dwarfysays
dwarfysays
Yeah! That's What I Said
3K posts
Hi! I'm a perpetual student. Much of my waking life is spent in a medical school campus. I am but a simple mind living in a complex world. In school forever, and ever, and ever, and ever...
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dwarfysays · 3 months ago
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Wednesday, May 28,2025
It’s our wedding anniversary today. Got dropped off to work because Jun’s G wagon was in the shop getting a radiator replaced. Then I worked my butt off in the mouse room.
At 14:51 C texted
Dr. R says to bring him to ER.
From P
You there now?
At 15:08 On our way
At 17:05 Idk if they are just super busy or not seeing him as an urgent case.
17:51 Just in the back now in a treatment bed. Starting IV.
Looks like Dad is going back to the hospital. C has taken him to Sharp Memorial ER.
At 20:48 C texted: They will be admitting him into hospital.
N: Any lab results yet?
Just drew urine sample. He didn’t say. Fingers a concern. Lips seem swollen. Started IV. Dr. Ordered antibiotics.
21:10. Anyone available to relieve me? It’s mi anniversary tomorrow. Btw…Happy Anniversary D n J!
At 21:51 K: Oh man sorry I just saw this. Any relief?
P at 21:53 I can’t, but you should go home and get rest. Dad will be in good hands.
N at 2213: I’m here for the night and most of the day tomorrow.
Nobody should have to stay with Dad at the hospital. If he dies, he dies regardless of whomever is there with him. The nursing staff is less likely to look after a patient if there’s family there with him. Everybody could use the break to rest and recover.
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dwarfysays · 3 months ago
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Monday, May 26,2025
At 8:23 AM text from C
I called the home health office to tell them he’s not getting better. I’m going to message Dr. R again.
I don’t know what else to do
Reply from N
Let him rest in bed. Keep him comfortable. Pray 🙏🏽.
If this is it again. I need someone here everyday. Last time it was too hard. And I need to work this week.
I can be there Wednesday afternoon through Thursday evening
At 9:58 AM text from C
Talked to the first RN Morgan that saw dad. She is going to try to send a different nurse today.
She said to get an urgent appt with the primary tomorrow. And to decide what our goals are. I asked dad if he’s going to get better or fight to get better. He said yes but he doesn’t seem strong enough.
I don’t know how to keep things moving for my kids.
Son R has so many things coming up with his graduation. M had finals and move out in a few weeks. R2 other son seems to be distant from dad.
Time seems to be drawing near and C seems to be accepting of what we are all dreading.
My kids and I are like, he is dying and he should be allowed to go.
Do we sound callous? It doesn’t seem right to prolong his suffering though. GPa is not really living, he’s just alive and suffering.
Ok
At 11:56 C texted
He’s drinking a smoothie I made.
Frozen berries
BananaProtein powderCoconut milk
At 13:11
I can’t stand this nurse. He’s been declining and she never messaged the doctor
N answered
No freakin way
She claims they know he’s been WTF
Had an argument with her. Rho had to break us up
Afterwards She called administrator to report his condition. Said I was argumentative and frazzled. In front of me. I interjected and told the man she had on speaker that I want to speak to him immediately
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dwarfysays · 3 months ago
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May 23, 2025, Friday
Text from K about Dad (her grandpa)
Slowly grandpa is unwilling and unable to use his feet & legs. Transfers to the toilet & couch are becoming increasingly harder. He also can’t comprehend how to place his hands when trying to stand or transfer.
We watched some gait belt Videos as a refresher to help aid him. Encouraging him to move his arms more often.
Tomorrow my hubbs and I will sit with Dad.
But first, I need to mention that N called me (probably on C’s behalf) to talk to me about Dad.
She basically said Dad is quickly deteriorating. She said he will be bedridden in a week and will not make it to his 88th birthday on June 6. N was probably trying to gage how much I care about helping C’s fam out with Dad and reporting back to that troll C.
