meandmydisease
Me and my disease
December 2017 was when my life changed. After years of being sick, I was finally diagnosed with Crohn's disease. What followed was a long journey to find the right meds, which isn't over. Add a depression to the mix and massive pain issues and I was in dire need of an outlet. Which this will be.
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#brainfog
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I say " well if that's the worst of our problems, we'll be okay" far too often for someone that does in fact have far bigger problems in her life.
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When a chronically ill or disabled person gets their lab tests back as “normal” or all clear, we aren’t sad because we WANT to be sick.
We’re sad because we *know* there’s something wrong with us, yet the scans still stay clear.
Before you kill the monster you gotta know its name.
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I feel like people really need to accept and realize that old people do not have the monopoly (?) on disability , mobility aid usage and chronic illnesses . They expect that since you're young you should be able to do things that abled people can do, whats wild is that I've had that response even from abled people who know I'm physically disabled like my mom going "you're young , you have a young back so you can do -insert random thing here- " or people telling me that walking and standing long is "good for you , you're young its not going to hurt you" bruh I have chronic pain , standing and walking long does in fact hurt me ..shit even just existing hurts because my pain is all the time . Young disabled people aren't just "lazy" or "exaggerating" 😅 , its kind of like when you look up mobility aids in general or anything even related to them at all really you mostly just see pictures of old people with canes, crutches etc and I in my mind go "young people can be disabled too.." .
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Thank you to edsmemes00 on Instagram for the funny meme
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Today I had an appointment with my new doctor. I brought my mom, because two hear more than one. And then she was quiet the whole way through haha. Didn't give me an answer when I asked her to help me remember the family history. She means well, I guess.
Anyway, he seems like a nice man. Took me seriously and was honest. Yes, they have a few more options my former hospital doesn't have, but there isn't much left. So he's going to be very careful and will start with scans and tests to see where I stand right now.
Downside to the new hospital is that I have no say in when appointments will be. The former hospital had a secretary that would work with you. This one doesn't. Just take it or leave it. Which is not what I wanted to hear when I'm about to start a new (more demanding) job.
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