ouchiemyspine

[ouchiemyspine]

if you’re a wheelchair user who takes the bus i wish you an easy time getting on and off and no one arguing about you needing the space

[ouchiemyspine]

Please stop trigger tagging with #epilepsy tw/cw/warning/etc.

I need every single person to understand how horrible tumblr’s tagging system is

I go into the tag for epilepsy and its all flashing lights. We can’t use our own tag because people without epilepsy fill it up with improper warnings.

Use ‘flashing’ in place of ‘epilepsy’ in your tags. You aren’t warning people of epileptics, you’re warning us of flashing lights. Please please tag properly. Epileptics say this endlessly and constantly and it’s ignored. You are risking lives by doing this.

Here’s proof of what I mean:

THIS POST IS 100% OKAY TO REBLOG, I ENCOURAGE PEOPLE WITHOUT EPILEPSY TO ESPECIALLY DO SO!

[ouchiemyspine]

#flu moment

[ouchiemyspine]

big things are happening for the autism community (im making mozzarella sticks and chicken nuggets)

[ouchiemyspine]

[ouchiemyspine]

If you have to use single use plastics bc of disability I love you. I love you and your existence is not bad, you deserve to live.

[ouchiemyspine]

oh by the way:

I have legal disability until 2028 now :-) I was given moderate level which in Poland means I am either unfit to work or can only work in protected environments and/or need part time help from other people in daily life

And I have something wrong with my ears might be an infection idk we'll see

[ouchiemyspine]

sometimes it feels like that kind of people don't even know what any of it means and just throw whatever words they know Mean Bad Thing at people they don't like and hope it sticks 😭

'cop' is new tumblr buzzword. not everyone u disagree with is a cop. u cant make a 'terf' variation for every group that excludes anyone. words have meaning. the world doesnt revolve around u

[ouchiemyspine]

Kurevsko dobre novinky.

[ouchiemyspine]

People who have been labeled "anxious" or "paranoid" can still be in legitimate danger. People who have been labeled "dramatic" and "attention seeking" still have legitimate needs. People who have been labeled "lazy" still have legitimate struggles. People who have been labeled "stupid" still have legitimate concerns. Don't dehumanize and pathologize people in the name of psychiatry

[ouchiemyspine]

happy birthday to me

[ouchiemyspine]

I have no friends no life no hobbies no pain relief and yet I am at peace and happy

it really was all in my head. damn.

[ouchiemyspine]

happy disability pride to all of my fucked up spine havers

happy disability pride to those of us who have spinal cord injuries, degenerative disc disease, ankylosing spondylitis, scoliosis, kyphosis, lordosis, spinal arthritis, cauda equina syndrome, tethered cord syndrome, spinal fusions, stenosis, myelopathy, radiculopathy, spondylolithesis, craniocervical instability, spina bifida, spinal tumors, syringomyelia, and anything else spine related

we are so very cool and i love you all so much

[ouchiemyspine]

life has been like really good though

pain isn't as bad and ive been baking though my sleep schedule leaves a lot to be desired ...

also strange dreams lately but that's not irl so I don't really care

[ouchiemyspine]

okay life updates - appointments with orthopedic doctors in august I believe ? Either way a couple months from now 🙏 At least we have a set date and we will be pursuing spinal fusion but it's not set in stone

[ouchiemyspine]

oh by the way - happy pride month everyone!

I still don't have many updates, getting an appointment with an orthopedic doctor is as difficult as ever 😓 but life goes on

[ouchiemyspine]

There are no disabilities which are raised above ableism. The person in the wheelchair, the autistic person, the person with schizophrenia and the person with an invisible chronic illness may all experience society's ableism in different ways, but none of them can expect to avoid it. So the "you wouldn't say X to Y" advocacy needs to retire yesterday. They say all kinds of ableist shit to all of us and it's time to try out some actual solidarity instead of arguing about who has it slightly worse