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me: maybe i am not chronically ill, maybe people are right and i just need to push harder and stop being lazy

me going through a massive flare: fucking hell

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"What about abled people who need their stop" WHAT ABOUT THE WHEELCHAIR USERS WHO NEEDED THEIR STOP

Ok so, I just remembered how people in the comments of a tiktok video were being assholes, and I want to rant now :3

The video showed two wheelchair users at a train(?), who had just arrived to their stop to find nobody was there with a ramp so they could leave the train. One of them blocked the door so it wouldn't close, and this lasted for 15 minutes. The train was stopped for said 15 minutes. There was a button by the door, that said that it'd contact the driver when pressed. It didn't. People offered to go find the driver, and they came back with the news that there were no people in the platform to put the ramp. In the end, passengers had to go out, and place the ramp themselves, before the train could carry on. The wheelchair users had warned they were coming, and asked to have the ramp put there so they could get down. The platform turned out to have workers, they all just ran away because they'd never encountered the situation in which they needed to do this simple task.

Because of the workers' negligence, the train was forced to stop for 15 minutes.

Everyone's comments?

"Why did they block the doors and stop the train? So selfish" Selfish were workers who refused to do their job.

"What if someone had needed to get to their stop urgently? They shouldn't have stopped the train" It wasn't the disabled people's fault, it was the workers who were negligent.

"Why didn't they just wheel themselves down those steps?" They shouldn't have to risk their (expensive) chairs just because people didn't do what they were paid to do.

"If I had been in that train I would've been pissed, how dare you stop it" And you probably wouldn't have even thought about fixing the problem yourself, would you?

"Entitled assholes" Ok I'll leave you stranded in a train with everyone who could help you get down outright refusing to. Let's see who's an entitled asshole now.

If someone fights for accessibility, as much as it might be a bother for you, you do not have the right to be mad at them. If someone fights for accessibility, it is exclusively the fault of a world catered exclusively for able-bodied people.

So next time you think, "hey the consequences of these disabled people fighting for their rights bother me", instead of blaming them for this, help them solve the issue. This way, next time they will not have to fight at all.

Able bodied people, go out and fight for a fucking accessible world if you're not an asshole.

[ Able-bodied people are encouraged to reblog this post, but try not to derail ]

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Like geez I disagreed with one of your videos. Yes I watched it all, still disagreed 🙄

Ha I knew I'd get a lil video reply directed at me. Youtubers are youtubers.

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Ha I knew I'd get a lil video reply directed at me. Youtubers are youtubers.

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I copy pasted parts of this but I do hand letter everything, because while I'm trying to work easier as I'm chronically ill, I am still chronically stupid

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I am so tired of people using the existence of disability as an excuse for bad behavior. It kind of smacks of ableism when someone acts rude and unrepentant about being rude everyone goes "but what if theyre neurodivergent???" It makes it obvious that in their mind, neurodivergent=rude.

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I can't see a doctor for several months and occupational therapy is a 1-2 year wait, hence asking online disabled community :(

Tips for getting dressed and doing chores with hemiplegia??? Please?

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Tips for getting dressed and doing chores with hemiplegia??? Please?

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"I love freaks and weirdos and strange people and people who don't conform and behave oddly because they can't mask all their symptoms and-" you guys genuinely can't even handle it when an anxious person uses a script in a conversation

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Prompt: Autistic pride. How do you feel about being autistic? What does it mean to you? Is it something you take pride in? Have your feelings about being autistic changed since you first found out that you were autistic? And is there a final message you would like to share for the end of autism acceptance month? What would you like people to take away from this month?

Answer: I enjoy being autistic! I'm very passionate about not erasing it as a disability, so I think when I talk about that it can come across as me feeling otherwise, but no I have a genuine appreciation for my autistic self. This is how I am. My feelings haven't exactly changed, except for recognising that how I struggle isn't how most people struggle. When I was first (informally) diagnosed I didn't think much of it, so yeah. Ultimately being autistic is just me being me, in all the weird and wonderful ways that is.

To finish this month off...I just hope you're all enjoying being your wonderful autistic selves, no matter how that may look! I wish you many understanding people, all the accommodations you need, and a happy rest of the year ^.^

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Prompt: How tactile of a person are you? Are you sensory seeking or sensory avoidant? Do you enjoy getting hugs and other types of expressive contact or do you avoid them? If the latter have you had issues ever with people not respecting that you don't like it?

