chewnecklace - Tumblr blog

[chewnecklace]

i started doing things scared and doing things alone years ago the real challenge is doing things tired

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can we stop making things meant for disabled people a trend and making it 100x harder for disabled people to actually be able to get the things they need?? please?

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doctors will be like. yeah. there’s something so so so so wrong with you. idk what and I don’t really care

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it’s okay to do things that make your symptoms worse (as long as you’ll stay safe)

every once in a while you need to eat something yummy. or go on a walk. or a trip to the zoo. take a hot shower. cry your eyes out. dance. listen to music. draw for way to long. write. laugh. sit in a cafe with a friend. paint your nails. dye your hair. go on a run. pet a cat

sometimes you need to do things that are cathartic or make yourself feel alive. sometimes you need the reminder of why you’re fighting so hard to stay alive

this is your reminder that just because it makes your symptoms worse, it isn’t always the wrong thing to do. there can be value in these actions

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I just saw such a great disability term I personally haven’t ever seen before and I wanted to share it with everyone so here it is:

Usable hours, aka the amount of hours a day someone has where they can carry out tasks (school, work, showering, cooking, household tasks, being out of bed etc.)

I don’t know why but this feels so revolutionary to me 😂

If I’m honest it changes a lot for me but on average I can manage 4-5 whereas a healthy person might have 10-12 usable hours. Otherwise I’m sitting on the couch scrolling and watching YouTube or resting in bed.

Some days I can handle more and sometimes a lot less depending on how much I’ve done previously that week/month etc. It also depends a lot on the type of tasks, I manage mental tasks pretty well and typically write a decent amount but physical tasks exhaust me much more quickly.

I know this is a lot more than some people but instead of focusing on that I’m trying to focus on how much less it is than a healthy person. Having half as much time in a day I can be functional as the average person and during that time I’m still exhausted/in pain/having symptoms/struggling in ways an abled person wouldn’t.

[chewnecklace]

ID: a black “handicap accessible” style wheelchair user silhouette holding up a middle finger. They also have a red spiked mohawk. End ID.

[chewnecklace]

There's a bunch of adhd advice out there that's like "people with adhd tend to work better under deadlines due to the anxiety so here are ways to artificially induce a stress response in order to get you to get work done" and it's like well what if I don't want to be stressed out all the time in order to function

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hey man can i come over and be sickly in the corner of your living room

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wheelchairs and canes and glasses and hearing aids and every single other disability aid should be free btw and if you disagree i hate you

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Hi guys!

Crip camp is back on netflix! (It’s also free on youtube)!

If you’ve ever asked me a question about disability and/or anything regarding the experience, please go watch it ☝️☝️

It’s an amazing watch, the people involved were extremely passionate. It’s about disability activism in the US and history. It’s also great for learning about the disabled experience.

I could not recommend it enough. Especially to able-bodied people.

[chewnecklace]

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Pass it along!

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the government "checking in" on disabled people to make sure were still disabled is one of the most demeaning and humiliating things out there, how is there no checkbox that says "this persons disability is lifelong and incurable" why do you think people's amputated limbs will grow back, are you on the hunt for the return of jesus christ and your way of catching him is hoping that the blind will see again????

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it's never too late to start brushing your teeth again. i basically never brushed my teeth for a whole 10 years. a decade. A DECADE. i still struggle to brush my teeth once a week, but it all started with brushing my teeth once every few months. so i mean it when i say brushing your teeth once a week, a month, a year, or even a decade, is better than nothing.

and still, nothing is not shameful. it is not immoral to struggle with self care. and it is also not pointless to keep trying. anything you can do, even if its wiping plaque off with a towel, is enough. it is good to take care of yourself however you can, even if it's just trying to muster the will to. reading this post is good, too.

i believe in you and i am proud of you, even in the smallest of steps. it's okay. you can give yourself grace.

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there's something so raw and soul crushing about spending your late childhood+teen years suicidal then growing up and actually wanting to live, after an ungodly effort, only to see your health deteriorate because of chronic illness.