To be honest C has become exhausting, overly demanding and annoying. She has no consideration for us folks who have to actually come to work in person. She believes we can drop everything, when she needs a break with Dad.
She totally misses the break she had last weekend when K and I each spent a couple of nights in the hospital with Dad. I hope she made the best of that free time.
It will all be over in about 2 weeks.
You may think that I have no love for my father or for C. But I’ve had enough of her trying to extend his life without it being a good quality of life. J tried to make his point about quality of life. But it all fell on deaf ears.
I need to say this out right: Dad never tried to help care for Mom when she needed him. But when he got diagnosed with prostate cancer, she took care of him to the best of her ability. When Dad was able bodied, he would run away in the minivan when things got tough.
Now he’s very sick. The woman who took care of him passed away. His youngest daughter has rallied the family to care for his incompetent, decrepit ass .
It’s not fair that the true caregiver of the family passes away before he does. It’s not fair that Mom gets stage 4 lung cancer and dies even though she never smoked. Dad smoked for about 20 years and out lives friends and family who did not! It is NOT fair.
It’s not fair to tell your youngest daughter that she has to be the caregiver because that’s tradition. I have yet to find such a thing.
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dwarfysays · 3 months ago
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Wednesday,
May 21,2025
My thoughts
Text from A yesterday
How much longer do they wanna prolong gpa’s suffering?
GPa asked what he wanted: TO LIVE
Pretty sure only us and uncle J have this perspective so..we look like villains.
J and us are thinking about quality of life. Is it worth staying alive if your current condition is shit?
Text from Hubs to A
K is making herself look good and making it seem we are not helping enough. If you are able to volunteer some time to help. I will be the second person. Reply to the group so they know.
Text from the brown nosing K this morning
Hi fam
Wanted to take a quick moment to share my experience with grandpa & his current status. In hopes to shed
Last night I had a chance to visit grandpa since his last hospital stay. (There’s no way to soften this information); but he is very tired and very weak. His breathing is very labored.
He is dying. The flu, bone cancer, chemo, repeat UTIs are taking their toll on him.
He’s not eating much despite the encouragement and spoon feeding. He can’t walk independently and absolutely needs 2 people to aid him. At least 1 of the 2 people need to be able to lift & support his whole body weight.
Right! Because he is straight up dying.
The nurse says we should encourage mobility as much as possible but he is a huge fall risk- even when sitting down.
Damned right this is bad because he is straight up dying. And where is the wheel chair??? I relayed the PT’s advice about using it to get him around the house. Why are you all disregarding that point?
I had the opportunity to help auntie c get him ready for bed: potty, teeth cleaning, whole body sponge bath (YES that does include the privates), lifting his legs/ rolling him over, change diaper, change of clothes- everything! The whole Shibang.
I did too. I helped C and when it was N’s turn, I helped her. I didn’t see the point of advertising that fact. Nor did I make a big deal out of my spending the weekend in the hospital with dad.
It was exhausting as hell.
Truly- I’m not gonna edit that.
The emotion you need to hold and set aside & the physical labor (out of love), together it took a toll… and I was only there for a few hours.
Auntie c and uncle R ENDURE that 24/7.
It is a heavy cross to bear. And I believe this is not one they are supposed to bear alone.
This is the cross C made us choose to bear. Seems like the medical professionals haven’t the heart to tell C that he is at the end of his lifespan.
We’ve all made progress with more involvement, care & support. But I believe there can still be more.
We all have our baggage. Let’s put up in storage and DO what we need to do. Let’s cover each other’s 6 and mobilize equally.
The Burn Out is real. Let’s alleviate that as much as possible. 🙏🏻
Ooooh! Burnout is real. No shit! All care givers go through this. No shit they need help! Are you mad I did not get off work early yesterday. Again I did not advertise the fact that I too am sick. Despite my cough, I stayed in the hospital with the old crotchety man.
