phleb0tomist

[phleb0tomist]

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out of all the Bedbound Activities, ive found such unexpected solace in learning geography. its worth knowing n makes me feel integrated with the world. my room is so static and dark and small and but the world is so big and even tho I haven’t really been ‘in’ the world for a decade I feel like i’ve met more of the earth now. i can get 195/197 counties from memory

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another video on the development of protactile!

"Hellen Keller is not real" is a right wing propaganda. It's literally something that was pushed by eugenistic tiktokers two years ago at least because they don't believe disabled people like Hellen Keller can do anything for themselves.

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[phleb0tomist]

happy disability pride month 💗 if you have cash to spare, consider donating to a charity for myalgic encephalomyelitis, which is alarmingly underfunded in proportion to its disease burden. ME is a common condition but not well known, though it affects twice as many people as MS and 3x as many people as HIV/AIDS. 25% of ME patients are bedbound, some unable to speak or chew, many for years or decades, with zero treatment. medical abuse especially against bipoc, female, and child patients is rampant, partly due to ignorance in the medical establishment related to the shocking scarcity of research. people with ME often need round the clock care but it’s hard to find carers who understand the symptoms due to there being so little awareness.

ME association (for multifaceted support)

ME association justgiving

25% ME group (for the severely affected)

Invest in ME (for biomedical research)

statistics below the cut

funding and research for ME vs other conditions:

fair amount of ME funding vs actual funding:

(source 1, source 2)

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i feel better. may or may not have mentioned that already but im just so happy, gradually getting more abilities back overall :> i feel really connected to everyone in the world. hugs to the world. tonight my companion will be a little penguin toy which is maybe 15-20 years old but it’s still a baby chick. I forgot to ever give it a name. listening to the audiobook of gender trouble and it’s making me want to rewatch the film female trouble. john waters i miss you although you are not dead

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Doctors office aesthetic 

[phleb0tomist]

This disability pride month I'm BEGGING you to acknowledge and care about the people in this community who often fly under the radar when it comes to positivity and information. People who require equipment to live, like ventilators, pacemakers, and feeding tubes. People who are bedbound. People with visible differences. People who have disabilities caused by things like substance abuse, overdose, or self harm. People with conditions so rare that they've never met someone who has the same one. People who need full time care and have to have help to use social media.

If you want to support the community, that means supporting all of the community. Disability pride means being proud of every last one of us, and making sure everyone feels heard. Make sure to amplify the voices of those who need it this month, and ideally for the rest of the year too.

[phleb0tomist]