#dad put on some american thing and then went out to help my grandparents' carer with my grandad getting to bed

[deeisace]

Fucking christ

[thedreadvampy]

talking to my mum last night and getting fucked up about the degree of trauma my grandparents' generation faced and how. unwilling and ill-equipped the care system is for the obvious fact that there's a huge incidence of PTSD and complex lifelong mental health issues in those generations

grannie was 17 when she became a nurse and she was working immediately in London at the height of the Blitz. her first day she saw blown apart children and had to comfort their parents. she was almost hit by a rocket cycling home.

grandpa spent the whole war in labour camps before being trapped behind the Iron Curtain in the ruins of Dresden, almost dead from starvation from the camp, for another 3 years before making it back to Blackpool to find out his parents had died in his absence.

granny got radiation sickness at 13 from being put under an X-ray with no protection and forgotten about for hours; she lost all her hair and developed chronic pain and health problems. after years of severe physical, emotional and sexual abuse from her family and the men around her, she got engaged to an American pilot who was shot down and killed in the last month of the war. her former boyfriend came back a dissociative shell of his pre-war self and she ended up trying to raise three small children on her own, with her family at the other end of the country and her husband often having violent flashbacks and outbursts of rage. she was suicidal and had violent psychotic breaks and got institutionalised and medicated on and off her entire adult life.

like. it isn't just the war. people born in the early-mid 20th century, especially women, have been subject to so much sexual trauma, domestic and social violence, bigotry, and grief on grief on grief.

with my granny, it's entirely understandable that she was 'mad'. when I knew her, she was on heavy daily dosage of lithium - she stopped because it was destroying her gut after 30 years and she became violently aggressive, vindictive, scared, psychotic, paranoid, frequently delusional and extremely abusive. She was terrified of doctors because of her repeated experiences with medical abuse, she was furious with everyone around her, she coldly hated her husband and seemed actively happy when he died, and the thing is all of that makes perfect sense because she was profoundly and repeatedly traumatised for at least the first 50-60 years of her life.

but the thing that worries and answers me is that the elder care system and the mental health system are completely unwilling to engage with the fact that many many many old people have severe pre-existing mental health conditions. after all, how many of us have PTSD or psychotic episodes or bipolar or BPD or special care needs related to autism or OCD or ADHD or whatever? those don't just Cease To Exist after a certain age. and our parents and our grandparents grew up in times with much less support for mental health and much less awareness of trauma. granny's early traumas were familial but she was institutionalised repeatedly and treated appallingly throughout her life and that's in itself traumatic.

when granny was 82 and she stopped taking her lithium, she was frail, ill and a danger to herself and others.

they put her on a dementia ward when she was sectioned because she was Old, and Old Mad People Are Demented. but she didn't have dementia! she had chronic PTSD and paranoid delusions but she knew who, where and when she was and she was perfectly sharp, she just wasn't coping. when we went to visit her she'd say furiously 'they think I'm like the other people in here but I'm not, I'm not losing my marbles, I've always been this way'

none of us got any support looking after her while she was in hospital or after she left the inpatient ward - nobody checked in on grandpa while she was in hospital or on weekend release, and after she was released Dad looked after her single-handed while trying to deal with his dad's death. (she may have murdered grandpa while on weekend release, or he may have died of heart failure - either way when she went off the rails after 20 years stable, he gave up on life and I me and my sibling (for the record we were 10 when she left hospital) listening to her trying to continue unpicking her past trauma was I think the most therapy she got after she left.

she couldn't go into a regular elder care home because she was too unstable, she needed specialist mental health care and she sometimes needed to be constrained for her own safety and that of other people. residential mental health care facilities weren't equipped to deal with her needs as a woman in her 80s. she couldn't go into dementia care, which is about the only residential care available for old people with serious mental health needs, because she didn't have dementia and it would have been utterly inappropriate and harmful for her and the other residents. she lived to 93 and for the last 11 years of her life it was up to Dad and us to look after her in her home because there was simply nowhere else for her to go.

and what really fucks me up is that she wasn't past help. a lot of people thought she was but when she left hospital she was trying really hard to continue therapy on her own without a therapist, she drew and wrote about her life and memories and she used to sit opposite me and open up in a way I now utterly recognise as trauma therapy, she would try to find ways to talk about what had hurt her and state into the middle distance for tens of minutes trying to get it together enough to continue. she wanted to do the work. but the only people there for her were her son who was shellshocked from losing his dad and traumatised from effectively losing his mum again and who was spending all his energy just trying to get through work and home and get her physical needs met, and a couple of preteen children who had the will but not the capacity to help. we were barely holding ourselves together (mum drove granny places but mostly her capacity was being spent being about the only support Dad or us could get) and we just couldn't meet the work of a trained therapist. and eventually she gave up on getting better and got angrier and more bitter and more abusive to everyone. but she wanted to feel better. she wanted to deal with her shit. but there was no support.

and there must be thousands of people like her. older people with lifelong trauma and mental health issues who are too mentally ill for elder support and too old for mental health support. and the MH system doesn't think they're worth the resource cost because after all they're old, they'll die soon. but where are they meant to go? and how much harm does unsupported home care do to the person in need of care and to the people carrying for them? it just multiplies trauma down the generations. you can't just expect mental illness to only affect the young when the old have been just as traumatised and you can't treat them as separate issues when old people need carers who are qualified to deal with both their age and their mental health issues.

like yes many people develop late life mental health issues like Alzheimers and dementia, just as many people become disabled for the first time by age. but a lot of people are disabled or mentally ill for decades before they reach anything approaching elderly, and those things don't suddenly go away and don't have the same support needs as late-life issues.

idk. I'm very angry. if there was recognition of the need to support older people with lifelong trauma then my grandpa wouldn't have died hopeless and unsupported, my granny might have got her life back and got some healing after 80 years of living in fear, my dad wouldn't have had his own mental breakdown and slide into paranoia and conspiracy theory, and me and my siblings wouldn't have lost our whole adolescence trying to shore up two badly neglected adults' catastrophic mental health while under constant fire.

literally a ten minute weekly phone call with grandpa while granny was in hospital and weekly follow-up talk therapy for her after she was discharged could have made so much difference but nobody fucking cared. because she was Old. she was in the hospital because she was a danger to the people around her and they discharged her for the weekend as a trial run and her husband died suddenly while she was in the house and she seemed totally unbothered and they still. let her out for good two weeks later with no followup care or therapeutic follow-up and no support or advice for Dad on looking after her. they started talk therapy in hospital and then dropped her abruptly and left her raw and cracked open without any way to put herself back together. and she isn't unique it's just. Careless. and so destructive.