Chronic Illness vent blog. Hashimoto's, thyroid cancer, narcolepsy, major depression. I am so fucking tired all the time.
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Me: I don't have long covid! I'm over my fatigue!
Also me: *takes two hours with breaks to tidy 1/3rd of the basement and needs to lay down for 20 minutes afterwards to be able to walk back upstairs*
#this is fine#I'm shaking like I would after an intense weight lifting session this time last year but this is probably fine
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i simply need everyone to understand that i am tired all of the time. literally at all moments. if i ever go somewhere and do something, it is not because i am somehow full of energy, but instead that i have carefully stored up all of my little bits of energy like a dragon collecting jewels, and am now vaporizing them all at once
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No, you're thinking of nepotism. Narcolepsy is a class of dietary supplements that claim to improve cognitive function.
“Covid game me narcolepsy” no you fucking pervert it didn’t. You’re just a weirdo with a gross fetish. Covid didn’t make you suddenly want to fuck dead people. Keep that shit to yourself you gods damned weirdo
I have type 2 Narcolepsy. Studies have shown that serious viral infections can cause people to develop Narcolepsy if they are already genetically susceptible to having it. This includes covid. That is what happened to me.
You on the other hand might want to google the difference between Narcolepsy and Necrophilia….
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Great googly moogly it's all gone to shit
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The worst part of an involuntary narcolepsy nap - the ones where you're sitting somewhere relatively comfy so you drop and just keep sleeping - is waking up with no idea where you are or when you are or who you are or
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State of Nebraska Voice: nArCoLePsY iSn'T a DiSaBiLiTy
My fucking medication that lets me do my job:
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There is a level of truly stupendous bullshit to having the one-two punch of narcolepsy and severe obstructive sleep apnea. A bitch will stop breathing more than once a minute while asleep unless I have my breathing machine strapped to my face but oh ho ho what's this? Sleep attacks with the steel chair? So there I shall be, narcolepting on the couch or at my desk or whatever, then I'll choke on my own throat and get cantilevered back into semi-wakefulness where the sleep paralysis and my own fucking body prevent me from getting a full breath before I bob back down into instant REM. Rinse and repeat for a few hours while all my dreams involve me suffocating slightly while I go about my business.
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I was diagnosed with Hashimoto's when I was six. I had a fairly large thyroid nodule removed the same year. My thyroid function was monitored until I was about... 10? 11? And then stopped. I strongly suspect this was because my mom's private insurance wouldn't pay for the testing. I didn't get ANY treatment for hypothyroid until I was twenty. Complete thyroidectomy at 22.
Seeing people who are diagnosed with Hashimoto's in their 30s, their 40s, and they talk about how debilitating it is is just like.... I've had what you have all my life. This thing that destroyed your hobbies and job and life.
Have I EVER known what normal feels like?
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being disabled will really have you thinking/saying things like “yeah i’m not really THAT disabled. as long as i take my meds twice a day (and as needed), eat and drink exactly the right things, keep the perfect balance of being active and resting, the weather is stable, and nothing unexpected happens AT ALL… i’m totally FINE! i probably should not even call myself disabled at this point because i’m doing so well!”
if you don’t want to call yourself disabled, that’s fine and it is your choice! but if you’re only “fine” or “doing really well” when a bunch of different variables are all lined up perfectly, then maybe you are not fine actually. just a thought!
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Elaborate in the tagss
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Narcolepsy is the dumbest chronic health condition from the outside. It's like. Aww, is baby eepy? Are you big eepy, eepy baby? Need a lil nip nap all the time?
Do meth about it, idiot.
#chronic illness#I just started a new medication. next step is actual adderall.#'excessive daytime sleepiness' what a MILQUETOAST-ASS SYMPTOM#just. sitting in the sleep doctor's office nearly in tears because I am SO SLEEPY and he just nods like 'sure. sure. here's an amphetamine.#narcolepsy
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