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Just a little PSA for all our mental health (and chronic pain*) spoonies out there! A lot of doctors neglect to mention this little side effect, which means a lot of us are suffering extra from the heat without knowing why.

*Many psych meds are used to treat chronic pain as well, if you didn’t know!

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Tfw the meds they give you for an itchy rash make you itch more 🙃

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it is possible for someone to be 'more disabled' than you, and that's okay. all it means is that they have higher support needs and their disability disables them more than yours does.

that is not an attack on your validity as a disabled person.

that does not mean that you are not disabled.

someone else's disability has no impact on your own. there will always be someone more disabled than you. that is completely okay.

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THEY MIGHT HAVE FIGURED OUT WHATS CAUSING LONG COVID?!?!???

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Are we really doing the bus arguments again? The vast majority of people who give wheelchair users grief over use of the wheelchair space are not doing so because they have a disability buggy. They’re doing it because they don’t think wheelchair users should have access to public transport if it means they have to spend a moment moving their child’s pram. Believe me, we can tell the difference.

I got on a bus once and asked a couple to please move their buggy to the other side of the bus so I could use the wheelchair space (the only space a wheelchair user can travel in, and with a huge yellow sticker explaining that it’s legally reserved for wheelchair users and anyone else will be asked to move is a wheelchair user needs the space).

I wasn’t even asking them to get off the bus, just to move their child a few feet to the space on the other side of the bus, that was also closer to where they were sitting. Somehow they felt that was unreasonable and yelled at me that I shouldn’t have boarded the bus, and couldn’t I see the space was taken, was I stupid blah blah blah

After that didn’t make me go away, they then tried to pretend like it was never actually their child and said I’d have to ask the “real parents” because they wouldn’t move a baby that “wasn’t theirs”.

Unsurprisingly no one else claims the child (who is very obviously travelling with the yelling couple), so the bus driver has to get involved and say he can’t move the bus with a wheelchair not in the wheelchair space and that if there’s an unaccompanied toddler on the bus then that’s a very serious situation. After the weirdest five minutes ever the couple eventually realise the bus driver is being very serious and no one is moving until this is sorted. So they have to admit that actually it was their child all along and move them to the other side of the bus which takes all of five seconds.

They would literally rather temporarily disown their own child than take five seconds to allow a wheelchair user access to the same public transport they take for granted.

Compare that to another time I got on the bus, went to ask the person in the wheelchair space to move their buggy only to see that the buggy is adapted to carry an oxygen tank (and probably other stuff) and has one of those “my child is disabled, please treat this buggy as a wheelchair” tag on it. I let the parent/ carer know that I didn’t realise it was a disability buggy and hope she has a good day before asking the driver to let me off because there’s already a wheelchair user on board and it’s first come first serve.

Just, please don’t use hypothetical disabled people to invalidate and talk over real disabled people talking about the real issues we face.

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Secret confession. I am somewhat worried what I think is tonsillitis might be throat cancer. My grandpa died from throat cancer and everyone always said he complained of frequent sore throats before his diagnosis. I know the likelihood is low still (he was a drinker and a smoker and I am not) but man I can't get the idea out of my head

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Salt cravings are sometimes pouring yourself a cup of water and salting it

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So beginning to think there is a possible mold problem in the HVAC system and that's why I have sore throats and possibly more headaches than normal. Not sure tho. I just don't think yellow insulation should be that thick with dust and also wtf is that orange thing

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Going back on my old meds and now I'm dizzy again. Just gotta ride this out until my brain gets used to it

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Tfw you injury yourself badly enough during pt exercises that you still hurt the next day

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I think the funniest way I trick myself into doing PT exercises is by mentally recording myself doing hypermobile friendly exercises and explaining (in my head) how one should do them to reduce injury

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Don't wanna go to the doctor cause I've been there too often these last few weeks and I hate coming across as a hyperchondriac

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Fuck it. Imma see if my PCP will represcribe duloxetine without me having to see my old neuro. After all maybe that'll stop or at least decrease the headaches, nerve pain, and muscle aches.

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Tfw something is on the edge of your ability to smell so you can't track it down or figure out what it is you might be smelling in the first place or if it is even real

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When you not only have a headache but also have impaired hand eye coordination skills. Like whoopee I live hitting a cup and listening to it bam chatter shring with a godawful headache