureates discovered two new mechanisms that are used if some of the bad cells are left. Re-editing, where the immune system alters the combination of receptors, and anergy, that silences B cells with self-reactive receptors.
The laureates were able to demonstrate that these mechanisms sometimes fail. This means that faulty B cells can cause an attack on the body's own tissues – leading to autoimmune diseases.
Thanks to the laureate’s discoveries, doctors like Anders Bengtsson soon felt able to start treating patients with lupus, arthritis, multiple sclerosis, and many other autoimmune diseases, with medicines that eradicated B cells.
Anders Bengtsson: "I'm very happy that B cells has gotten so much attention because of the laureates. I have seen my patients getting so much better and getting a better life."
Autoimmune patient: "Today, I feel very good. I really have hope in the research that it will revolutionise things and perhaps even cure it all. That’s what I want, hope for, and believe in.""
-Article via Good News Network, April 6, 2025. Video via The Royal Swedish Academy of Sciences, January 29, 2025.
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doctors will say shit like, "this test shows for sure whether you have [medical condition] or not! negative means there is no way you have [medical condition]!"
and then you later find out the test is absolutely infamous for coming back negative even when someone has that condition
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ASAB is so often used to neglect chronically ill people seeking a diagnosis. it hurts intersex and perisex people alike.
we need to get rid of the sex binary for so many reasons and disabled liberation is one of them.
lupus is a disorder with a ratio of 9:1 people who were AFAB to people who were AMAB. it is a disorder that is wildly dominated by people who were AFAB.
doctors often treat lupus as a "women's disease" and when they're not treating it as a "women's disease" they're treating it as an "AFAB disease." there is no room in the system for intersex people (no statistics on our prevalence in the lupus population) and no room for people who were AMAB (despite them being 10% of people with lupus) the biology of trans people, particularly those who have medically transitioned, is of course not taken into account.
this leads to neglect of people who were AMAB, intersex people, and trans people (particularly transfeminine but not exclusively) who have a dangerous, often life threatening autoimmune disease. doctors don't bother looking because "how could you have it? you don't fit this narrow presentation of lupus that I created in my head." people have died from this. lupus kills, especially when left untreated.
abolishing the sex binary would largely fix this problem.
the reason so many people who were AFAB have lupus is because of estradiol. (read more about why here) estradiol is a major determining factor in who develops lupus and who doesn't. it's the theorized reason for the sex disparity. .... but people who were AFAB aren't the only people with estrogen-dominant endocrine systems, and not all people who were AFAB have estrogen-dominant endocrine systems. you can develop lupus with a testosterone-dominant endocrine system but it is far less common.
so why do doctors look at ASAB instead of that actual cause, estradiol? (rhetorical question but the answer is transphobia and intersexism)
sex abolition says that in replacement of overarching categories of sex we instead identify individual traits. lupus is one example of thousands where focusing on a specific trait rather than a sex would actually be more helpful in narrowing down diagnoses.
intersex and trans people will continue to have their diagnoses missed until we abolish the sex binary and replace it with something more useful. there is no disabled liberation without intersex liberation.
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I’m going to be a bitch for a second, but when I’m conversing with someone newly diagnosed with MCAS/POTS post covid and they complain about “the long wait” to get diagnosed and that “long wait” is 3-4 months my entire brain blue screens.
Like on the one hand, yes those 3-4 months must have been so, so scary and I am so unbelievably glad we’re in a place where doctors know enough to reconize it now. Like truly, I am so sincere I am so happy for them.
But I’m also just like... 30 years, man.
I spent 30 years being told from the age of eight I was manifesting my allergic reactions through anxiety by health care professionals.
Fuck, five years ago when I was starving to death from how severe my MCAS had gotten an allergist told me it was anxiety.
And you got diagnosed in three months.
MONTHS
MONTHS
AND YOU’RE COMPLAINING
I’m not mad at them. I’m not. I’m just sad for myself.
But also, hey, yeah. If you come into an MCAS forum and wonder why a bunch of the old timers get upset when you complain it took months for a doctor to listen to you, this is why.
It's not that you deserved to wait longer. It's that we didn’t either and and sometimes even good changes can unearth a world of hurt.
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idk who needs to hear this rn but suffering is not noble. take the tylenol
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