OK I’ve been taking my lunch break to journal and this bitch is anxious for me to leave. Welll! I’m not getting up until I finish here.
Why don’t YOU leave?!
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dwarfysays · 3 months ago
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StarBucks
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dwarfysays · 3 months ago
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Sunday, 5/18/25 Dad’s Hospital stay notes
06:28 Nurse Emily blood sugar taken= 87. 2 units of insulin administered.
Breakfast given. Finished 1 pancake, 1 small piece of sausage (tough and rubbery), 1/2 apple sauce. Requested coffee NA Dan getting coffee, 1 cream and 1 sugar substitute. Almost finished coffee.
07:30 inhalers given by Respiratory Therapy
07:40 sleep
09:25 he really needs to poop. Already pushed nurse button. Nobody around.
09:35 got positioned on the bedside commode, blast of gas and loose stool. Offered to have him sit up in chair. He chooses to return to bed.
09:46 back in bed sleeping
12:31 blood sugar 134
12:43. 5 units of insulin to be given.
13:05 finished all chicken noodle soup, finished all baked tilapia, finished baked lay’s potato chips. Finished all but 1 piece of honey dew (from mix of cantaloup and hd).
14:12 PT arrives
Pulse 93; O2 98%
BP 119/67
Doing the short walk around the bed, pulse rises to 106. Walked from right side to left side, then sat on bed. Then got up and walked back to the right side of bed.
On a scale of 0-10 , 10 being so exhausted he could collapse and 0 not tired at all, he was an 8.
PT recommends wheel chair for distance more than to the bathroom and back (~10 feet)
Start with only short distance on walker 8-10 feet. Looks like if he wants to go to living room, will have to start with wheel chair.
14:45 falls asleep Got NBA game on TV Den vs OKC.
15:17 vitals good. 131/66 BP
15:25 administration of antibiotics thru the port (pic line).
Work on discharge papers.
16:45 blood sugar 129
Will have dinner.
5 units of insulin in upper right arm
17:00 starts eating. Only 1 small piece of chicken and no more. I think he has difficulty chewing meat. He claims the chicken is dry. Says he ate a lot but only ate 4 pieces of melon , 2 spoonfuls of mash potato and gravy and 1 small cut piece of chicken. “A little bit is good enough”
Only a tiny bit eaten. Says he’s full. Said one time he felt sick. Does not have good appetite.
Was able to eat all of linch since it was soft fish and I fed it to him. Tried with the chicken. I think he did not want to do the extra work of chewing more and longer. Chicken is harder than fish. I tried to sneak tinier pieces of chicken into mash potatoes. He probably got mad and stopped me from putting that combo spoonful into his mouth.
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dwarfysays · 3 months ago
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Saturday, May 17, 2025
My dad’s cancer Journey journal
5/17/25
GPa might be released from the hospital today.
06:54 blood sugar 95 not high
06:58 IV bag replaced.
09:15. Dietician took order for lunch, dinner and tomorrow’s breakfast
09:35. All that and still no breakfast yet this morning.
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dwarfysays · 3 months ago
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Friday May 16, 2025
Dad’s Cancer Journey Journal
Breakfast -
Has appetite but meal came cold requested food to be heated
Drinking fluids
Ate fruits
RT came and administered inhalers
NA brought fresh breakfast, hes eating the oatmeal 👍🏼
Eggs & potatoes are still cold for him 😔
Gpa will keep asking for sugar but he can only have the 1 sugar free sweetener provided with meals.
9:30-
Tamaflu, singular & anti acids were given
10am- struggled but did poop
Back to napping- pooped after poop
Type B flu - a bit more mild
11:21am - Dr. Brian Lichtenstein (hospitalist) checked on him. Lungs sound clear
Flu treated for 5 days
Infections for 7 days
2 different antibiotics, 1 for each ailment
Labs & vitals look good
Blood sugar is 130
Dr says at least one more day stay. Looks better than yesterday.