Answer: I am generally quite sensory seeking. I like bright colours, I have a weighted blanket, I hug my stuffed toys a lot. I like layered clothes. I have an issue with having a lot of painful stims, which I am working on using a spiky stim toy thing (mentioned in a previous answer.) Eg a lot of cheek biting (many ulcers from this, sadly) and head banging. I enjoy hugs but also get nervous about initiating them, although this is more of a trauma thing.

I am sensory avoidant in some ways too of course. I'm sensitive to a lot of textures, I can't have my bare feet out because most textures feel painful on them, so I wear socks 24/7. But then I don't like shoes, so my preference is to walk in just socks. Sometimes I handle shoes better than other times. And if you hug me when I'm starting to get overwhelmed I'm liable to have a meltdown.

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Prompt: How difficult is it for you to read other people's tone of voice/facial expressions? Talk about situations where difficulty reading tone of voice/facial expressions made things harder for you

Answer: Often difficult unfortunately. To be fair I also have a very bad case of auditory processing disorder (like, I needed speech therapy as a kid because of it - I couldn't hear the sounds of words correctly, and therefore when learning to speak I said the words wrong. I still can't hear the difference between a lot of sounds, and I still struggle with making sounds different.) So that does impact understanding voice tones. I'm a bit better at facial expressions, but I'm still prone to thinking people are joking when they're not, or taking people overly seriously.

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Prompt: Is making friends something that you find hard to do? When you make new friends at what point do you usually tell them you're autistic? In what ways does being autistic affect your relationships, if at all?

Answer: Yes, I find friendships hard. My friendships are generally made by someone deciding they like me, then them talking to me until one day I realise we're friends. If I'm lucky they pull me into another friendship. It's a kinda passive approach but hey it works for me? I don't really have a thing of telling people I'm autistic. It just comes up naturally at some point, and as mentioned before, there's a decent chance the other has figured it out already.

I think the main things about my autism and friendships is that I do struggle to keep up with them. Until we're very close, I don't feel a lot of urge to speak to people, and even when we're close I find it hard to think to meet up and such. On the flip side, I feel confident in my friendships because they chose me lol. Like they clearly like me as I am, otherwise they wouldn't have made so much effort. Which is nice, even if sometimes I still get a bit insecure that I'm too much.

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Prompt: Do you find it easier to communicate online than in person? For what reasons?

Answer: ...yes and no? I feel like online puts me at a more even playing field lol. Like, haha, none of you can see facial expressions and body language and hear tone of voice either!!!! It's still not easy, although it's hard to explain, and sometimes I find typing stuff out is hard because I can't keep up with my thought process (irl I talk fast but quiet). But I appreciate a more even playing field, and that people can actually like...figure out what I'm saying.

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Prompt: If you could give advice to a child/newly diagnosed person on living life as an autistic person, what advice would you give?

Answer: Some things in life are going to be harder for you than it is for others, and that's okay. It's okay to accept that things are difficult, and you can absolutely love yourself regardless. There's definitely sometimes a feeling that you have to pick - either autism is a terrible terrible thing that nobody wants to be or have their child to be etc, or it's actually a superpower and amazing and everyone should be this way. The reality, in my experience, is neither is accurate. Autism is many things, but ultimately whatever your struggles, it's a part of you. You wouldn't be you without it, and you deserve to love yourself.

Be unapologetically yourself, and know that whatever that looks like, that's more than okay.

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Saw a youtube short of a disabled creator (not naming just in case) talking about invisible disability, and how "describing disabilities as invisible enables non-disabled people to ignore our experiences". And ngl it sort of annoys me. Not drastically annoyed, but like...we talk about visible vs invisible disabilities because there's a difference in perception. Life as someone obviously disabled in some way (no, mobility aids are not the only way someone can be visibly disabled) comes with certain challenges that aren't present if your disability isn't.

Reminds me a little of "all disabilities are physical because the brain is a physical organ" discourse. Like I get what you're getting at, but also I feel like this is stemming from a place of insecurity about your own experiences more than anything.

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It's so weird to me when people are like 'but that will cost the government money!' So what? They're the government, they're supposed to be spending money. What, you want them to take your tax dollars and then do nothing with it? Lock it all up in a big government vault and just look at it? Why are you so scared of giving a third grader lunch or a homeless person a house.