rollingpunk-blog

[rollingpunk-blog]

Sunday, January 8 2017

Sunday. My least favorite day of the week. No, it’s not Monday, like most people dread. It’s Sunday. I’m always nervous for appointments that I have during the weeks, and Sunday is an empty day where I have too much time to think about everything. But enough about that.

Hi, I am Peggy Sue. Give me a moment to introduce myself. I am 18 years old, almost 19, and I live in Eindhoven, The Netherlands with my family. When I was 15 I got diagnosed with Ehlers Danlos type 1, 2, and 7, but often they claim it’s 3. I’ll save you the long sob story for another time, but long story short.. They found out I had scoliosis when I was 10. I had surgery when I was 11, then again when I was 12. After that the dislocations started. Yes, you read that right. Dislocations, as in, my bones moving out of their sockets. It happens several times a day. I can’t really walk anymore without a bone in my legs dislocating, so I have to use a wheelchair whenever I go outside. I am extremely fatigued, and I take a lot of medications for the pain, but over all I try to make the best of it.

The reason why I started this blog, is to be able to write down my thoughts, and share with the world what it’s like to live in a world where being in a wheelchair is not quite that acceptable.

I’ll spill a bit more about myself. I’m quite ‘alternative’, as people like to call it. I listen to a lot of pop-punk bands, I have a lot of piercings and tattoos, and my hair is never in a ‘normal’ hair cut or color. My household exists out of me, my mother, my father, my younger brother, a dog, 8 leopard geckos, 2 tortoises, 2 turtles, a lot of fish, and about 200 snails! Yes, it’s nearly a zoo here, but honestly I love my animals to pieces.

Allow me to start for real now!

Sunday. I opened my eyes and saw my mother sleeping on the couch across from me. My dog laid snuggled up against my legs. It was barely 8AM, and I was already awake. I tossed and turned a bit until I fell back asleep. Luckily I did manage to fall asleep, because I really need to sleep my pills out, otherwise I’d be a zombie through the day.

I sat up and opened the shutter that’s in front of the window halfway, just enough to look outside. The snow that had fallen the night before didn’t look nice, and white, and untouched anymore. Instead it looked flat, dirty and frozen into a big layer of ice. I’m not necessarily a big fan of snow, but there’s something magical about snow that just fell down like a blanket that covered the whole town. Untouched and pure. Something that I long to be. Untouched.

My fathers uncle came to visit, but I was still lazy on the couch while I listened to my family converse with him. The whole afternoon I spent playing board games with my mother, like I spend a lot of my days. It keeps the boredome away and keeps my brain active. We had macaroni for dinner, and spent the night watching TV.

Sunday, January 8 2017. 31 Days until the Modern Baseball concert. 169 days until the blink-182 concert. 11 days until my birthday.

-Peggy Sue