Lots of fashion, too many cats, some mental health and occasionally politics. I've got a rare genetic disease (EDS - Ehlers Danlos Syndrome) that makes me a medical hot mess of severe pain and joint instability. I spend my sick-time DIYing accessories...
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Chrissie Hynde and Debbie Harry, c. 1978.
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hey some days it’s a two ruff day.
bloody hell, he’s wearing two ruffs.
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yes yes yes. When they were trying to diagnose me I said I felt like my skeleton hurt. My bones hurt.
do you ever wake up and your bones just feel…Bad? Because I feel like someone stole my bone marrow in the middle of the night and replaced it with poison.
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EDS - to quote the founders of MAC - impacts “all ages, all races, all genders”.
Yvie Oddly, a queen on the current season of Drag Race, has EDS type 3! Yvie talked about it on last night’s episode. So excited to see EDS in the media more!

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SLPT: Confuse those wine snobs by *hearing* the wine
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haha this wound up censored. Still awaiting the original appeal.
My first ever hospitalglam posts, above, got taken down for the bots thinking it’s violating the community standards.
So I’m reposting and asking how do I move all this content that I generated over to Wordpress, or something less stupid?
The photos do not feature nudity, I’m fully clothed and alone in a clinical setting and the post talks about the invasiveness/how scary it is to have neuromuscular testing and how claiming clinical space in this way helped me with my anxiety.
I’m reposting the photos here in a weird dare for them to flag them again.
Saddens me but I’m probably *also* following everyone else, and leaving this platform altogether. It’s ironic because my being open about being ill is what made me “tumblrfamous” - and internet famous - in the first place.
I did the thing and asked for a “human” to review them, and I knew the weird new rules were going to wreck what was something cool. I did not know how mindless their auto censorship was.
“Hey remember when twitter and tumblr were cool and fun” was actually a topic of discussion at work this week.
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My first ever hospitalglam posts, above, got taken down for the bots thinking it’s violating the community standards.
So I’m reposting and asking how do I move all this content that I generated over to Wordpress, or something less stupid?
The photos do not feature nudity, I’m fully clothed and alone in a clinical setting and the post talks about the invasiveness/how scary it is to have neuromuscular testing and how claiming clinical space in this way helped me with my anxiety.
I’m reposting the photos here in a weird dare for them to flag them again.
Saddens me but I’m probably *also* following everyone else, and leaving this platform altogether. It’s ironic because my being open about being ill is what made me “tumblrfamous” - and internet famous - in the first place.
I did the thing and asked for a “human” to review them, and I knew the weird new rules were going to wreck what was something cool. I did not know how mindless their auto censorship was.
“Hey remember when twitter and tumblr were cool and fun” was actually a topic of discussion at work this week.
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JEAN PAUL GAULTIER at Couture Spring 2019
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team knit something.
The thing about knitting is it’s much harder to fear the existential futility of all your actions while you’re doing it.
Like ok, sure, sometimes it’s hard to believe you’ve made any positive impact on the world. But it’s pretty easy to believe you’ve made a sock. Look at it. There it is. Put it on, now your foot’s warm.
Checkmate, nihilism.
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Made it to Christmas!
…. now it’s goat burnin’ season
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tumblr is eating itself.
I’m making bread
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tumblr community and their female-presenting nipples coming for tumblr as I type this.
Wow. My whole timeline.
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agreed.
Your sfw you will be fine
This is not about what I feel about my blog, but rather those who are affected, I’m talking mainly about sex workers and nsfw artists who have no choice but to make a living out of this. Especially since it’s on the international day to end violence against sex workers.
I might be left on tumblr, we don’t know, but I’m extremely disappointed at how Tumblr prioritizes the wrong issue when they could be tackling child pornography, pedophiles/maps, nazis, white supremacists and etc – things that we have been telling them all this time, but have fallen on deaf ears. I feel like this site has been dying since the purge, there is not much point anymore.
It’s an insult
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seriously tumblr. nudity and sexuality are not the problem of social media right now.
tumblr users: please ban the Nazis
tumblr: if you post a tiddy you’ll be deleted on sight
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