#and it would’ve taken even longer for that hypothesis to be suggested and researched if not for COVID
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“some studies suggest POTS may be a disorder of both the peripheral and central nervous systems”
they’d fucking better??? this is new information? what?
i really feel like the field of medicine would benefit if doctors encouraged patients to be informed about like… general human biology and anatomy. and asked us more questions in general.
because i feel like if you ask any person with POTS who knows what the peripheral and central nervous systems are if they’re both effected we’d probably all say “yes”… or they could ask about specific symptoms or whatever in a more normal way y’know… and idk, think about what part of the nervous system controls those symptoms. or just apply critical thinking in general like… what does the peripheral nervous system do? it communicates with the central nervous system. therefore, we can hypothesize that most things which effect one system will also effect the other.
and then they could’ve done the dumbass water is wet studies to prove it before a global pandemic sparked autoimmune-induced POTS in god knows how many people… and maybe treatment would address the neurological side of the disorder more often as well, rather than just focusing on the cardiovascular side of things and all those people (not to mention the people like me who have non-autoimmune related POTS… who were simply not numerous enough to warrant such research, of course) would face less disability and have access to a higher quality of life.
#i understand that to claim anything as fact and not theory in the field of medicine (or any scientific discipline) you have to…#present adequate quantifiable data that proves the theory#but the fact that the ‘some studies’ referenced appear to mainly be an ncbi publication from 2021#which is nearly 30 years after POTS was officially defined#is… well… disheartening#and it would’ve taken even longer for that hypothesis to be suggested and researched if not for COVID#not that the long-COVID autoimmune POTS sufferers don’t deserve that attention i’m glad it’s finally being studied#but like i said… those of us with POTS from other causes were simply never important enough to society to get much funding & research#i mean we’re all in the same boat because they failed to give a fuck about POTS before now#but it still stings just in general like how little society cares about people with chronic illnesses and/or disabilities#like really… in almost 30 years… no one who worked with this disorder in any capacity ever went ‘huh. i wonder…’#not until people started developing it relatively enmasse and effecting the workforce
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