#Brain Cancer Surgery
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lilfoxy1013 ¡ 1 year ago
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Alrighty.. just putting this here for safekeeping and so maybe it’ll be easier to explain. On Feb 17, 2024 my boyfriend at the time woke up around 9:30 am to me having a seizure. He took me to a research hospital in the area and we got to the ED around 11 am. They did a CT and an MRI and have found what they called a 4 cm tumor in my right frontal lobe. I had another MRI in the middle of March and got more measurements on the size of the tumor. Based on the measurements, I did the math and found it was 119 cubic cm (about the size of a billiards ball). I had a right frontal craniotomy on April 1, 2024. They were able to remove the entire tumor and my MRI the evening after surgery showed no residual tumor. I’ve met with an oncologist and we waited for pathology results. Pathology came back as a Grade 3 Astrocytoma with the IDH1 mutation. I have started 500 mg of Tibsovo daily to keep it from growing back, or at least slow it down. There isn’t a cure for brain tumors, so we just wait for it to come back and do surgery again. If you’ve read this far into my real life shit, I appreciate any well wishes, thoughts, and prayers if you’re religious. I try to keep my spirits up and handle things rationally but some days that is a little more difficult. I’m stuck on antiseizure medication for at least a year from my latest seizure (luckily it’s still just the seizure in Feb 2024) and cannot drive per my state’s laws for a year from the last seizure as well.
Luckily my job has been flexible with me since February but trying to get back to full time hours is a struggle, especially if I want to take care of myself as well (bathing, eating, cleaning, etc). Also, lots of back and forth with insurance companies and the hospital and lots of scans and follow up appointments.
6 month MRI was clean. “No progression” and “stable burden of disease”. Joint pain has been mostly managed with new meds.
I moved in with my “friends” who turned into girlfriend, fiancée, and wife very quickly (we had a hand fasting ceremony Oct 6, 2024) and her husband became my boyfriend as well. Being in a functional throuple is new to them, so there have been some hiccups but everything is looking up. 💜
9 month post op MRI came back with no suspicious activity to suggest disease progression or recurrence, so that’s a win! I’m almost able to legally drive in Arkansas again (very stupid seizure law here). The wifey’s husband and I are not pursuing a relationship right now to keep our household as stable as possible, but I think it’s for the best long term ☺️
Well folks! We made it to a year. MRI was also exactly the same as January so we are graduated to 4 months until my next MRI! It’s been one hell of a year since having literal brain surgery, but we made it. My wife, her hubby and their toddler moved a few states away to their other house, so it’s been just my cat, two of her kittens, and me in the house…. But that’s not lasting for long because my daddy is moving here!!
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biologically-confused ¡ 1 month ago
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I am going back to the office tomorrow and feeling a lot of feelings about it. I desperatly want to go and feel normal again but also I know it will just show me that things are not normal. I am by no means ✨healthy✨ - but it will take another few weeks to feel close to normal and I am already slowly going crazy at home.
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boycritter ¡ 2 months ago
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lowkey i am going to lose my mind
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arctic-hands ¡ 4 months ago
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I'm not complaining about not having cancer by any means, but I once read in a science mag that ninty percent of the world's population will have cancerous cells in them at any given time, it's just a matter of if the cells stay and multiply and also the fact that ninty percent of the world's population isn't being constantly monitored all the time so those cells will go undetected if they don't linger, assuming they don't persist and you begin noticing something is wrong.
Anyway given all the medical testing and observations and appointments for this and that and the fact I'm constantly in the E.R and frequently admitted to the hospital, it's a bit of a statistical anomaly that I've only had 3 cancer scares in my life
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cockoff ¡ 4 months ago
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bpod-bpod ¡ 11 months ago
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Seeing Progress
Glioblastoma (GBM) is the most intractable and fatal type of brain tumour and models to aid study towards better treatment are urgently needed. Here, a genetically-relevant zebrafish model of aggressive human GBM which, thanks to the transparency of the developing fish body, enables live imaging and presents a means of high-throughput genetic and molecular manipulations towards therapeutic discovery
Read the published research article here
Today – 17th July 2024 – is Glioblastoma Awareness Day
Read here about the OurBrainBank initiative, the research and data collection community with a mission to turn GBM from terminal to treatable
Image from work by Alex Weiss and colleagues
Developmental and Stem Cell Biology Program, The Hospital for Sick Children, Toronto, Canada
Image originally published with a Creative Commons Attribution 4.0 International (CC BY 4.0)
Published in eLife (reviewed reprint), July 2024
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karnalesbian ¡ 8 months ago
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:(
Maggie Smith on Friday and today Dikembe Mutombo....
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health-gates ¡ 4 months ago
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Brain Tumor Surgery in India: Advanced Care, Compassionate Healing
India has emerged as a global destination for advanced brain tumor surgery, offering world-class treatment at affordable prices. With cutting-edge technology and highly skilled neurosurgeons, patients from around the world are finding new hope and healing here.
Why Choose India for Brain Tumor Surgery?