11:45am
Priest came by to pray the sacrament of the sick and receive holy communion
1:50pm
Late lunch. RN did a good job on heating his food, dove right into the soup.
2:52pm
Poop #2
Note: remind nurses he’ll need a bath
I arrive at 17:45
Also Dad gets dinner. Started out with pureed food (wrong tray) but ate some. Had some jello. Kept the apple juice.
Got a regular tray of fish, potato wedges, green beans and zucchini. Beans were not good. Did not touch fish.
19:15 he kicks off sheets. I asked if he’s hot. He’s actually cold. I covered him with sheets and tried with blanket. He pushes away blanket. Fussed with sheet.
He seemed just a little irritable.
Now messing with the blanket edge like there’s stuff on it or something wrong with it.
Keeps asking if there’s rain.
Why does he act weird when I’m here?
20:35 nose bleed. Before that he kept pulling on his foley, trying to free the bag?
20:44. Blood sugar 126
Continue tamiflu
21:15 NA offered bed bath and left
Been waiting 30 min
Fell asleep.
He was bathed and linens changed.
Slept most of the night. Woke a couple times to cough up phlegm.
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dwarfysays · 3 months ago
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On Thursday May 15, 2025
Journal of My father’s Cancer Journey
Texts from Cindy
He (Dad) threw up and almost collapsed (15:05)
At 15:20: Going to Sharp memorial by ambulance. Slight fever 100.8
At 17:22 : Sorry. My texts weren’t clear. I called 911 because grandpa kinda collapsed but I pulled him onto me on to the couch. And then he started vomiting and all I saw was red coming out and I thought it was blood. So I told Rizal to call 911.
The ambulance arrived and took gpa to Sharp Memorial. We are in the ER waiting. They said he was going to be treated for sepsis on the ambulance ride. But we are still waiting for someone to come in and treat him.
At 19:06 Gave him tamiflu
At 19:07: He has the flu and a uti.
At 19:35 They ordered a cat scan of his head because of how he locked up and stopped responding and to us
At19:37: no pneumonia
At 21:31 : He’s in room 545, Sharp Memorial, probably same unit as last month.
Kapri to stay with Dad overnight.
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dwarfysays · 4 months ago
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4/30/25, Wednesday
Cindy my have a double whammy. She is taking antibiotics for strep-throat and then she texts
Went back to urgent care today for shhh'ngles. Gettn hit when lm down
Dad tested negative for strep. 😮‍💨Tomorrow is Jay’s mom’s viewing
Patricia Calloway passed away from kidney failure on April 11, 2025. 2 days later Dad almost joins her.
The specialized team of nurses were able to get Dad stabilized.
Gabby, Alyssa and I are coming down with something. We all have Sore or scratchy throat and a mild fever. I felt malaise at work and maybe even psychotic. I thought the ground was shaking.
Also, the campus internet went down.
Twas a shitty day all around.
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dwarfysays · 4 months ago
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Tuesday 4/29/25
From my sister in the group text:
Good morning family. I’m not feeling well still. I just got a prescription for antibiotics for strep throat.
I have informed dad’s doctor and they will be testing him.
Just and update: Dad has been ornery, stubborn and very difficult since arriving home. Please be aware that dad requires at least a two person crew. You will need additional partners/helpers when you are with him. Pls plan accordingly. Great opportunity for you and the other members of your family to spend time with him! He tries to get up without any one and he’s still very wobbly.
What Dad may have
Post-Hospital Syndrome:
This term refers to the increased risk of rehospitalization, readmission to the hospital, or death within the first few weeks after discharge. 

Anxiety and Fear:
Patients may experience anxiety about their health, the future, and their ability to cope with daily life
Frustration and Anger:
Patients may feel frustrated with their inability to regain their former level of function, or angry about the delays and challenges they face during and after their hospitalization
Changes in Self-Perception:
Patients may struggle with their identity and self-esteem, as their ability to perform everyday tasks is limited by their illness and the effects of the hospitalization. 

