keylyme-pa-blog

[keylyme-pa-blog]

I've come here as I'mrecently diagnosed with Lyme Disease following a missed diagnosis-for 8 years. I was diagnosed with Pernicous Anaemia a few years ago and have come to terms with that one. Truth be told, I haven't had any information about it and I'm really quite unsure what this all means for me in the future but I'm here to share my journey and would love to hear from anybody who is experiencing the same.

I was very lucky to take some time out from my job and go around the world - who knew it would be the trip that kept on giving all these years on. I returned from that trip, covered in a rash and was unable to get rid of it. A few visits to the gp later (and various creams), it was gone. I was incredibly tired on my return and put it down to returning to work, quite soon after getting back. However, I began to feel quite emotional, overtired, often crying and feeling really down - quite overwhelming. I received a diagnoses of perniciousanaemia and following a few more visits to the gp, started on my hydrocobalamin injections and folicacid tablets. I started to look after myself, started personal development and got an understanding of what life is like with pernicious anaemia.

I thought that was the end of it, until recently when I went for an eye test with the optician which led to more tests that I care to think about. I have an enlarged blind spot behind my right eye. A few (lots) more blood tests later and the letter landed at my house - Lyme Disease - positive, contracted through a tick bite in North America. Wonderful.

A million thoughts are going through my head at the minute as I don't really know much about this new illness (new to me) and not really sure what my next steps are. I'm waiting to see a specialist to find out what the short, medium and long term implications are of this and if there's anything I can do. I've joined a couple of groups in Facebook, joined a forum and now started this blog as a way of keeping myself motivated and would love to inspire others to do the same. I have an illness, I'm not AN illness and although its a major curveball that has come my way, I have enough positivity in me to see it through.