¡         Expert Neurosurgeons: Indian hospitals are home to internationally trained and experienced neurosurgeons, ensuring precision and successful outcomes.
¡         State-of-the-Art Facilities: From minimally invasive techniques to robotic-assisted surgeries, Indian hospitals are equipped with the latest medical advancements.
¡         Affordable Treatment: Compared to Western countries, brain tumor surgery in India costs a fraction while maintaining the highest standards of care.
Types of Brain Tumor Surgeries Available:
¡         Craniotomy: The most common approach, involving the removal of part of the skull to access and remove the tumor.
¡         Endoscopic Surgery: A minimally invasive method using a small camera and surgical tools, ideal for tumors in hard-to-reach areas.
¡         Stereotactic Radiosurgery: A non-invasive procedure using precise radiation beams to target and destroy tumor cells.
Top Hospitals for Brain Tumor Surgery in India:
¡         Apollo Hospitals (Delhi ,Chennai, Hyderabad)
¡         Fortis Memorial Research Institute (Gurgaon)
What to Expect During Recovery:
¡         Initial hospital stay of 5-10 days, followed by outpatient rehabilitation.
¡         Physical and occupational therapy to regain strength and coordination.
¡         Emotional support and counseling to help patients and families navigate this challenging journey.
 Take the First Step Toward Healing!  If you or a loved one is facing a brain tumor diagnosis, India offers world-class medical expertise with compassionate care. Reach out today to explore your treatment options and start your journey toward recovery.
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spineandneurosurgeryindia ¡ 1 year ago
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In conclusion, Kelechi Abimbola's success story of brain tumor surgery with Dr. Arun Saroha through the Spine and Neurosurgery Service in India is a testament to the resilience of the human spirit and the transformative impact of expert medical care.
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lilfoxy1013 ¡ 7 months ago
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@lilfoxy1013 Hi, it's been awhile since I sent you an ask. How you been doing so far?
Things have definitely been better. Had a really debilitating headache almost 2 weeks ago, called out of work the next day and went to urgent care. I got a muscle relaxer and was instructed to reach out to my oncologist’s office to see if they needed to have an appointment with me. They scheduled a virtual visit about 4 weeks out. Still been having headaches on and off for the last week and a half, but they’re not super painful so I just push through them.
Thanks for the ask and checking in on me! ☺️💜
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iliveinprocrasti-nationn ¡ 1 year ago
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one thing abt being disabled/chronically ill that some people don’t get is that sometimes body maintenance that ensures you have the absolute minimum amount of function can also be something that takes away a lot of control and autonomy. you can argue till the cows come home that making those decisions to try and help yourself (or realistically to try to make sure things aren’t worse than they already are) is something that exhibits control and autonomy and stuff, but they can be so limiting in practice because they’re things that take up so much time but have to be done to do anything else
#i have to sleep a lot. i’m at the point where functioning requires 8 hours of sleep if not more#I should probably be getting 10+ but i’m a student and i work so 8 is the minimum. but then also getting ready for bed is a whole process s#the whole thing can take 10-12 hours depending how much im sleeping. just to make sure i can do anything#that is time in my day i cannot use for anything else. it’s not ‘oh but i can push through it’ because i can’t without spending the next da#lightheaded and nauseous and vaguely dizzy and with such intense brain fog I can’t think with my fatigue so bad i genuinely don’t know how#get myself to work a lot of days. my abled peers don’t have to deal with this at all. they have unlimited study time if they want to#and yeah it is a choice i’m making that’s true i could just not do. except i would lose my job and fail out of college because i would not#be able to get to classes or do my homework or think. but being told ‘but you are making choices about your life’ when i have lost so much#of what i used to be able to do because i am spiralling down and continuing to get worse is so.#literally last year i would wake up at 6:30 and then go to school till 3 and then go to my internship until 10 and get home at 11 and be in#bed anywhere from midnight to two in the morning and then wake up the next day and do it all again. i graduated with a 3.9 gpa and made it#into my top college while dealing with my cancer symptoms and then the two surgeries about it#but now i lose half my day to just making sure i can get out of bed. i can’t go anywhere because my body is physically too exhausted#any extra time goes into doing homework or occasionally time to myself#not decimating my health by doing minimum body care responsibilities isn’t freeing. occasionally i have a good day which is freeing but tha#usually goes into just. other things outside class or work or eating. I don’t go do something for myself or go do something fun on good day#because I still can’t. good days just mean i don’t want to lie down on the pavement when i’m going somewhere#I just. I don’t magically have control over my life because i try to get enough sleep. i lose half my day to doing that and ultimately it’s#just a bodily function that would have to happen anyway#this is a vent post im just having a really hard time right now because it feels like im in exponential decline. it was nowhere near this#bad last semester. my grades are tanking and i have no free time because anything outside of sleep is either work or school#vent tw#yall can rb this just ignore my tags completely#disability#chronically ill#i keep trying to explain to people how pots works because that’s all logical but there’s no way to explain what it’s doing to my body or ho#i feel all the time. the last time i felt this bad was when i had a bad flu or immediately after surgeries because i don’t react well to#anesthesia and always come out of them feeling like shit. and now i just feel like this all the time and it’s only getting worse#I can’t even stay up late anymore because my body feels like it isn’t counting the sleep even if I get 8 hours#I can deal if I have a free day the day after but that just leaves Friday and Saturday nights and I usually still have to do homework
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oculiaperticlausi ¡ 2 years ago
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— INTRODUCTING LYSANDER CARMICHAEL
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welcome to marina, LYSANDER CARMICHAEL ( cis man, he/him ) ! they are a/n THIRTY-ONE year old who has lived on the island for HIS WHOLE LIFE. word on the street is they’re currently living in HYLAND PARK and works as a ENGLISH PROFESSOR. everyone also says they look a lot like JONATHAN BAILEY. what do you think? — ALYSSA, 29, SHE/HER, PST.
