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[fibrofox]

[fibrofox]

Ah yes,,, it’s time for my weekly mental breakdown about all the trauma that being chronically ill and disabled causes….

[fibrofox]

Autism thing i hate that it’s considered rude to not like a food and not want to eat it. And i hate that i have to be all apologetic about it instead of people just understanding that foods just aren’t for everyone and a person not wanting to eat something isn’t an insult to anyone’s cooking

[fibrofox]

[fibrofox]

When people give you little lectures and warning telling you not to have a victim mentality it pisses me off.

I am disabled and chronically ill. There are some (many) things I cannot do or struggle to do. There are many things that cause me pain and yet I do them daily because that is what society expects from me. Yes I spent the last two days taking it easy (while still attending my online classes) but unless I am running at the same capacity as able bodied people it's never enough.

I am sick to death of people telling me my best isn't good enough. As if I'm not fighting tooth and nail to move forward. As if I am not already terrified for my future and trying my best to be independent.

Warning me not to have "victim mentality" is not useful, it is hurtful and reeks of ableism.

Stop.

PSA: your best is good enough. Even if your best today was just being conscious for a few hours. You are giving everything you have in a world not built for you. That is brave af. You're doing wonderful!

[fibrofox]

[fibrofox]

absence of a diagnosis does not guarantee the absence of an illness

[fibrofox]

[fibrofox]

unsure if the cluster headache attack was weirdly short or if the drugs have kicked in

[fibrofox]

[fibrofox]

i hate fatigueee its so stupid. ohh when im home i'll do this or that Nope. replacing all of your bones with pure titanium now. Goodbye

[fibrofox]

showering:

pros: you get to feel clean. you get non greasy hair, non oily feeling skin, it just in general makes you feel better, more energised, refreshed.

cons: there are so many steps. oh my god are there so many steps. before getting into the shower there are steps. during the shower there are steps. and once youve gotten out of the shower? guess what!!! more fucking steps!!!!!!!! UGHHHH

[fibrofox]

This explains a lot about my lack of asking for help when I clearly need it

[fibrofox]

[fibrofox]

what is it with able bodied people saying “get well soon” after you say that you’re chronically ill?? like? i am not gonna? and i once literally responded with “i’m not gonna, it’s chronic, as in permanent.” and they went like “oh well, hope you get better!” like bro 💀

[fibrofox]

An apparently unpopular opinion: disabled people can have and do their hobbies. They deserve to have fun. They deserve to live their lives.

Their inability to do some things (like work, for example) does not mean they should be judged for… idk hanging out with their friends or to going outside. After all, having interests outside of work is often essential to our mental and physical health OUTSIDE of our disability.

And also *you might want to sit down for this* disabled people know what’s disabling for them (unless they people-please or push through due to necessity or survival of some sort). Disabilities don’t have to be visible or persistent to be disabling.

So yeah - my declaration: if an activity you want to do feels good and you’re able to do it, then do it. REGARDLESS OF YOUR DISABILITY WITH OTHER THINGS.

[fibrofox]

shout out to everyone with a sleep disorder or condition that affects the quality and quantity of sleep. i think it's incredibly unfair to be denied even the comfort of rest