trishs-journey

[trishs-journey]

Korin finally found his way into the playpen. Silly kitty 😹😻 #catsofinstagram #gingercat #playpen #cats #korin #giantcatbed #malecats #fluffycat #fatcat #babybed #cutecats #catlover #catlife #instacat #catloversclub #catoftheday #catphoto #ilovemycat #toomanyhashtags #catphoto https://www.instagram.com/p/Cj67SjQMOP1/?igshid=NGJjMDIxMWI=

[trishs-journey]

Korin loves to be inside our ikea laundry basket especially if there is clothes inside it. #ikea #ikealaundrybasket #ikeapets #cats #catsofinstagram #fatcat #fluffycat #housecat #lazycat #gingercat #malecat #pets #petstagram #petphotography #cutepetclub #cutecat #cuteanimals #orangecat (at Ponca City, Oklahoma) https://www.instagram.com/p/CjzZdgqsvkE/?igshid=NGJjMDIxMWI=

[trishs-journey]

Alice discovered the playpen my aide leaves over here for when she brings her baby. Giant cat bed activate! #catsofinstagram #playpen #giantcatbed #tabbycat #tabbytude #alicethecat (at Ponca City, Oklahoma) https://www.instagram.com/p/CjV59NQrpiO/?igshid=NGJjMDIxMWI=

[trishs-journey]

New business So as I stated I started a small business in hopes to raise more awareness for Muscular Dystrophy and Limb-Girdle Muscular Dystrophy.

[trishs-journey]

I started my own business!

So I did a thing. It started with me learning how to crochet and making gifts for family and friends. Then I decided I wanted to try other crafts, so I bought a Cricut Maker. I made a few decals to decorate my machine and that’s when I was asked if I sell decals. I had never really thought about selling anything because I know a lot of people already sell decals and other items. Then my bestie…

[trishs-journey]

I have launched Trish's Crochet for a Cure. I crochet items such as Awareness Ribbons, dishcloths, beanies, coasters, headband/ear warmer and more. A portion of the proceeds from each order will be donated to the MDA/Coalition to Cure Calpain 3 (which is one of the genes that make up my type of Muscular Dystrophy which is Limb-Girdle Muscular Dystrophy 2A). Visit link in bio and/or Message me if you have any questions. I'm super excited about this! #trishscrochetforacure #mdawareness #lgmdawareness #crochet #crochetforcharity (at Trish's Crochet for a Cure) https://www.instagram.com/p/B4nOZfmHwJM/?igshid=7no0h9fwn438

[trishs-journey]

MDA Muscle Walk 2019

MDA Muscle Walk 2019

Hello, My name is Patricia Hadley and I have Limb-Girdle Muscular Dystrophy 2A. On October 6th is the MDA’s Annual Muscle Walk. This is our first year that we are able to attend the MDA Muscle Walk.

The goal of the Muscle Walk is to raise awareness for this rare life-changing disease and raise money to help fund critical research, send kids to summer camps, and help families find resources for a…

[trishs-journey]

New vlog is out on YouTube! Link in my bio! #lgmdawareness #vlog #musculardystrophy #raisingawareness #raredisease #myjourney #mylife #lifeinawheelchair https://www.instagram.com/p/B2Bh8XqHz5W/?igshid=1nzvbqihtpguw

[trishs-journey]

A few weeks ago I decided to try and explore the world of crochet. I ordered some yarn and a how to book and began watching videos and reading the book. I quickly discovered that the hooks that came with the book are way to hard to hold on to and they made my hands hurt. So I began searching for some hooks with bigger handles and I found some. I asked Justin(my husband) if we could go to Hobby Lobby to look at yarn since it was on sale for 30% off. I got 3 skeins of yarn for less than $10 plus I still had the yarn that I ordered. Once the hooks came in I began trying to crochet a few different things but I was having difficulties getting things to look right(I'm a perfectionist when it comes to things like this) so I kept undoing what I made and starting over. After doing that a bajillion times I finally finished a piece and I'm so proud of it.

I made an Awareness Ribbon for Limb-Girdle Muscular Dystrophy and I love it. It was a beginner friendly project and I love how it turned out. I thought about making more and I was selling them for a small price and donating a portion of what I earn to the Coalition to Cure Calpain 3* If interested send me a message. I can make it in any color. It can be made into a keychain, necklace, or pin.

*Calpain 3 is one of the mutated genes that make up Limb-Girdle Muscular Dystrophy 2A and the donation would help research.

[trishs-journey]

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[trishs-journey]

New vlog is up! Check it out, link in bio! #likecommentsubscribeshare #firstvlog #vlog #youtube #introduction #trishsjourney #mystory #mylife #musculardystrophy #limbgirdlemusculardystrophy #disabledlife #raisingawareness #raredisease #lgmdawareness https://www.instagram.com/p/B1K2h_iHKr0/?igshid=na651rsjweix

[trishs-journey]

YouTube Channel I have started a YouTube channel and recorded my first video last night. My goal for starting a vlog on YouTube is to raise more awareness for Muscular Dystrophy and Limb Girdle Muscular Dystrophy. http://bit.ly/trishsjourney

[trishs-journey]

Trilogy 100 AVAPS Machine

In December 2018 I had my annual MDA Clinic visit. During that visit I was discussing some concerns I was having with shortness of breath during the day and sometimes at night. I previously tried using a Bi-Pap machine but I didn’t like it at all and felt uncomfortable using it so I stopped using it. So the doctor had the respiratory therapist come in and do a couple of breathing tests. They…

[trishs-journey]

It's Been A While, Heres Why!

It’s Been A While, Heres Why!

It’s been over a year since I’ve posted a blog and for that I am sorry. My depression went downhill for a while and I was doing nothing but eating and sleeping. My counselors are trying me on some new medication that I think is working a lot better than the previous medication I was on. I am still kind of mopy so the medicine will need some tweaking to get it just right. Dealing with depression…

[trishs-journey]

Power chair is in the shop

Power chair is in the shop

About a month ago or so I started experiencing issues with my power chair. I would be driving it around the house doing my daily activities and the battery indicator would slowly go from green to yellow, to 2 flashing red dots. I thought maybe it wasn’t holding a charge, so I made sure my husband plugged it in that night when we went to bed. The next day the same thing happens and again I thought…