I've been living with this disease my entire life, it took me ten years after my initial questions to finally get diagnosed, only to find out I had a rare genetic disease with no cure, no treatment, a degenerative tendency that makes it harder to deal with every single day as your body gives out on you.
Please share this around and consider donating to fund research. The Ehlers-Danlos Society is a trusted entity that does almost monthly conferences and talks to explain in excruciating detail how EDS affects every aspect of your life from your heart function to your ability to work or even your risks during pregnancy and labour and how you're almost guaranteed to pass on this fucking curse to any child you suffer through birthing.
The EDS Society is super transparent about all the research they do and how your donations help, because it sure as fuck isn't gov funded research that cares about finding a solution for us. After all, it's a rare disease so if they find a cure, it won't make them a lot of money to give it to the couple thousands to dozens of thousands of us that live in every country.
For the entire month, I'll be doing simple portrait commissions to donate money to the research done by the EDS Society. If you want something in exchange for your donation, then either DM me or send me an email at [email protected] and provide references for your OC or fanart you'd like a portrait of. Check out my art tag to see my style or my pinned post for my commission info where there are examples as well.
If you also suffer from EDS, you can use May to tell your story, raise awareness, fundraise (you can even get a t-shirt from EDS Society if you raise $60 or more) and in general, help people know more about this, help families better care for their EDS loved ones, and be a positive impact on this community. Use the #MyEDSChallenge or #MyHSDChallenge (depending on your diagnosis) on Twitter, Instagram, Facebook or Tiktok and the Society will reblog your stuff. There are also 31 prompts for you to post about, which you can find on the website. If you want to hear a little about my own story, I have an ehlers-danlos syndrome, disability, disability awareness and EDS hashtags on my blog for you to go through.
Again, reblogs are very much encouraged and appreciated. Please help raise awareness for this burden we have to live with, knowing our own community has to do its scientific research because no one cares about us.
An Anatolian pars, a leopard subspecies, is seen by a camera trap set up in Turkey. It was thought that the endangered animal was extinct for years until 2013 when two of them were spotted
Shout out to all the Black ppl that can no longer participate directly in the fandom they love because of the stresses of racism 👍🏾 you contain multitudes of value and I'm sorry that the color of your skin and the power of your voice makes people not want to acknowledge that.