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Having Ehlers Danlos Syndrome sometimes feels about the equivalent of being composed of jello and wet spaghetti. Nothing stays where its supposed to. Literally every single cell in the body is floppy, so fingers are definitely an issue for many of us. I can almost guarantee that for the majority of us, writing is not only slow and painful but nearly impossible at times. FIne motor skills? What even are those? An EDSer surely doesn’t have any of those. Even typing which is far easier than writing, is painful and daunting at times. But last year I joined the population of shiny zebras by getting fitted for a set of Silver Rings Splints and they are beyond magical.

For those of you who have not heard of The Silver Ring Splint Company, they are a company that custom makes finger splints that look like elegant pieces of jewelry. Don’t believe me? Well I can’t even tell you how many compliments I’ve received for them. Nobody even suspects that they might possibly be medical. But more importantly, they work amazing! I still have hand pain and finger dislocations when performing fine motor skills and writing is definitely not something I look forward to but I have saved myself thousands of painful dislocations, I can open doors easier, type faster, write longer and hold objects in my hands without looking like an alien from a sic-fi movie. With the rings on my fingers actually look like fingers rather than tentacles!

The company is also family owned and the people are so sweet and helpful!

If you are having trouble with hand pain, clumsiness and dislocations please check out this amazing company!

http://www.silverringsplint.com

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Roman mosaic floor discovered under a vineyard in Negrar di Valpolicella, Veneto.

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So apparently my hill to die on this morning is geographic irregularities and falsehoods in the 1983 movie Wargames (which I have only seen one time, this morning at 4 am) cause like he books a flight to Salem to go to deer island in Oregon, which is in the Columbia, so he should have gone throught portland. Then his girlfriend drives from seattle to meet him in Salem and says "oh it was only 3 hours" fuck no it was not! From seattle to Portland is 3 hours, Portland to Salem is another 2.

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It’s called mutual aid. Big grocery chains are withholding necessary goods for profit.

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thinkin about a baby of my acquaintance & how when her parents are hanging out & chatting, she'll almost fully participate in the conversation--politely watching who's talking, saying something approx the same length & tone of what her parents are saying, occasionally using a questioning cadence & looking at someone specific for an answer, laughing when they laugh--doing everything except actually using any recognizable language

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So i went on a date to a haunted house and made friends with the girls behind us. As we’re going through, one of them is holding my hand and a guy leaps out and separates us. I panic as my date is pulling me along, I reach back for her and grab her hand in a group of three other performers and start getting out if there. After a bit I look back to check on her and I discover I’m holding the hand of a six foot tall zombie creature and not a 5'2" girl.

Cue the most terrifying realization of my life.

I had basically kidnapped this performer from his section and abandoned the girl and her friend behind us.

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You know what I love?

silent rebellions.

I mean don’t get me wrong the loud ones are great too but there is something so poetic about the quiet ones.

Like when a kid hides a pride flag in their room or paints their stuff the colors because they know if its not rainbow their parents won’t know what it means.

or when someone hides a binder in their backpack to change into and out of at school, “plus school takes up most of the time I can bind anyway”

The kids that are never deadnamed at school but in front of their family their classmates will never betray them.

The kids that have secret blogs

the kids that have secret lives

because you simply cant live in a world without some of you in it.

Kids that all flock to the one with supportive parents

the kids that sneak out to pride festivals with their friends

the kids that are secretly themselves

the kids that are secretly heroes

and those secret silent rebellions

are fantastic.

So please

Please

keep it up.

The world is so much better with you in it.

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Obsessed with Eartha Kitt’s absolute power move of risking her entire career to drag Lyndon B. Johnson’s bitch ass so hard that his wife started crying

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Perfection 100

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Some knowledge ✊🏾

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The Muse’s Revenge, Ilya Milstein

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