endometriosis-blog
my journey
my journey with endometriosis as an 19 year old
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me when my heating pad warms up and starts to burn and i can finally focus on something that isn't my intense bloating that i feel all the way up to my ribs 😁
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it's so difficult trying to keep track of my symptoms. i have an app where i can track each day, but just filling it out gets exhausting. i'll stay on top of it for a little, then fall off again. because at the end of the day it always feels like it never matters. i'm not finding any patterns. just on sunday i ended up with so much pain in my ribs that i couldn't sit down, breathe properly, or bend over. the next morning i hiked 4 miles in under an hour with no issue. now, again, im unable to stand up straight because i suddenly bloated after eating food that never normally gives me this much issue. i'm also going to run out of my amitriptyline because my doctor didn't refill it. i'm on 50mg and will probably have withdrawal symptoms.
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You know what? It’s fucking hard trying to get better. It’s exhausting managing doctors appointments, doing daily PT exercises, eating better, trying to exercise, trying to meditate, and doing ADL’s. I have had a bad crash per week trying to juggle and do all of the above.
It’s easier and less acutely painful to just coast and not actively work on ‘getting better’. Is the work worth it? I don’t know yet.
But to people who’ve tried and given up, to those who don’t even bother - you still deserve care and compassion.
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so i started my period in the middle of my birth control pack for some reason but anyways ive been using my heating pad so much i have an actual burn on my lower stomach
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...new doctor just told me to take birth control continuously.
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wow it's been a while again but anyways i have a new obgyn appt today also idk if i mentioned this but im on antidepressants called amitriptyline apparently it can help with pain but it hasn't. it has helped me sleep through the night though so idk i might stay on it. anyways ill update about the new doctor
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woke up today with really really bad neck pain i can't turn my head left or up and i feel it all the time anyways i was really bloated yesterday so i know im starting my period soon. idk if this is endo related at this point i have no one to tell me it might be and i just can't find any answers but it's really bad. i'm just so tired of being in pain all the time i went to bed last night with pain and woke up with a different kind of pain and i'm so exhausted.
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god dude i'm cramping so much and just like. it's the fact that i can't do anything about it. like im sitting with a heating pad, i took meds, what else am i supposed to do. like im so tired
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alright literally just picked the results up and WHO WANTS TO GUESS !!!! EVERYTHING CAME BACK NORMALL !!!!!!!!!!! because of course it did so uh i'm losing my mind and i think im this close to giving up and letting it get worse 😁👍 maybe if it gets worse doctors will take me more seriously. it's crazy that A YEAR AGO i was talking to a doctor about surgery, and i still haven't gotten any closer to actually getting it.
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forgot to update on the chest pain, it lasted like.... four days? i went to urgent care, and they had no idea what was going on. i also had a weird noise coming from my neck which was real creepy. they tested me for strep throat which was an obvious no, and then they sent me away with a steroid, antibacterial, and chest xray. i'm getting the results of the cray today like two weeks later bc THEY NEVER CALLED ME!! and so i'm just going in and taking them like shit i'll read them myself (jk i'm bringing them to my new primary doctor.) but anyways my ribs and chest and shoulder and neck have been hurting more than usual since that whole event, and then i started my period like. three days after so i really really think it was endo. honestly uh but anyways that's where im at. i have a doc appt with a new primary doctor on june 3.
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uh lots of chest pain today it's lasted almost four hours so might go to the er i know i always say that but like idk i have such guilt about going to the doctor that i think the er would make me cry if it turned out i wasn't actively dying so
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when i go off my birth control and suddenly my tight shirts aren't so tight anymore
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i went off my birth control for endo awareness month because i decided i was gonna make everyone AWARE aware no jk i haven't had a normal period in a long time so i was waiting for that anyways here are my findings so far
1. first thing i noticed was i got alot of right ovary pain and it was like. it was like the feeling of being so bloated but it was only in one spot. so anyways for like a day and a half it hurt to stand up straight spent most of my time sitting in bed
2. my intestinal cramps are always unrelated to food for the most part i'll eat something one day and be fine and the next ill eat another thing and won't be but it's always sort of around my period. well off the birth control it's still inconsistent on food but it was happening more away from my period as well
3. rub pain and feeling like my lungs are constricted the longer i stay standing lol idek what this one is but
anyways i haven't had my period yet so im still not on the bc but ill keep track of the stuff i feel anyways
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i'm 19 now so i thought id change my pinned post
hi i'm joely i think i have endometriosis i have a long family history of it but ive never gotten surgery so this is me trying to get surgery 👍 it's not going well. i think the endo is on my bowels or intestines and diaphragm but my doctors just think i have ibs and a pulled muscle so anyways yay im keeping this account updated (usually)
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endometriosis is feeling relatively fine for a little then getting some of the worst rib pain plus some insistent cramps the day you have to work at your small business job where you are the only one scheduled
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i've been working at this job for like half a year now and the ONE TIME out of all the shifts i've had that i actually decide to eat lunch on my lunch break i get cramps 👍 like ok never doing that again
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cramping again, woke me up at like 11pm, and then started again this morning. heating pad isn't helping much, i tried to dress comfy but my leggings r still too tight for it. i'm on campus and i have a test later so can't really just leave but. i'm in like the middle of my birth control pack right now and im not bleeding so i don't know what's going on, my last inactive pills didn't even get me to bleed at all. idk if i should go off of pills for a while or what.
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