Post-hospital syndrome is caused, in part, by ongoing effects of the original illness. For example, someone who has been hospitalized for pneumonia may experience lingering fatigue, reduced strength, foggy thinking, or constipation after leaving the hospital.


N said she will take him to Urology tomorrow. I will message them to order a urinalysis also. We can help N to bring him.
Because of dad’s status, I think we will unfortunately have to miss the viewing Thursday. N’s mother in law
However Friday, we don’t have coverage for dad but plan on bringing him pending his wellness that day. A and partners we will need you around 5pm for coverage.
Saturday, we will be needing D and partners in the morning and until late night to watch M’s show in Irvine.
Sunday, we will try to bring dad to church but afterwards we will need P and partners for coverage.
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dwarfysays · 4 months ago
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Saturday, April 26,2025
With a heavy heart, I have to say My husband’s Aunt’s husband passed away at 1:30 PM
We called him Uncle Ray. He was 94 years old.
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Uncle Ray would be the only white guy in the pictures.
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Another pic of Ray and Auntie Fe. Happy couple they were.
Ray was a colon cancer survivor. This past 2 years he had lost a lot of mobility and had to have hiss bed in the downstairs family room. He couldn’t make it through the stairs anymore. He relied heavily on Auntie Fe his wife to care for him. It was very difficult as she was in her 80’s already. Her sons were upset that Ray refused skilled nursing care, placing the burden on their mom to care for the stepfather. But Auntie Fe continued doing her best despite all the challenges she faced.
Weeks before his passing, Uncle Ray was hospitalized with severe pneumonia. His health spiraled downward until his passing.
RIP Uncle Ray. Condolences to Auntie Fe and the rest of the fam. Auntie Fe now transitions from the challenges of providing elder care to the challenges of being a widow. I wish she could live with one of her sons, instead of in a big empty house.
They are up in Fairfield and we are down here in SoCal. I think my husband will be the only one to make Uncle Ray’s funeral.
These past 3 weeks were just gutting us. First my father’s biennial severe acute illness requiring hospitalization; inlaw Mrs. C’s passing from kidney failure; the passing of the Pope on Easter Monday; Uncle Ray’s passing on the 26th.
Everything was great years ago when everybody’s alive and well. We had gatherings and parties every chance we got. We knew the end would come, so we MUST live and celebrate each other as much and as often as possible. I hate the cliche’ “tomorrow is never promised”. But alas! It rings true.
Live Life To The Fullest
Love Your Hardest
Appreciate All Your Loved Ones
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dwarfysays · 4 months ago
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Sunday 4/27/25
8:15AM. Care (of my father) notes so far:
04/25/2025
Normal meds. Started Erleada. Finished oatmeal.
N came over. I took little R to urgent care. Got meds. Went to work.
Finished Lauya. Lunch.
4pm- radiation.
5pm-P came. Made him burger. 🍔 finished. Napped.
No poop.
Meds. Acted kinda weird. Mimicking me and trying to get a rise out of me. I just kept on going.
Bedtime. Bed bath with wipes and moisturizer ointment.
04/26/2025-
630am asked me to empty his bag. Emptied and went back to bed. Called me again. Got him up around 8am.
Meds. Forgot mylanta. Finished Ube Champorado.
12:30pm: Woke up and moved to the living room. Insisted on sitting on the couch. Asked for lunch. I told him there was no rice for the lauya. He asked for it without rice.
Watching OKC vs. Memphis
1:15pm: he asked about J’s mom. I told him she passed.
3:20pm: big poop. Back to the couch
After he ate R followed him back to the bed to take a nap. N arrived. Still napping when we left.
Not long after this entry, all the home care notes were deleted from the “shared notes”. There is a “new notes” that is blank. C probably figure out that I have been copying the notes to post elsewhere. I have copied all the notes to a journaling app. So glad I had backed these up.
