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04.06.16 // surgery day

[c0litis]

UPDATE // 06.06.16

Hello all!

I’m sorry I’ve been so absent lately. The stress of my project had been getting to me, as well as the stress of my flare up i previously spoke about.

In terms of the “flare up”, as it was so ongoing, and completely ruining my social, educational and general life, my doctors decided to stop playing around with my meds, (at last, it was giving me such a headache trying to remember what dose of what I was on... and when I was supposed to take it all. Now I am back on my normal dose, so all is well) they decided to do further investigation.

On Sunday 04.06.16, I had what is called a flexible sigmoidoscopy, which in laments terms is a smaller version of a colonoscopy, where they look at your small intestines and sigmoid. The last time I had this done - or at least something similar - was my first colonoscopy back in 2014 which led to my diagnosis of Ulcerative Colitis. Being 3 years ago, I was 16 years old and still under the paediatric clinic. This meant I was treated to the wonderful drug that is Picolax(obvious sarcasm if you’ve had the pleasure of taking it), my own private room, my own clothes and full sedation. Being 19 years of age, and under the general adult clinic, I was in a ward full of people, dressed in a fetching floral backlesss gown, and what they described as a ‘mild sedation’.

This ‘sedation’ however was merely a drug that made me unable to control my body, make my mind hazy and confused, and dull down all senses. This of course made my anxiety go haywire as I wasn’t able to think straight, so a second dose of sedation later and I was fully under. The doctors struggled to bring me round from this, but clearly I’m fine as I’m typing this! The only thing I remember from the procedure is seeing my small intestine on the screen in front of the doctor performing the procedure, as he cut a large biopsy from me. Maybe that is the reason it’s the last thing i remember. 

Today I went back to the hospital to get my results and have my 6 weekly check up with my consultant, who for the first time had GOOD NEWS for me!

According to my doctor, I have NOT been having a flare up, which is great. This means that my Colitis has been under control and is behaving itself. Now, you might be thinking “But Jayden, you said you’ve been having flare up symptoms!” and you would be right. The not so good news was that not only do I have Ulcerative Colitis, but I also have Irritable Bowel Disease, as well as possible Celiac Disease, which they will be looking into further. 

But for now my loves, I am doing well, and I appologise to everyone for being so absent, and I want to thank the people who have messaged me and wondered where I am! I will be sharing images from my photography project, which again is what inspired me to start this blog - being on Chronic Illnesses and all that. 

Jayden.

[c0litis]

Healing is not linear

[c0litis]

26.04.16 // severe flare up // good day - got a lot of work done at college and started up my inspiration board (with the input of my friends)

[c0litis]

26.04.16 // UPDATE

For a few days now (maybe 2 or 3) I've been almost positive my flare has been dying down. The pain was lessened and the blood loss less frequent, and I started to think I was slowly pulling myself out of it (no thanks to the hundreds of blood tests I've had to see what's happening in the past week), however tonight has proved me wrong once again and I am back to being in extreme agony constantly and I don't even have the energy to get up and get pain killers. Let's hope I get some sleep! If anyone else out there who suffers with colitis has any tips to lessening the pain then I would be extremely grateful to hear your advice!!

[c0litis]

22.04.16 // severe flare up // I finally went back to college after a week off because of my flare

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21.04.16 // severe flare up // hospital tests

[c0litis]

21.04.16 // UPDATE

Currently on my way to the hospital for an emergency appointment to find out if I have to become an inpatient because they can't get this flare under control. The only other thing they would be able to do as an outpatient would be to give me steroids, but I'm allergic.

[c0litis]

20.04.16 // severe flare up // good day

[c0litis]

18.04.16 // INTRO

Hello there!

My name is Jayden, I am currently 18 years old, and 3 years ago I was diagnosed with a chronic illness.

After suffering with severe stomach pains and what eventually escalated to severe blood loss, through countless hospital appointments that ‘proved’ that there was nothing at all wrong with me, I was finally diagnosed with Ulcerative Proctitis, another name for Ulcerative Colitis of the rectum.

This blog is dedicated to updates on my health, my colitis journey, and my self-exploratory photography project.

I will be updating (hopefully) daily, and using this in place of a diary of sorts - my chronic illness chronicles.

I hope to meet other chronically ill people through this, and be able to share experiences as well as tips and tricks!

[c0litis]

Hospital visit // 14.04.16