b i o g r a p h y;
one of the eldest carmichaels
was practically born with a book in his hand
was utterly helpless when his youngest got brain cancer, it was the first time in his life he felt like he let down his siblings and his family
tried to be as protective as possible with his siblings but his anxiety was crippling when he was younger, sometimes he would stay locked in his bedroom for hours on end
constantly bullied in school, it's why he fell in love with Shakespeare he felt like maybe he was born in the wrong time
was a drama kid, enamored with the idea of being someone else for that hour a day especially since it's where he made most of his friends
didn't have many relationships in high school, didn't really try either because he felt he was too mature to hang around some of them. the only time he socialized with kids his age was in drama class.
college was where he peaked, it was easy to socialize and interact with people there because everyone was there to learn not to gossip or talk about who was fucking who
in his poetry class was where he met him
honestly, Lysander had never given himself the chance to explore his sexuality but Ollie aka Oliver was a force to be reckon with
he fell hard, he was so infatuated with the man that when the night their first kissed happened he felt like a teenage girl
life couldn't have been better he graduated a few years later and got a job at the same university as an English professor, taking over his mentors class
he proposed to ollie and everything was right in the world
until a few weeks ago, Ollie and him were driving on the outskirts of marina when a drunk driver plowed into them
Oliver was pronounced dead on the scene and Lysander was flown back to Marina and went under surgery for some internal bleeding
when he woke up to his siblings with tear stained cheeks he didn't need to ask
he has refused to deal with it, when he's home alone he talks to himself as if Oliver is still in the room
he won't acknowledge the loss when someone asks him about it, in his head they are still living happily and he doesn't know how to break himself out of the water slowly starting to drown him.
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causeimasinger ¡ 11 months ago
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saturday was my SIL’s bday and we went swimming for probably 2 hours, maybe a little more, and obviously it was hot outside and i probably spent half an hour in direct sunlight out of the pool so i figured my body would give me some kind of consequence but damn. yesterday and today i slept all day and didn’t get out of bed til 5 pm 😭 and my whole body hurts all over. long term effects of cancer treatments by beloathed
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hikeyzz ¡ 1 year ago
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i've been sick now for over a month. between my kidneys and stomach i have been in constant pain and discomfort for more than a month straight. fuck. it's been some of the worst, most debilitating pain of my life. which says a lot coming from someone who has lived with chronic pain for the last eight years and had two throat surgeries last fall. everyone in my life is concerned and doing what they can for me, but they can't do much. i can't eat regularly, i have major problems accepting help from others, and i hate people seeing me unwell. so instead everyone just loves me as best they can with calls and kind notes. but when i say that i'm tired of being sick and don't want to do it anymore everyone acts like i'm crazy. would YOU be able to survive this shit without breaking?? sudden illness on top of chronic illness AND mental illness?! don't answer that it'd make me feel worse. i'm just trying to survive this. i am trying and trying and trying and trying and trying and in the end i am still just drained and defeated.
i know i sound like a classic bitch in crisis but i'm not. i'm getting more and more sick every year. i have to question what is worth fighting for and what isn't. i cannot spend my whole life being sick or recovering from being sick. i won't.
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bpod-bpod ¡ 2 years ago
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Fluid’s Bad Influence
Cerebrospinal fluid induces resistance to chemotherapy in glioblastoma (GBM) brain tumour cells – clues to improved therapy strategies for this hard to treat aggressive cancer
Read the published research paper here
This is International Brain Tumour Awareness Week – 29.10–5.11 2023
Image from work by Brett W. Stringer, Manam Inushi De Silva and Zarina Greenberg, and colleagues
South Australian Health and Medical Research Institute (SAHMRI), Laboratory for Human Neurophysiology and Genetics, Adelaide, SA, Australia
Image originally published with a Creative Commons Attribution 4.0 International (CC BY 4.0)
Published in Science Advances, October 2023
You can also follow BPoD on Instagram, Twitter and Facebook
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gracelandmp3 ¡ 1 year ago
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posts like that tiktok going around of the guy who had horrible top surgery complications frm his negligent tiktok surgeon make me soooooooooo anxious bc my shit has healed well to all appearances & my follow ups were all good and clean i think but also my surgeon Did get extremely sued for fake yelp reviews . and my nipple kinda horts
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