C doesn’t have to stress about this. I did not share this with the monster.
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dwarfysays · 4 months ago
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4/26/25 Saturday
Addendum to C’s homecare of Dad notes:
4/24/2025
7:30am- empty bag. Got him dressed. Helped him out of bed. Still always using the gait belt. He is still very weak on his own. Walked to living room. Took meds. Tried to check blood sugar but no supplies for monitor and no battery 🪫 messaged VA. Saline nebulizer and mass.
Finished bfast.
1030am- VA social worker home visit.
Pooped when social worker came.
She will order bed pressure mattress cover for hospital bed and look into if there is better hospital bed available. Referral for patient planning and home nurse care (once a month) after Sharp home health ends.
Finished lunch. Napped.
530pm- leave for Radiation. ☢️
Home for dinner. Nap.
845pm- saline nebulizer. Aerobika. Meds.
945pm- brush teeth. Empty bag. Clean diaper rash and foley cleaning. He said it hurts near his tail bone. Asked if there was a bruise. No bruising but there is rash. Hope it’s not tailbone pain. Changed clean clothes. Moisturize rash on arms. Could be radiation rash.
He looked like he could slip off bed. Rizal helped me move him up in bed. He still flips to his side. Emailed VA Sw to see how if we can get another fall pad on hospital bed railing for lower part of bed.
Too tired to shower and too afraid to get into shower and he might need me. Just gonna watch him on monitor and try to close my eyes a little. My back hurts.
He doesn’t cough when doing Aerobika. But is hacking up a storm in bed.
04/25/2025
Normal meds. Started Erleada. Finished oatmeal.
Nancy came over. I took Rizzy to urgent care. Got meds. Went to work.
Finished Lauya. Lunch.
4pm- radiation.
5pm-Primo came. Made him burger. 🍔 finished. Napped.
Meds. Acted kinda weird. Mimicking me and trying to get a rise out of me. I just kept on going.
Bedtime. Bed bath with wipes and moisturizer ointment.
04/26/2025-
630am asked me to empty his bag. Emptied and went back to bed. Called me again. Got him up around 8am.
Meds. Forgot mylanta. Finished Ube Champorado.
N takes over at 10:30AM
12:30pm: Woke up and moved to the living room. Insisted on sitting on the couch. Asked for lunch. I told him there was no rice for the lauya. He asked for it without rice.
When I came back from heating the food he moved to the recliner by himself.
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dwarfysays · 4 months ago
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4/25/25 Friday
C’s additional notes from yesterday
04/24/2025
7:30am- empty bag. Got him dressed. Helped him out of bed. Still always using the gait belt. He is still very weak on his own. Walked to living room. Took meds. Tried to check blood sugar but no supplies for monitor and no battery 🪫 messaged VA. Saline nebulizer and mass.
Finished bfast.
1030am- VA social worker home visit.
Pooped when social worker came.
She will order bed pressure mattress cover for hospital bed and look into if there is better hospital bed available. Referral for patient planning and home nurse care (once a month) after Sharp home health ends.
Finished lunch. Napped.
530pm- leave for Radiation. ☢️
Home for dinner. Nap.
845pm- saline nebulizer. Aerobika. Meds.
945pm- brush teeth. Empty bag. Clean diaper rash and foley cleaning. He said it hurts near his tail bone. Asked if there was a bruise. No bruising but there is rash. Hope it’s not tailbone pain. Changed clean clothes. Moisturize rash on arms. Could be radiation rash.
He looked like he could slip off bed. Rizal helped me move him up in bed. He still flips to his side. Emailed VA Sw to see how if we can get another fall pad on hospital bed railing for lower part of bed.
Too tired to shower and too afraid to get into shower and he might need me. Just gonna watch him on monitor and try to close my eyes a little. My back hurts.
