hear-iam - Tumblr blog

[hear-iam]

The Fruits of the Spirit

The Fruits of the Spirit

They lay heavy on my heart. Knowing that they come from a manifestation of God’s Holiness within us – in our belonging. As I have meditated on each one in a personal way, I draw closer, listening, abiding indwelling – God’s very presence. Knowing him intimately as my creator, Father; I lean in and trust. Putting into words what each fruit means to me. I made it in poster form in my pages app,…

[hear-iam]

Fruit of the Spirit

[hear-iam]

Global Rare Disease Awarenes

Global Rare Disease Awarenes

February 28th is a day set aside for rare disease awareness  https://rarediseases.org/rare-disease-day/ A global organization partnering with NORD (National Organization for Rare Disorders) My name is Kim Fowler and this is my focus story of rare disorder awareness.  I have discovered personally what it is like to have a rare disorder, under the crisis of my medical team having no knowledge…

[hear-iam]

9) Orthostatic Tremor and a Walk in Faith

9) Orthostatic Tremor and a Walk in Faith

9) Orthostatic Tremor and a Walk in Faith. Oh my goodness.Are you still here. 😂I have depleted my mind.Therapeutical writing……no it was brain exhausting.Blog 9 in my Orthostatic Tremor series, ENDS here. I am old, worn out with Chronic auto immunes and now OT ;ORTHOSTATIC TREMOR AWARENESS BLOG – in my elder state, I apologize for repeating stuff. I believe I included in blog 5, my…

[hear-iam]

8) Relevant Research and Resources on Orthostatic Tremor

8) Relevant Research and Resources on Orthostatic Tremor

Blog 8)Gee whiz when I began to realize the rarity and lack of clinical awareness,I started loading every research article I could find, along with every OT support site and then began studying the people on the sites, their history, and stories.While my physician said –“Nope never heard of it.” Why have I contributed so much effort to OT awareness?Why have I invested so much time and energy…

[hear-iam]

7) Helping your family members and loved ones understand Orthostatic Tremor.

7) Helping your family members and loved ones understand Orthostatic Tremor.

7) Helping your family members and loved ones understand Orthostatic Tremor. If you have been reading along throughout this Orthostatic Tremor blog series and missed out on a detailed description here is an explanation directly from a Handbook of Clinical Neurology, Vol. 100 (3rd series) Hyperkinetic Movement Disorders W.J. Weiner and E. Tolosa, Editors Fig. 35.1). Characteristically, the…

[hear-iam]

Blog 2) Orthostatic Tremor - Essential’s of Advocating

Blog 2) Orthostatic Tremor – Essential’s of Advocating

(Blog 2 in a series (Orthostatic Tremor is a rare neurological disorder of the cerebellum, causing the inability to stand without leg tremors, feelings of instability, and imbalance with gait freezing, tremors cease when walking, sitting, or laying down.) Orthostatic Tremor Essential’s; ADVOCATING towards medical care not only with Orthostatic Tremor, but also the multitudes of people who…

[hear-iam]

6) Managing and navigating physically with Orthostatic Tremor. 

6) Managing and navigating physically with Orthostatic Tremor. (Orthostatic Tremor is a neurological disorder of the cerebellum, causing the inability to stand without leg tremors, feelings of instability, and imbalance with gait freezing, tremors cease when walking, sitting, or laying down.) Blog 6) In the shower is most commonly where the 1st activity a person with Orthostatic Tremor notices…

[hear-iam]

Orthostatic Tremor - Managing Mentally

Orthostatic Tremor – Managing Mentally

5) Managing mentally – Orthostatic Tremor On a good day, I could brag on my coping skills.On a bad day not so much.If I have a string of bad days……Eeyore, I am. There is a popular “spoon theory” that is passed along with all auto immune in regard to fatigue, I won’t give reference to it, as it is very easy to google – it’s an illustration to knowing your threshold of endurance on any given day…

[hear-iam]

Blog 4) Inform your Health Care Team - Orthostatic Tremor Awareness

Blog 4) Inform your Health Care Team – Orthostatic Tremor Awareness

4) Send and informative letter to your health care team(because most of them have never heard of Orthostatic Tremor) I did.And they replied back with appreciation, all saying they would take the information and put it to practice in future observation. (Not in those exact words, but close enough. They definitely felt it relevant and interesting. This is one of the ways you as a patient may…

[hear-iam]

3) My story - Orthostatic Tremor

3) My story – Orthostatic Tremor

Mission statement; “Leaning toward the relevancy of articulate details in each Individual’s experience preceding into Orthostatic Tremor, and relevant symptomatic details of endurance lending support towards further research and awareness to health care facilities and medical communities of un-awareness” 1st by way of a personal introduction; For those reading this who do not live in my circle…

[hear-iam]

Blog 2) Orthostatic Tremor - Essential’s of ADVOCATING

Blog 2) Orthostatic Tremor – Essential’s of ADVOCATING

(Blog 2 in a series of 9 blogs) Orthostatic Tremor Essential’s; ADVOCATING towards medical care not only with Orthostatic Tremor, but also the multitudes of people who suffer from many complex disorders and chronic illness – I hope this particular blog will give you guidance in your path for excellent health care. My experiences with auto immunes, degenerative disc disease and now Orthostatic…

[hear-iam]

Orthostatic Tremor Awareness

Representing in honor of September, the Orthostatic Tremor awareness month, I am beginning early with a series of blogs. Dedicated to my fellow Orthostatic Tremor warriors in need to be heard. I hope for researchers, neurologist, physicians and all health care providers to lean in for a better understanding. Blog #1 1) INTRODUCTION to Orthostatic Tremor For understanding this is the…

[hear-iam]

IKEA YIKES

IKEA YIKES

A cheesy substitute for motorcycle, but still an adventure Checking out at IKEA while we were in San Antonio, me driving an electric buggy. Well I haven’t ridden since last December so….. The legendary Dragon at deals gap near Robinsville, NC., has 318 curves in 11 miles.We have slayed that dragon many times on our motorcycles, my buddy/love and me, I try to talk myself down from not scraping…