astrifica

[astrifica]

As someone with an undiagnosed disability (99% sure its fibromyalgia) that I've had since I was a little kid, I've never understood why adults feel the need to enter the Pain Olympics whenever a kid says they're in pain.

I cannot tell you how many times an adult told me over the years that "you're too young to be in that kind of pain" or the classic "wait until you're my age", insinuating that I was a little bitch who could never grasp what true pain really is.

Just yesterday I was in class and a guy near me mentioned that his back hurt, which our teacher heard and said "you're too young, just wait until your 50s, then it'll really hurt", and I hear this guy very quietly say that he has scoliosis.

It's so annoying. Why do you need to win the Pain Olympics? Why do you need to prove to a child that your life is harder than theirs? This is the reason I didn't know I had chronic pain until I was 16

[astrifica]

[astrifica]

Nothing shuts down a bougie conversation like "well, when I was homeless—" Nothing. It's one and done. They are fucking taken out. The conversation is dead. Done.

[astrifica]

It’s crazy how low self-worth fucks with peoples lives

[astrifica]

if fighting fatphobia is not part of your politics i don't trust you.

[astrifica]

'Cause people tend to not get the memo: People acting strangely in public is not a danger to you. Pacing, talking to themselves or something you can't see, laughing to themselves, stimming, twitching, ticcing, making "weird" noises--it doesn't fucking matter. They're not your personal freak show, they're not broken, they're not a murderer and they're definitely not going to be fucking helped by you calling the authorities or anyone else on em. These actions alone are not indicative of danger to you, as a random person on the street. Shut the fuck up and move on, leave disabled people alone.

[astrifica]

you do not have to “contribute to society” to be valuable or protected from the things that hurt you.

[astrifica]

I hate how often some (typically abled) people will go “well, if you can’t [get a specific support], then what?” when it comes to disabilities. As if it’s a “gotcha” moment. And then act like you’re exaggerating when you answer that question honestly.

Disabled people often die from a lack of support. A lot of disability aids are not a luxury, but a basic need in order to live.

“Well what happens if—” people die. People hurt themselves. People hurt others. Disabled people don’t magically become abled if our needs aren’t met.

If a bedbound quadriplegic is caught in a housefire, and there’s nobody there to save them, they’ll probably die. They won’t magically become able-bodied out of sheer will.

If a nonspeaking/nonverbal autistic is denied access to alternative methods of communication, they’ll suffer in silence. They won’t spontaneously become capable of speech.

Disabled people are disabled all the time. Our disabilities don’t go away just because they’re inconvenient, or if we’re in danger.

[astrifica]

Love local coffee shops. your “refugees are welcome here” sign goes really well with the one that says “bathrooms are for paying customers only”

[astrifica]

[astrifica]

Alt health clowns: all doctors just diagnose whatever fake diseases they need to push evil toxic pills!!!

Actual doctors: wow sorry to hear that your bones dissolved and your eyes flew out and exploded and all your skin fell off, try drinking more water and sleeping better and if the pain gets worse in 6 months we'll do some tests to see if you deserve a aspirin

[astrifica]

some people’s new years resolution needs to be to stop going out in public while horribly sick with infectious diseases

[astrifica]

If you've ever told a person who's had to be bedbound for a period of time that you wish you could "just stay in bed", DO IT.

Stay in bed. For days. But don't get up if someone needs you to, or you get bored, or you get antsy. Don't do anything other than rest. Just lie in your bed, whether you need to get stuff done around the house or socialize or anything else "productive". You'll have to cancel on people, you'll disappoint them, they won't understand.

And if you're thinking, "well, i CAN'T just be in bed. There's stuff that has to be done - I have plans", maybe ask yourself why you assumed a disabled person doesn't have plans or things to do or desires.

[astrifica]

i hate fatigueee its so stupid. ohh when im home i'll do this or that Nope. replacing all of your bones with pure titanium now. Goodbye

[astrifica]

Guattari’s idea is both refreshing and profound. He suggests that when a person experiences psychosis, her psychosis changes according to her surroundings, and, therefore, treating her with fear by locking her up, keeping her in restraints, overmedicating her, and exposing her to other methods of suppression only serves to change her psychosis to a psychosis of fear and paranoia. Who, psychotic or not, in the same situation wouldn’t also feel terror and paranoia? Indeed, there is a legitimate reason to be paranoid and afraid. Further, the shock of being treated inhumanly, the sense of alienation and of betrayal, and, perhaps paramountly, the realization that humans can and do treat other humans in this way, is itself shocking and traumatizing. It is a shock and trauma that alters the psyche, changing the personality of the person who undergoes it.

Cynthia Cruz, Disquieting: Essays on Silence

[astrifica]

hey i'm sorry that we're all forced into unsustainable and often meaningless and abusive labor in order to pay for basic necessities that should be free, but maybe don't be shitty to disabled people who aren't working or can't work. they're not the enemy. their days are still busy working to stay alive, it just looks differently than yours.

[astrifica]

what is it with able bodied people saying “get well soon” after you say that you’re chronically ill?? like? i am not gonna? and i once literally responded with “i’m not gonna, it’s chronic, as in permanent.” and they went like “oh well, hope you get better!” like bro 💀