i have felt an urge to speak out about my asd diagnosis, and today is the day. it continues to shock me how few opportunities there are for people to learn and speak openly about the autism spectrum. letβsΒ normalize being curious. how much do you actually know about the autism spectrum? open yourself up to new ideas. make room in your life to learn more about others. letβs talk.
asd: autism spectrum disorder
asd is not a social disorder. it isnβt connected to any single cause. it is a neurodevelopmental disorder. asd does not have a βlook,β or a set list of symptoms. if you consider two people with an asd diagnosis, there is a very high likelihood that they present that same diagnosis in two completely different ways. the efforts to understand the autism spectrum are ongoing, and therefore the definitions of autism continuously change (see: year 2013).
a diagnosis for asd DOES CONSIDER a personβs:
degree of language/social difficulties
degree of intellectual/physical impairment
known medical conditions, exposure to environmental factors
associated mental/behavioral/neurological disorders
it is not a measure of their worth.
a diagnosis for asd DOES NOT IMPLY a person is:
being socially dysfunctional in any obvious way
a significantly high or low intelligence level
major physical or emotional limitations
neglect, abuse, poverty, inferiority
it does not change who they are.
receiving an asd diagnosis CAN HELP COMFORT a person who is:
struggling to understand social cues and implications
generally clumsy and unaware of physical space
having isolated interests/rigid plans/ritualistic behavior
exhibiting adverse reactions to change
it is essential to understand a personβs process as their own.
imagine youβre walking on the road in a small alley. youβre on the left side because you are helping a friend look for their key. someone is walking towards you, and they are walking on their right side. the closer you get, the more overwhelmed you become. and after working every scenario in your head, you give in and you cross the road, only to realize they never looked up once.
this is the only way i can think to explain the burden of masking. neurotypical minds seek conformity. neurodivergent minds seek consistency. this makes it incredibly easy for a neurodivergent person to lose whatever feelings of autonomy are left. being in a position of self-perpetuation - where your ability to do task creates an outcome that controls the ability to do task - is masking.
the very act of masking uses just as much energy as it receives. there is no carefree moment. you are anticipating bumping into someone, you gauge how close you can get, and you step out of the way before contact. there is no acknowledgement of your efforts. after all, if you wereΒ βnormalβ then you wouldnβt be in the way at all. there is a feeling of indebtedness. no one looks up.
consider this: 60 years ago, state asylums were regularly performing lobotomies on the βcriminally insane,β usually without anesthesia and almost always without consent. that is fucking terrifying. but you know what is even more terrifying? the fact that this practice stopped only when it was replaced with more convenient options, and is still technically legal.
itβs not that america rushed to protect its disenfranchised the from becoming maimed, but rather the federal government rushed to protect its medicaid returns from becoming one-time surgical treatments. althoughΒ most people would agree that we are far removed from that tragic relationship with psychosurgery. however, for perspective, i want to point out that the first evidence of neurosurgery goes all the way back to the stone age.
it took 5,000 years to create not just the science itself, but to create the culture that watched itsΒ metamorphosis and anticipated the result. if i spent an hour putting up christmas decorations, how reasonable is it to then expect them to be taken down in 44 seconds, just because i am embarrassed to still have them up?Β weβre closer to falling backwards into systemic ableism than we are to securing our position away from it. 60 years is not even 1.5%.
one of my friends is a mother to a child with autism. they had their first flight together and her child absolutely lost it security. she was hoping that any of the parents around her would stop and help. completely alone, people shuffled by her, and one even made a comment about her parenting approach. what she wanted to say was that the approach was advised by their developmental specialist. but then she realized that she felt more than alone, but suddenly unsafe and targeted, and she didnβt want to feel victimized further.
asd is unique in that its cultural expectations arenβt aligned with its pathological expectations anymore. there are fewer and fewer limitations when it comes to inclusion and education. as a neurodiverse person, it is my responsibility to have compassion and patience. as a neurotypical person, there needs to be an increased expectations for self-education. people with asd are at your workplace, people with asd are in your family and amongst your friends, people with asd are undeniably going to be in your same airport.Β
three steps of beginning your shift of neurodivergence:
1. acknowledging the value of human diversity - culture, race, gender, etc.
2. understanding that neurodiversity is a natural component of human diversity. there is no βrightβ or βwrongβ component of human diversity. it is all biological.
3. encouraging an inclusive dynamic, rejecting the expectations of βnormalβ and instead focusing on each individualβs potential, their gifts and their needs.
those with asd are invaluable torch-holders for a new generation of social reform. the spectrum belongs in peer programs, on hospital floors, shaping public education, cultivating business startups. this existence is not defined by how much help i need to see something as it has already been seen. it is defined by what is seen after combining perspectives. the reason our eyes see dimension is because the right side and the left side make up for what the other one doesnβt have. imagine how much an entire spectrum can offer.
if you are interested in learning more ways to create support and conversation in your community, please locate your local mental health first aid facilitator*. they are offering classes online at discounted rates due to the pandemic, and it will do nothing if not educate. it does earn ce credits and you receive a certification upon completion.
thank you for coming to my ted talk!
