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#you do not have to make a “spellers IPA beer ‘ about it I promise
forever tired of our voices being turned into commodity.
forever tired of thorough medaocrity in the AAC business. how that is rewarded. How it fails us as users. how not robust and only robust by small small amount communication systems always chosen by speech therapists and funded by insurance.
forever tired of profit over people.
forever tired of how companies collect data on every word we’ve ever said and sell to people.
forever tired of paying to communicate. of how uninsured disabled people just don’t get a voice many of the time. or have to rely on how AAC is brought into classrooms — which usually is managed to do in every possible wrong way.
forever tired of the branding and rebranding of how we communicate. Of this being amazing revealation over and over that nonspeakers are “in there” and should be able to say things. of how every single time this revelation comes with pre condition of leaving the rest behind, who can’t spell or type their way out of the cage of ableist oppression. or are not given chance & resources to. Of the branding being seen as revolution so many times and of these companies & practitioners making money off this “revolution.” of immersion weeks and CRP trainings that are thousands of dollars and wildly overpriced letterboards, and of that one nightmare Facebook group g-d damm it. How this all is put in language of communication freedom. 26 letters is infinite possibilities they say - but only for the richest of families and disabled people. The rest of us will have to live with fewer possibilities.
forever tired of engineer dads of AAC users who think they can revolutionize whole field of AAC with new terrible designed apps that you can’t say anything with them. of minimally useful AI features that invade every AAC app to cash in on the new moment and not as tool that if used ethically could actually help us, but as way of fixing our grammar our language our cultural syntax we built up to sound “proper” to sound normal. for a machine, a large language model to model a small language for us, turn our inhuman voices human enough.
forever tired of how that brand and marketing is never for us, never for the people who actually use it to communicate. it is always for everyone around us, our parents and teachers paras and SLPs and BCBAs and practitioners and doctors and everyone except the person who ends up stuck stuck with a bad organized bad implemented bad taught profit motivated way to talk. of it being called behavior problems low ability incompetence noncompliance when we don’t use these systems.
you all need to do better. We need to democritize our communication, put it in our own hands. (My friend & communication partner who was in Occupy Wall Street suggested phrase “Occupy AAC” and think that is perfect.) And not talking about badly made non-robust open source apps either. Yes a robust system needs money and recources to make it well. One person or community alone cannot turn a robotic voice into a human one. But our human voice should not be in hands of companies at all.
(this is about the Tobii Dynavox subscription thing. But also exploitive and capitalism practices and just lazy practices in AAC world overall. Both in high tech “ mainstream “ AAC and methods that are like ones I use in sense that are both super stigmatized and also super branded and marketed, Like RPM and S2C and spellers method. )
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