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#I'm pro-self diagnosis. I wasn't bitching about self-diagnosed people. You can't thrust this onto some nebulous boogeyman.
shrimpmandan · 1 year
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do you mean you feel alienated around self diagnosed autistic people? (aka 99% of the online autistic community) because if so I completely agree. I'm not sure if you have access to it but I go to public therapy for disabled adulta (if you're over 18) and in my group there is a bunch of autistic/adhd people. we usually talk about medication, funny stories about therapy and experiences with growing up autistic and such. it's pretty relieving, and completely different from speaking to autistic people online, which just feels like talking to neurotypicals
No I feel alienated around autistic people. And people in general. It's for a lot of reasons tbh, not JUST being autistic, but I've definitely have had grievances with the autistic community online for some time now. This is because there's this prevalent idea that what does or doesn't work for one autistic person must be true for every autistic person, which inevitably leads to alienation. I'm considered weird and offputting even by the standards of other autistic people. This isn't an uncommon experience for me.
Also, part of my alienation comes from the general politics of the online autistic community. I call myself Asperger's and high-functioning, which while I totally get why other people don't call themselves that, it's just kinda what I grew up with and what works for me. Also being trans on top of that, and hearing so many autistic people talk about how they personally don't understand gender, whereas I didn't have much of an issue with it (I view it through a strictly neuroscientific lens; I don't do well with metaphors and vague feelings). Being told I can't say "retarded" even though I've been CALLED retarded, not to mention directly threatened (I was nearly shot lmao) over being autistic. A mixture of oppression olympics among autists, and also 'higher-functioning' autistic people speaking over 'lower-functioning' autistic people. My stims also don't get represented much (I don't really flap, I've always been more of a rocker/bouncer/vocal stimmer) and I don't fit into the "good autist" role that a lot of people-- both neurodivergent and neurotypical-- want out of me. All this to not even mention how I get alienated for my other forms of neurodivergence, with people in general being extremely ableist towards those with OCD and dissociative disorders.
All I'm saying is it's not self-diagnosed autists who make my life harder. Not when me and most of my family has had to resort to self-diagnosis due to doctors not listening to us or just a simple inability to even see a doctor due to a lack of money and time. Actually, most of the people I click with are the self-diagnosed "I think I might be neurodivergent" people-- whether that's autism, ADHD, or some other various neurodivergence. The self-diagnosed people are my immediate family, as well as my friends who had to figure out they're neurodivergent because nobody else told them, or gaslit them over it. We're pro-selfdx here, and honestly therapy is the least of my concerns right now, at least when it comes to autism. I don't need therapy for being autistic. I don't need therapy to teach me how to be normal. I need therapy to teach me how to live. Y'know, tackling my ACTUALLY problematic disorders, like my severe OCD and CPTSD and what I believe to be some form of OSDD. ADHD... yeah I just need meds for that, it is what it is. But I've been in therapy SEVERAL times for my autism, with people who were supposedly specialized in it, and even they didn't really know what to do with me. So shrug lmao.
For the record I am professionally diagnosed with autism. I'm actually self-diagnosed with most of the other mental health issues I occasionally talk about here (ADHD, OCD, OSDD, et cetera). I'd LOVE to get diagnosed but we're just not in a financial situation where we can rn. I don't like throwing self-diagnosed people under the bus-- more often than not they're just trying to understand themselves and genuinely don't have the ability to access proper resources. I don't really think of the cringe "faking disorders for attention and spreading misinformation" people when I hear about self-diagnosis, personally. I think about people who have been gaslit and told either that they're weird/bad children their whole lives, or even the reverse where they're told they're gifted, before they begin to struggle and then are promptly abandoned. I went through the latter more than the former.
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