*not sponsored, just nerdy
i don't understand how amy is your favorite march sister... she contributed nothing. and she was just so annoying. she ruined joe and laurie
okay so i have a rant about this: Amy March is arguably the most changed character in the book right after her husband.
when the book starts she's twelve. what twelve year old is anything other than annoying? she lives in the shadow of the beautiful Meg, the talented Jo, and the kind Beth. And this is the 1860s. she's expected to be kind, and docile, and selfless. but she's not. she's just like any other twelve year old: she's bold and she has dreams and she knows what she wants. she's a little harsh about it sometimes yes, and her big words border on silly - "they label you when you don't have money" - but again she's twelve.
would we really be seeing Amy March as a bitch if this exact book was published in this time period? no. we'd be praising her, shouting yes queen! every time she stood up for herself. she'd be a role model for every twelve year old girl living today.
and she's way more introspective than we give her credit for. she's not shallow. she was able to realize that she's "a little goose" in the first chapter. and she vowed to change that. she gave up the one thing she wanted: colored pencils. just so her mother would have more perfume.
and the thing about Amy? she follows through with her vow in the first chapter. and it shows through the rest of the book. Meg still wants pretty things, and it carries on into her marriage. Jo is still a tomboy, she still flies out at people when she's mad. Beth never got over being shy.
but Amy became so selfless. she left to live with Aunt March because Beth was sick and her sisters had no one to help and she knew that she'd be nothing but a nuisance at home. of course she whined about it. she was thirteen and scared. and she acknowledged that she was hurting Jo by going to Europe, but Jo said it was fine. how was she supposed to know otherwise if Jo was so good at hiding it and her parents were telling her to go?
and the biggest thing? she never got to say goodbye to her sister. and do you know how old she was? twenty two. she was across the world after realizing that she would never be able to achieve her dream and here she is, getting a letter from her family telling her that her sister - her best friend, her confidant, her role model - is dead. and she accepted it. she didn't hold a deep resentment towards Meg and Jo for getting to say goodbye to their most beloved sister. she didn't hate the world. she carried on. she got married. she went home. she did the only thing that was acceptable for her at the time after everything she wanted in her life was taken away.
and as for Jo and Laurie, (and i know that so many people love them so this is kind of controversial) they were never going to be together. They're too similar and they always argue and Jo was never attracted to him.
but Amy and Laurie? they just make sense. Laurie has always cared for Amy. he rescued her when she fell in the pond. he defended her to Jo all the time even though he was Jo's friend. he promised to visit her when she was staying with Aunt March at Plumfield. he comforted her in Europe.
and Amy pushed him to do better, and to be better. she pointed out his flaws and helped him see that he was disappointing everyone. and even at his worst she cared for him.
Jo loved Laurie as a friend. but when things got serious and real, she stepped back. it's not a bad thing, she knew her boundaries, but her boundaries - like her dreams - never aligned with Laurie's. Laurie was a crowd pleaser, wanting to play music and have fun. Amy was a matriarch through and through. she basked in the light of being a hostess. she wanted the latest clothes. she thrived when given the chance to plan things.
Laurie and Amy were the popular couple because they were so compatible, so in sync. Amy was happiest when she was Mrs. Lawrence, planning parties and charity events, teaching the children of the Bhaer School how to paint.
and Laurie - just like Jo had predicted - was happy with someone who wasn't Jo. He was happy with Amy.
βfirst love / late springβ, mitski // βclass of 2013β, mitski // βgrownβ, gatlin // βthe man with the axeβ, lorde // βworking for the knifeβ, mitski // βnothing newβ, taylor swift // βfuneralβ, phoebe bridgers // βforever winterβ, taylor swift // βgarden songβ, phoebe bridgers // βlittle womenβ, greta gerwig
there is something so healing about the sea. sitting on the edge while the choppy waves collide with the rocks has a way of comforting my soul in a way that can't be explained in words. whenever I am upset or lost or anxious etc, I go to the sea and I am soothed. it doesn't last forever, but for a moment, the pain lets go and it is carried away by the salty waves
my home will be a home with no loud anger, no explosive rage, no slamming doors or breaking glass, no name calling, shaming or blackmail. my home will be gentle, it will be warm. it will keep my loved ones safe. no fear, no hurt and no worries. i may come from a broken and twisted place but i will build something whole and safe. iβll sing in the shower again, cook with a smile and dance in all the rooms. i will heal.