He doesn’t cough when doing Aerobika. But is hacking up a storm in bed.
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dwarfysays · 4 months ago
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April 24, 2025
More care notes of my dad starting from yesterday through early morning hours.:
04/23/2025
Slept well. Woke up 715am. Tried to jump out of bed by himself. Empty cath bag. Changed out of pj pants. Applied more aquaphor to privates.
Meds: Wixela/spriva. Metfomin/jardiance/miralax/b12/c/magc/started pantoprazole/saline nebulizer treatment.
Finished bfast.
1130am-Nurse Hazel visit
Blood sugar 202
Bp 116/64
No pains
Nurse aid approval in process
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Walked outside to see roses. Went to curb and got tired and sat down.
Finished lunch in upright chair. Watching Gladiator 2.
345pm- go to radiation ☢️
530pm- home. Started cooking dinner late.
810pm- dinner finished.
10pm- Saline nebulizer. Aerobika. Meds.
1045pm-Brush teeth. Wash face. Empty catheter bag. Catheter cleaning 🧼 diaper rash care. Wipe down toes to neck with wipes and moisturizer (aquaphor). Change clothes. Positioned in bed with pillow under knees, slightly under right side.
No poop today.
1137pm- Snoring 😴
1:08am- called for me. Asked to get up and out of bed. I asked for what and he said to go bathroom to pee. I showed him his catheter bag of pee and said you already went pee.
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dwarfysays · 4 months ago
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Tuesday, April 22, 2025
Dad was discharged from hospital last night after radiation therapy. He actually finished his last dinner. Could be motivated by the prospect of finally going home.
But alas! Being back home did not take away from the realities of his cancer and other maladies.
Grandpa at Home Care notes (C’s entries)
04/21/2025
9pm- Used his walker to get into the house. Got him In bed. Gave inhalers: Wixela and spiriva. Will restart rest of meds tomorrow.
9:30pm-He pulled off his catheter anchor 😣
Luckily I had another one from his last VA appt.
Cleaned his privates. Diaper rash and chaffed skin. Applied aquaphor ointment and antifungal cream. He wanted pants off. So sleeping no pants with diaper on and blanket on one leg.
Emphasized to not touch his privates and his catheter.
R (C’s son) learned how to help readjust him in bed.
10:00pm- Called out again for me to take off his sweatshirt. Now just wearing a tshirt in bed. Kicked off blankets. He’s super fidgety in the bed.
11:36pm- He is still tossing and turning. Slapping his forearm.
145am- he’s still tossing. I gave him melatonin and trazadone (his usual sleep meds). He said no pain but just can’t sleep. Fixed his blanket over him. Does not feel hot. Diaper still covering him properly and catheter draining.
211am- his pillow dropped and I went in and fixed by his side. Asked if his head hurt. He said no.
221am- he coughed up phlegm and couldn’t find the tissue box next to him. Went to give him tissues. He asked who slept in here before me? I said no one dad. He said look how thin I am. I said you’re ok dad just sleep. I asked if he wants me to stay in the room with him and he said no just go back to sleep. I said ok you sleep too now. I sprinkled holy water on the edge of the bed. Worried he was thinking of past people who slept in the bed. Keep hearing him slapping his forearms.
239- he got out of the bed and trying to walk around. Ran in to stop him.
343am- called me to close the bedroom door. Said he can’t sleep with it open.
My dad had been in the hospital for 2 full weeks. He has a readjustment period first of all. It’s not just being back home he has to adapt to, it’s also the hospital bed that had replaced his old bed. As noted by C, he asked about who was in it before. He may have remembered that getting a hospital bed is one of the last steps before dying. That’s what happened with Mom.
He’s not wrong. Makes me wonder how many have died in that very bed. 100% that’s what’s going through Dad’s mind. It has become another stark reminder that he is not well and likely will be that way until the end.
The notes have proven that a skilled nursing facility would have saved C the trouble of going through a night with no rest.
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