arthritisandme2015-blog

[arthritisandme2015-blog]

[arthritisandme2015-blog]

Attention all chronies I'm currently doing a project about what it's like to be a person who lives with chronic illness. I'd appreciate any messages about what it's like for you to live like what you have .

[arthritisandme2015-blog]

Attention all chronies I'm currently doing a project about what it's like to be a person who lives with chronic illness. I'd appreciate any messages about what it's like for you to live like what you have .

[arthritisandme2015-blog]

Made my day

Me before I joined the spoonie community

[arthritisandme2015-blog]

Looks like my survival kit

My infusion survival kit…#actemra #infusion #spoonie #rheumatoidarthritis #ra #lupus #fibromyalgia #myofascialpainsyndrome

[arthritisandme2015-blog]

My first infusion of Actemra

[arthritisandme2015-blog]

SPOONIE GIVEAWAY

I can’t believe I’m on the verge of 40,000 followers!!! You guys are all so amazing and supportive! I can’t believe I haven’t done a giveaway yet, but it’s finally time.

Winner will receive:

A letter from me (and a new pen pall if you want!)

A journal and pen

EDS awareness pins

Handmade herbal heating pad

A zebra print scarf and wristlet 

Trident gum

Hand lotion

Lush bath product - Fun

Organizaion/List sticky notes (for when the brain fog sets in)

A used copy of Chicken Soup for the Teenage Soul

3 packages of stickers

A set of puzzle books (to keep you busy on low spoon days)

A mini microwavable stuffed animal (to keep your hands warm)

Although this giveaway is spoonie themed and contains some Ehlers Danlos related items, ANYONE can join. The only rules are:

Must be following me (blogger-in-the-rye) and ask-a-zebra

Reblogs only, likes don’t count

Must live in the US (I can only afford to ship nationally)

The winner will be chosen on August 1st using an online random generator! Good luck!!!

[arthritisandme2015-blog]

It sure does

Chronic illness shows you who your real friends are.

[arthritisandme2015-blog]

Just some pictures I really enjoyed

[arthritisandme2015-blog]

These pictures are only taken 1 a week and the last 2 were taken this week predisone (60mg) has really made me gain weight this time I have SJIA the doctors don’t don’t have don’t have much of a clue on how how to treat me it’s sucks

[arthritisandme2015-blog]

So an anon asked about before and after photos of prednisone. So I have the top row before prednisone, the Middle is photos a couple weeks into the prednisone when the swelling first started, and then more recent photos of my horribly puffy swollen prednisone cheeks and body. I get really self conscious about it all since I’ve always been tiny and prednisone makes me swell like a balloon but I know it’ll all go away once I get off the prednisone just like it has in the past. I regardless love my body and try to always have a positive self image but it really does bother me still when people comment on my weight or swelling since most people only have negative comments. But here you go Anon! Enjoy!

[arthritisandme2015-blog]

WHEN YOUR JOINTS LOCK UP

[arthritisandme2015-blog]

Chronic illness shows you who your real friends are.

[arthritisandme2015-blog]

Things aren't easy with arthritis especially when you are a kid and you feel like your friends ,teachers ,family, or anyone understands you ... well I'm here for you guys I have only had SJIA (systematic juvenile idiopathic arthritis ) for 8 years I know it's a rough road it will take a toll on you ... I thought I was close to remission and BAM!!!! Huge flare ... I've had both knees operated on , my hip had marrow test done , and 9 million other tests . Worst part of it all is my bones are so brittle so I fall down a step or anything and I break a bone . God knows it's not easy

[arthritisandme2015-blog]

Oh how I'd love to show all these people thinking that I'm too young for arthritis the children's rheumatology ward!

[arthritisandme2015-blog]

So I was at summer camp last week and we were doing this talent show and this kid in a wheelchair got up on stage and said “I’m going to be doing stand up comedy.” And then he stood up from his chair before saying “On second thought, I’m gonna do sit down comedy instead.” And I’ve never heard an audience laugh so hard