gia-francesca

[gia-francesca]

Apple really banned the tag “spoonie”. Really. Deeming the chronically ill/disabled community inappropriate enough to be silenced because it deals with ~uncomfy~ medical topics. Sorry that our everyday reality is so scandalous and offensive to the Apple company.

[gia-francesca]

Official people: I hear that you have 1+ chronic illnesses.

Official people: If you want accommodations, you must jump through 10 hoops that are hard for people with your specific illness(es) to jump through.

Official people: This is a good system. :-)

[gia-francesca]

My disability isn't an excuse. Its a genuine setback that I deal with every single day.

Stop comparing me to abled people. They will never have to work as hard as us.

I'm not annoying.

I'm not complaining.

I'm not lazy.

My body is struggling to survive and you expect me to be able to do what your nearly perfect body does?

The only thing here that is lazy and unmotivated is your ability to comprehend what the fuck a disability means.

[gia-francesca]

A lot of people have understandably got upset about “losing over a year of their life” to the pandemic but for chronically ill folks this isn’t new. Many of us have lost years of our life to our illnesses, had the experience of being stuck inside, socially isolated and missing out on things we wanted to do and we had to deal with it alone, while everyone else continued to live their lives and move on while we were left behind. We also didn’t get any empathy, we had to deal with comments about how we are lazy we were or lucky that we “get to stay at home all day”. I feel the same grief as everyone else over the pandemic, the lockdowns and the social isolation but at the same time, I’ve already lived it and I had to go through it alone.

[gia-francesca]

[gia-francesca]

[gia-francesca]

I’ve been ill for so long I’ve forgotten what not being in pain or exhausted feels like

[gia-francesca]

Emergency room doctor: so how are you feeling?

Me, desperate to please everyone I meet: great! how are you?

[gia-francesca]

might just mess around and reclaim my human worth as intrinsic instead of defined by my productivity

[gia-francesca]

don’t make me tap the sign!!

[gia-francesca]

[gia-francesca]

i go through the 7 stages of grief every time i have to stand up

[gia-francesca]

standing up too quickly gives me temporary access to shrimp colours

[gia-francesca]

A story about my disability, pt.2

Thank you for reading <3

part 1

[gia-francesca]

[gia-francesca]

having multiple disorders with a lot of overlap is just like, trying to untangle a really big ball of string. you have no idea if it's only one string or multiple strings wrapped up, you don't know where any of them start or end, and after a while it all starts to look the same. it's a big jumbled mess and it's exhausting, but you try to sort them out anyway because they're no good to you tied up.

[gia-francesca]

Doctors be like: pain patient (derogatory)